Advocate & Activist, 20 year Mesothelioma Warrior, Animal Lover, Giver of Hope, & Overall Badass Mother. Business/interview inquiries [email protected]
Twin Cities, Minnesota
Joined June 2009
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Heather Von St James retweeted
Understanding end-stage mesothelioma can help patients and families prepare for what's ahead. Learn about common symptoms, palliative care and ways to improve comfort. bit.ly/3TzZOfK
Day 4 of facts about mesothelioma and asbestos leading up to Mesothelioma Awareness Day on Saturday, September 26th.
Day 3 of facts about Asbestos and #Mesothelioma every day until Mesothelioma Awareness Day . #curemeso #morethanmeso #asbestos #survivor
Day two of facts about #Mesothelioma for Mesothelioma Awareness Day, Saturday, September 26th .
Saturday September 26th is #Mesothelioma Awareness Day.
I’ll be sharing facts about Meso and asbestos daily through Saturday.
#asbestos #survivor #curemeso #morethanmeso
Heather Von St James retweeted
How common is mesothelioma? Learn key statistics about incidence, survival rates, risk factors and more in our updated guide. bit.ly/4AgnkyZ
ALT Mesothelioma statistics in the United States from Mesothelioma.com.
On days like today when I get down on myself, I take a moment to remember what I’ve been through to bring me to this point in my life.
Facing a terminal cancer diagnosis with a 3 month old baby was no easy task, yet I did it. I survived brutal surgery, chemo and radiation and have lived the last 20+ years with one lung. If that doesn’t prove what I’m made of, I don’t know what does.
My 81 year old mother has a great circle of friends of all ages. One of these little friends is about 10 years old. She drew a picture of a girl with purple hair and gave it to my mom. Mom shared it with my sister and me, and my sister said “This is how she sees you mom!” Not as an 81 year old grandmother, but a beautiful person who is an important part of her life.
My wish is that we all could see ourselves through the lens of those who love us most. I think we would all be really surprised.
Weekend wisdom for every cancer survivor and patient out there facing scans:
Worry has never changed the outcome of a scan for either the better or worse. We are so busy concentrating on the bad, we don’t realize that the scans can also be good!
And yes it’s that simple. It’s normal to worry and I get that, however choosing to allow the scans derail your entire life is one I don’t choose to make . It’s taken a lot of inner work, but I promise, having peace around scan time is so worth it.
Heather Von St James retweeted
Cancer patients facing food insecurity have help available. From local organizations to federal programs, assistance is closer than you think. Read more. bit.ly/3TbUzTi
Heather Von St James retweeted
Some patients may need to travel for treatment. @HeatherVSJ did when she went from Minnesota to Boston during her treatment. She learned many lessons that she shares on the blog.
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Heather Von St James retweeted
Asbestos was once used in many products and materials. Learn where asbestos exposure risks may be found and why they matter today.
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Heather Von St James retweeted
Immunotherapy has led to long-term remission in peritoneal mesothelioma cases. Learn how this important therapy is helping patients.
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Someone on here tried to insult me by calling me an ice cream cone from McDonald’s ! I laughed out loud for real but corrected him and told him I’m a Dairy Queen Ice Cream cone damnit!
I ain’t even mad!
Weekend wisdom for every cancer survivor and patient out there facing scans:
Worry has never changed the outcome of a scan for either the better or worse. We are so busy concentrating on the bad, we don’t realize that the scans can also be good!
And yes it’s that simple. It’s normal to worry and I get that, however choosing to allow the scans derail your entire life is one I don’t choose to make . It’s taken a lot of inner work, but I promise, having peace around scan time is so worth it.
Heather Von St James retweeted
Cancer patients are asking a federal appeals court to reconsider Revlon's bankruptcy plan over concerns it could limit future talc claims. Read what the case could mean here.
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Heather Von St James retweeted
100 Influential Cancer Survivors on Social Media: 2026 Edition
When you hear the words "you have cancer," what happens next defines everything.
A few decades ago, a cancer diagnosis often meant stepping back from life, from work, from public roles, from the future you had imagined. Treatment was gruelling, options were limited, and survivorship was rarely part of the conversation.
Today, more people than ever are not just surviving cancer, they are leading through it.
Researching it. Speaking about it. Changing policy because of it.
That shift happened one story, one voice, one act of courage at a time.
In 2026, OncoDaily recognises 100 influential cancer survivors who refused to let their diagnosis be the end of their story and in doing so, have helped rewrite the story for all of us.
oncodaily.com/100/100-most-i…
#CancerSurvivors #OncoDaily #Cancer #Oncology #BIGR #NationalCancerSurvivorsMonth
I'm honored to be among The 100 Most Influential Cancer Survivors of 2026 oncodaily.com/100/100-most-i…
Heather Von St James retweeted
Mark your calendars: We open submissions for the 2027 Mesothelioma.com Scholarship on November 1, 2026. buff.ly/CpFIKuH
Heather Von St James retweeted
We all agree: cosmetics shouldn't contain asbestos. Right? So, why did the FDA withdraw its proposed rule about testing cosmetics for asbestos? Find out here. buff.ly/cXYfKLo
