HAEi is the global umbrella organization for the world’s Hereditary Angioedema (HAE) patient groups. We are dedicated to improving the lives of people with HAE.
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Joined June 2011
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Halloween should be spooky. Living with HAE shouldn't have to be.
HAEi believes no one should have to face HAE alone. Via education, shared experiences & a supportive global community, we can make living with HAE a little less scary: haei.org
Happy Halloween 🎃👻
Registration for the 2027 HAEi Regional Conference APAC is now open. We have already notified people who applied for a travel grant by email. If you applied and didn’t receive the email, check your spam folder. More details on our conference website: buff.ly/bRzqLTH
A series of HAEi Advocacy Research and HAEi Targeted Research projects are ongoing to help change this by bridging the gap between international ambition for the goals of HAE management and practical action at the national level: buff.ly/6oOe77u
Great HAE care is about more than specialist centers – it's about bringing patients, healthcare professionals, and researchers together. That's what ACARE is all about: a global network of accredited centers dedicated to improving angioedema care: buff.ly/qbix0wx
That’s a wrap! Thank you to more than 650 participants, speakers, and supporters for making the 2026 HAEi Regional Conference Americas! Read the write-up in a future issue of HAEi Global Perspectives magazine. Join our mailing list: haei.org/
#HAEiAmericas26 #HAEi
The 2026 HAEi Regional Conference Americas is underway!
We’re excited to kick off this second regional conference in the Americas with Tony Castaldo and Henrik Balle Boysen on stage, welcoming more than 650 participants from around 30 countries.
#HAEiAmericas26 #HAEi
We look forward to welcoming >650 HAEi friends to the 2026 HAEi Regional Conference Americas in Ottawa, Canada! The conference theme is Embracing Opportunities, & the sessions are structured to inspire new, creative approaches to HAE advocacy. Enjoy!
#HAEiAmericas26 #HAEi
On 12 Sept, HAE Austria celebrated its 20th anniversary, bringing together patients, HCPs & advocates to mark 20 years of HAE Community progress. HAEi RPA Fanny Schappler presented recently released HAEi resources & International community insights. Congratulations HAE Austria!
HAEi’s free, easy-to-use app, HAE TrackR, is designed to help people with HAE better understand their HAE and make it easier to share valuable information with their healthcare professional. Read more and get started with the app now 👉👉 buff.ly/iTnu1E9
Big strides, small steps – every action counted
246 million steps, 49 countries, and 4.7 trips around the world. The 2026 #active4HAE challenge brought the global HAE community together to raise awareness for HAE.
Read more here: buff.ly/MWKi2Iy
Making the community hAPPy! In Global Perspectives, Anders Kristensen, HAEi Manager, IT takes us behind the scenes to reveal how HAE community feedback drives innovation & shapes digital tools designed to make everyday life easier for those with HAE buff.ly/1LwsSfE
On Friday 23 October, more than 650 HAEi friends will come together at the 2026 HAEi Regional Conference Americas in Ottawa, Canada. Participating? Check your inbox or junk folder (or ask the person who signed you up) for a practical information email sent on Thursday 15 October.
Ever wondered how HAEi conference agendas come together?
In Global Perspectives, HAEi’s Fiona Wardman, explains how we turn participants feedback into meaningful conference experiences: buff.ly/fogZ31x
Read the full magazine buff.ly/DoReZUV
10 October is World Mental Health Day to raise awareness of and support for mental health issues worldwide. Music can benefit mental & physical health, & may lower the levels of stress & anxiety, common triggers for HAE.
HAE and attacks in the FAQ: buff.ly/3hG1Vs8
Once again, it's a great pleasure to welcome a new country under our international umbrella – this time #110: Welcome, Kyrgyzstan!
Congratulations to everyone who helped bring Kyrgyzstan into the family. Thank you for all you do for people with HAE: buff.ly/5VdtD04
HAEi's Regional Patient Advocate, Maria Ferron, reports from her region, Mediterranean, North Africa, Benelux, and British Isles, in the latest edition of our Global Perspectives magazine: buff.ly/Xi7Nqa9
Read the full magazine online here: buff.ly/DoReZUV
We are happy to announce country #109 under our international umbrella, as the HAEi global family keeps growing: Welcome, Honduras!
Congratulations to everyone who helped bring Honduras to the family. Thank you for all you do for people with HAE: buff.ly/8Z0YwJF
In the latest edition of our Global Perspectives magazine, Yong Hao Lim HAEi's Regional Patient Advocate for East Asia, reports from his region: buff.ly/hGqa6BO
Find the full online magazine here, with translation options at your fingertips: buff.ly/DoReZUV
Javier Santana, HAEi's Regional Patient Advocate for Central America and the Caribbean, reports from his region in the latest edition of Global Perspectives. Read about the activities here: buff.ly/JSMYzgG
The full is magazine available online: buff.ly/DoReZUV
In the just-published 3-2026 Global Perspectives magazine, Michal Rutkowski, HAEi's Regional Patient Advocate for Central Eastern Europe and Middle East, reports from his region: buff.ly/BfJWdlu
Read the full magazine online here buff.ly/DoReZUV
