Help4HD

Our sincere gratitude to Acting FDA Director Kyle Diamantas & U.S. #FDA for convening the #HuntingtonsDisease roundtable. Collaboration like this ensures voices of #HDcommunity remain at the center of research, drug development, & regulatory decision-making.

REGEN4HD! At Virtual #Help4HDHIPE2026, founding Co-Editor in Chief of the Journal of #HuntingtonsDisease, Dr. Leslie Thompson shares about this stem cell based #ClinicalTrial. Don't miss this free event! #FacingtheUnknownwithHope help4hd.org/events

Dr. Stuart Red, uniQure Principal Medical Science Liaison joins us November 7th! Learn more about gene therapy candidate: AMT-130 at Help 4 HD Virtual HIPE!#Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease help4hd.org/events

"By wearing a medallion, members have access to a 24-hour hotline number that can be called by First Responders, enabling them to assist individuals in times of crisis..." ~Medallion Program (#Arizona) #Help4HD Resource Database: digitalgrowthfirm.adalo.com/…

Hear about these easy checklists to go through for your #HD family! Listen on #Help4HDTV as Jamie explains some examples of these tools you can implement to help make your safe space jut a little bit safer! #HuntingtonsDisease facebook.com/share/v/1D88Aet…

Part 2! Check out the 2nd part of Lauren's interview with Susanna Smith of Genetic Frontiers! #Help4HDLive #HuntingtonsDisease digitalgrowthfirm.adalo.com/…

Your #Help4HDTV host is bringing social worker Jamie Holloway to the show this week to demonstrate the #HD Safety Toolkit made especially for HD families! #Help4HD #HuntingtonsDisease #resources Listen 9am PST tomorrow: facebook.com/help4hd/reels/

NEXT SATURDAY! Listen in as Apexa Patel joins Virtual HIPE presenting Teva Total Support Patient #Support Program! We can't wait to see you there! #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease #Register: help4hd.org/events

Uncover the facts of #HDResearch on Saturday Nov 7th! Dr. Martha Nance, Director at Hennepin #HealthCare #HD Center of Excellence, addresses questions on current #ClinicalTrials at #Help4HDHIPE2026!#FacingtheUnknownwithHope Register: help4hd.org/events

Get ready to learn more about thie INVEST-HD clinical trial on the Huntington's Post! #Help4HD #blog #HuntingtonsDisease help4hd.org/post/invest-hd-c…

Join the HIPE online where Prilenia Executive Medical Director Dr. Nils Confer conveys PRECISE-HD trial details. Register to hear more at this #FREE #Help4HD event! #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease help4hd.org/events

#Virtual #Help4HDHIPE2026 is NEXT WEEKEND! Join Neurologist Dr. Fiona Gupta representing Neurocrine Biosciences as she presents the familiar adversity of #HD #Chorea. We can't wait to see you there! #FacingtheUnknownwithHope help4hd.org/events

#Help4HD #LEEP volunteers are shining a light on the #HDCommunity at the IACP Conference 2026! Excited to discuss #symptoms, resources, & more to give first responders a better understanding of #HD patients & families that they may encounter. #LawEnforcement

#HD delivers changes & challenges! Dr. Karen Anderson, Psychiatry & Neurology Professor at Georgetown University, is bringing her expertise to #Virtual #Help4HDHIPE2026 to answer your questions! #FacingtheUnknownwithHope Register: help4hd.org/events

It's time for Monday Mixer! Reach out to [email protected] to join us this week on Zoom at 4pm PST for fellowship with #HD community members!

See what's on the agenda for Virtual HIPE ~ Facing the Unknown with Hope 💙💜💙 Register for FREE! help4hd.org/events #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease

"...skilled case managers assist with health insurance, #disability, & financial hardships associated to a #diagnosis of a chronic & life-threatening diagnosis..." ~Patient #Advocate Foundation (PAF) #Help4HD #HD #Resource Database: digitalgrowthfirm.adalo.com/…

"#Caregivers need to take care themselves first, not because the Huntington's patient doesn't matter, it's because they matter..." Listen as Bill Butcher opens up about decisions made to care for his wife with #HD on #Help4HDTV. facebook.com/help4hd/reels/

On this week's episode on #Help4HDTV Bill Butcher describes how his experiences working in hospice have translated to his important current mission as #HDcaregiver for his lovely wife. Listen TOMORROW at 9am PST! #huntingtonsdisease facebook.com/help4hd/reels/

Headed to Orlando this weekend! #Help4HD's #LawEnforcement #Education Program (#LEEP) is coming to IACP 2026 to bring #HDAwareness to over 16,000 public safety professionals! #HD Resources for educating with your local department: digitalgrowthfirm.adalo.com/…