Scientist @SickKidsNews | Professor @UofT | #eyecancer | #genetics |#patientengagement @rb_research | #globalhealth | Views my own; RT not endorsement.
Toronto, Canada
Joined April 2011
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Excited to share our new paper in @NatureGenet about retinoblastoma genetics in Kenya: rdcu.be/dZOIz
Great resource for people affected by #retinoblastoma - check it out!
For some people, Rb can have a lifelong impact. We offer support to our members throughout their lives and we can help with any Rb-related concerns you may have.You can find information for adults on our resources page: buff.ly/3p6RkgK
![[Image description: The image shows a group of adults and CHECT staff at an 'Adults after Rb' support event.]](https://pbs.twimg.com/media/GWAE1GpXcAETHgU.jpg?name=orig)
ALT [Image description: The image shows a group of adults and CHECT staff at an 'Adults after Rb' support event.]
Launching our @VeluxStiftung funded project to uncover molecular hetereogeneity of #retinoblastoma in #Kenya today! Honoured to be a Co-PI on this project led by Dr. Lucy Njambi of @uonbi with support from @SickKidsGlobal @Coecsa_official and @kaviuon
Even more exciting that these 2 former @QEScholars - Simon Njau and Beatrice Omweri - are supporting this project using skills they honed during research exchanges at @UofT
Congratulations to all awardees, especially to the 2023 @HmbIcm team for their video focused on the migrant and refugee experience in Europe!
A huge congratulations to the CUGH-Pulitzer Center's 11th Annual Global Health Video Competition Awardees! We are so proud of your work shining light on important global health issues and innovations! #CUGH2024 ⚕️🌎 @keithmartinmd @pulitzercenter
Amazed by all the talent in the @rb_research group!
Kicking off our AGM now! A word cloud showing our unique perspectives. Excited to roll-up-our sleeves and start planning for 2024. #retinoblastoma #rb #knowtheglow #patientengagement
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Excellent piece about #retinoblastoma featuring the story of @wechope USA CEO Marissa Gonzales. A must read!
It takes a lifetime to survive childhood cancer.
Read: nyti.ms/3F88M9k
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1/3 In the @ISOOAfrica2023 Partnering for Children with #Retinoblastoma Workshop sponsored by @StJude I was thrilled to hear that 3/4 panelists consider their National RB Strategy and/or local clinical RB guidelines as their biggest strengths in improving RB care! #ISOOAfrica2023
2/3 Proud to have been part of the first National #Retinoblastoma Strategies in Canada (@CdnRBSociety) and Kenya (@wechope @SickKidsGlobal) which are now inspiring the world! #ISOOAfrica2023
The excitement for #ISOOAfrica2023 has begun with this excellent TV spot on #retinoblastoma featuring Dr Kahaki Kimani and Marissa Gonzalez of @wechope youtu.be/lfQbqQyR4DU
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Congratulations @Farheen13107456 ! You made the lab proud today!
I am thrilled to say that I gave my first-ever talk at @SickKidsCancer GFCC Cancer Research Day today about my MSc project! I am honoured to have received the Best Oral Presentation - Ana Novokmet Memorial Award! Thank you judges, and @HDimaras for your guidance and support 🥰
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Dr Larissa Moniz of @FB_Canada advocates for “life-changing” gene therapy for young people with inherited retinal diseases | Social media star who advocates for blind community set to get 'life-changing' gene therapy | @CBCNews cbc.ca/news/canada/toronto/a…
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Feeling inspired after listening to the keynote by @FieryFrancine today at the @rb_research Symposium!
Following her presentation, keynote speaker Francine takes questions from the audience.
#CRRAB2023 #retinoblastoma #RB #PatientEngagement
If you’re a #retinoblastoma #survivor or #parent in Canada, consider taking part in out study- details below!
Participate in a study to help us uncover the #psychosocial needs of patients & families affected by #retinoblastoma! Your input can help us gather information needed to improve support for #RB families. Complete the survey now 👉 bit.ly/RBneeds
#RbPsychosocialSupport
ALT Photo of hands holding a heart-shaped ball with text reading, "Investigating the Psychosocial Needs of Retinoblastoma Patients and Families. Share your: experience with retinoblastoma; current & past supportive care needs; access to information & services. Participate in the survey".
The Global Retinoblastoma Outcome Study: a prospective, cluster-based ... sciencedirect.com/science/ar…
Ethical failures in global health research: violations of Sustainable Development Goal 8, decent work for all thelancet.com/journals/langl…
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Guilty of this, so I appreciate the lesson…will aim to do better!
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Localisation only pays lip service to fixing aid’s colonial legacy: thenewhumanitarian.org/opini… (@newhumanitarian)
The patients, families, survivors and other members of @rb_research were key to making this research happen! Also thanks to @KAKSStiftung for providing us with Elli the Elephant; she made a great research tool!
Qualitative #retinoblastoma #PROM research finds that psychosocial outcomes, daily functioning, functional vision, education, cosmetic outcomes, & secondary eye conditions are important #PatientReportedOutcomes for pts & survivors #JCOOP @Hdimaras fal.cn/3lME9
Grand Challenges in #global #eye #health: a global prioritisation process using Delphi method thelancet.com/journals/lanhl…
Our new paper about #global #collaboration within @1rbw is published! Many thanks to @KaitlynFlegg @DrJohnProchaska and @HannahGirdler for their work on this study. #ChildhoodCancer #retinoblastoma
Just published: @HDimaras and colleagues studied the number, scope and nature of collaborations within a cooperative network of global retinoblastoma treatment centers and how they are perceived to contribute towards improving retinoblastoma outcomes. plos.io/30DLtDG
