🌍 Empowering and Protecting People with Albinism Worldwide: Building Stronger Communities, Amplifying Global Impact, Advocating for Rights and Inclusion.
Joined August 2025
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AlbinismAlliance retweeted
For #IAAD2026, voices from across the continent are coming together to celebrate confidence, self-acceptance, and pride in who we are.
Today, Mohammed Sadiq from Ghana shares an important reminder: protect yourself from the sun, embrace who you are, and never be afraid to let the world see your potential.
"My skin is different. My whole self is different, and I am proud of that."
#ProudlyInMySkinAfrica #CelebrateAllSkinTones #AlbinismAwareness #AlbinismAfrica #IAAD2026
AlbinismAlliance retweeted
This year's theme for IAAD, "Proudly In My Skin: Celebrating All Skin Tones," calls on all of us to challenge color-based discrimination.
To join the celebration, complete the sentence in the GAA's mockup & share: I’m proud in my skin because…
bit.ly/4fvUmTK
Right to employment for persons with albinism - Report of the Independent Expert on the enjoyment of huma rights by persons with albinism ohchr.org/en/documents/thema…
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🎥 Daniël Herter shared his passion project yesterday: the story of Ukerewe, an island in Tanzania where people with albinism are safe. And that contrast hits hard - because in many other places across Tanzania, albinism is still seen as a curse linkedin.com/posts/activity-…
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PRESS RELEASE: Global Leaders Finalize Key Outcomes from Inaugural World Forum on Skin Cancer Prevention in Persons with Albinism. albinismalliance.org/news/gl…
Following intensive post-event deliberations to consolidate insights and chart a unified path forward, the @GlobalAlbinism, @ILDSDerm, & @StandingVoice announce the finalized outcomes of the inaugural World Skin Forum on Skin Cancer Prevention and Management in PWAs
🧵The GAA team was thrilled to attend the Journées Dermatologiques de Paris (JDP) last week – our last conference of the year. 🇫🇷✨ This congress brought together francophone leaders in dermatology from across the globe.#RareDiseases #SkinCancerPrevention
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For the albinism community, it’s a vital moment to advance research, share knowledge and advocate for better care and understanding of albinism.
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We’re proud to have connected with so many experts and allies, and to keep albinism firmly on the dermatology agenda. We’re excited to continue these conversations in 2026 and to see the impact they will have for persons with albinism worldwide. 💙 #Albinism #Dermatology
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🧵 On #HumanRightsDay, we celebrate a historic victory for people with albinism worldwide.
In 2015, the @UN created the Independent Expert on albinism - the world’s first & only human rights mandate dedicated to protecting one specific genetic condition.
Why?
• UN resolutions condemning attacks
• Global reports exposing myths & violence
• Legal & policy changes in 10+ countries
• A voice at the highest table saying:
“Albinism is not a curse. It is a human rights issue.”
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Yet attacks continue. Stigma persists. Cancer kills silently.
No child should live in fear because of the color of their skin.
Stand with us.
✨ #AlbinismAlliance #Albinism #HumanRightsDay #AlbinismIsNotACurse
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One year ago, our we lost an exceptional leader: Mike McGowan As we remember Mike today, we honor his vision: a world where people with albinism are seen, included and allowed to thrive. 💙
#AlbinismAwareness #Inclusion #DisabilityRights #GlobalAlbinismAlliance
The Global Albinism Alliance welcomes the stark warning from UN Independent Expert Muluka-Anne Miti-Drummond on the dire skin cancer crisis affecting people with albinism, as detailed in the recent OHCHR press release 👇 albinismalliance.org/news/gl…
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AlbinismAlliance retweeted
Doctors & med students with albinism, we’re looking forward to seeing you for our next meeting of Doctors with Albinism on Sunday, December 7th at 9am ET // 6am PT. Join us to connect and share with peers who understand the journey of medicine as a PWA.
albinism.org/NOAH-Connection…
ALT Pale yellow background with array of medical-themed items. Doctors with albinism logo top left and NOAH Connections logo top right. Text reads: Doctors with Albinism Medical students and physicians - we invite you to join this global community of doctors with albinism to share experiences, nurture and mentor on another. www.albinism.org/NOAH-Connections/#doctors
☀️DYK - Persons with albinism face a staggering 1,000x higher risk of skin cancer. At the Global Albinism Alliance (GAA), we're committed to raising awareness, providing sunscreen access, and advocating for protective policies worldwide. Let's protect and empower our community!
