VP Registries/Partnerships @AliraHealth. Co-founder @FreezeHealth. Health Innovation lover. President of 2 non-profit boards. MPH student @JohnsHopkinsSPH.

Miami, FL
Joined September 2013
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Last night we went around the table and shared our highlights from the conference…. For me, it was seeing how close we are to so many new therapeutics in phase 3 - it’s an exciting time for lupus!! - and putting faces (and personalities!) to the authors that I have read a ton
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Closed a great EULAR with a great meal and an even better team. (And getting excited for 2025 in Barcelona…!!!) #EULAR2024
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Loved the talk! I also loved the SLE CT Outcome Measures article in Lupus Science & Medicine and have tons of questions for you! If you have a few minutes at EULAR it would be great to connect - send me a DM?
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Replying to @MiaRodziewicz
Loving this talk! Would love to connect later in the conference and ask you a few questions - like how exactly patients were recruited / enrolled? (Send me a DM? :))
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Replying to @Lupusreference
This is a fabulous article, thanks so much for submitting! For those who are doing real-world data studies, what do you think of prediction models for outcome measures not typically gathered outside of an RCT environment - e.g. rmdopen.bmj.com/content/7/2/…
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It's #WorldLupusDay! I'm blessed to be able to spend most of my working time these days working on the FORWARD Lupus Registry with @ndb_org. Tagging some folks I follow who are passionate about lupus research - who else should I follow?! @Dr_K @Lupusreference @vksandhumd etc.!
📣Today’s #WorldLupusDay is dedicated to raising awareness and generating change for the 5 million people affected worldwide. ❓ Did you know? #Lupus can strike anyone at any time, but 90 percent of the people living with lupus are women. More Lupus facts below. #makelupusvisible
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Jennifer Lannon retweeted
Jennifer Lannon (@HealthTechJen ), Director Patient Advocacy and Partnerships, will be bringing her passion for patient centricity and engagement to the #PatientsasPartners event in D.C. next week. Will we see you there? #PatientsasPartners2023 #patientcentricity @ConferenceForum
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But not as amazing as it could be without @RasuShrestha !!! – at Washington, DC
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Jennifer Lannon retweeted
On the 40th anniversary of the ODA in the US, we asked our own Jennifer Lannon & Xavier Prugnard to reflect on the law and its impacts, both on #lifesciences companies and patients. Here's what they had to say: alirahealth.com/education-hu… #orphandrugs #rarediseases #rarediseaseday
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It’s always a joy to share announcements like this! So grateful to @CarcinoidNETs for being such a great advocacy partner of ours! – at Florida, USA
We are pleased to announce TerSera Therapeutics’ sponsorship with @CarcinoidNETs and Alira Health to expand and optimize a holistic patient journey digital platform for patients with Neuroendocrine Tumors and Carcinoid Syndrome. alirahealth.com/education-hu… #patientadvocacy
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As if I needed another reason to watch season 2…! Glad to be a part of a badass crew making egg freezing more accessible along with @laurenmakler @halletecco @alyssaatkins and more! 🥚 – at Miami, FL
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Who doesn’t love getting dressed up in black tie? 🙃🥂🤵‍♂️💃 – at Miami, FL
Looking fancy for #pharma in Philly! Jennifer Lannon (@HealthTechJen) and Anshul Sharma representing us onsite to award excellence tonight. events.reutersevents.com/pha… #repharma @RE_Pharma
Jennifer Lannon retweeted
We are here at #DPHARM2022! Come see our delegates today to learn how we partner with patients to implement innovative methods that optimize your #clinicaltrials. Read more: alirahealth.com/education-hu… #clinicalresearch #clinicalinnovation #pharma #patientadvocacy #patientengagement
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Gotta say, super proud of @MiamiHerbert for pulling a *really* impressive panel together in my backyard. Thanks for sponsoring @_GuideWell , @vitas, @UMiamiHealth and more - can’t wait for more of this! #HealthCare2022
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Kicking off #HealthDisruptors dinner at #SXSW as the in inaugural photo booth-er!!! 🥳 gallery.saycheesephotobooths…
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Jennifer Lannon retweeted
If you're at #SXSW, I hope to see you at my panel today (March 12th) on "#Equity: How Digital Unlocks Access to Medicines" with my esteemed panelists: @DaphneKoller (@insitro ), @AndreaCoravos (@GoHumanFirst ) and @JayRughani (@a16z) - The LINE Hotel, Onyx Ballroom at 1-2pm CT
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