@IBDBOOST

#NIHR funded research by #KingsCollegeLon and #LNWH_NHS, helping to improve quality of life for people affected by #Crohns, #Colitis and other forms of #IBD.

 London, England
Joined February 2018
  • Tweets244
  • Following1.1K
  • Followers864
73Media
@bethstuart97 introduced two talks from the PCTU showing the breadth of pragmatic clinical trials, by Laura Miller @IBDBOOST and Susie Jennings @AttackMS_trial
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A call to arms for UK IBDers! Please can you complete this 2023 patient survey for @CrohnsColitisUK. Super important to share your experience (anonymously)! Thanks. 🥂⭐ #IBD #Crohns #CrohnsDisease #UC #UlcerativeColitis
Crohn's & Colitis UK@CrohnsColitisUK17 Aug 2023
There’s still time to take part in the 2023 IBD Patient Survey! This is an opportunity for everyone living with IBD to tell us their experiences anonymously. We want to hear from people of all ethnic backgrounds to ensure everyone’s voice is heard. 🔗👉 ow.ly/qFoO50PAhEf
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The IBD Patient Survey closes on 25th August. We need to make sure that the results reflect everyone's experiences, when it comes to their IBD care. This is the first step to improving standards across IBD services. ibduk.org/ibd-benchmarking-t…

The IBD Patient Survey 2023 | IBD UK

The IBD patient survey for Crohn's or Colitis will help ensure that the NHS better meets the needs of people living with Crohn's and Colitis.

ibduk.org
ClearView Research@CVRInsights16 Aug 2023
We’ve been working with @CrohnsColitisR to make sure the voices of those from Black, Asian and other ethnic minority communities affected by Inflammatory Bowel Disease (IBD) are heard! Take the survey now 👇🏾 ibduk.org/ibd-benchmarking-t…
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Have you registered for our virtual Patient Involvement in Research Day on 11th November yet? It's a great opportunity to hear about the latest IBD research, and the researchers want to hear from YOU through live voting! Find out more and sign up now: crohnsandcolitis.org.uk/ppi-…
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IBD-BOOST retweeted
Seb@ibdseb25 Jul 2023
IBD Investigators Day For 🇬🇧 #IBD #HCPs interested in research Please do register 👇 Led by ⁦@NickPowellLab⁩ ⁦@DrNickKennedy⁩ ⁦@ResearchBsg⁩ ⁦@BSGTrainees⁩ ⁦@BSGNurses⁩ bsg.org.uk/events/ibd-invest…
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"Celebrating #NHS75🎉! Our heartfelt thanks to the dedicated #NHS staff making a difference in the lives of those living with Crohn's & Colitis. Your commitment inspires us all. Join us in a salute to their heroism - Retweet & spread the love! #ThankYouNHS #Crohns #Colitis" 💜💙
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75 years on, it is the people who make us. 💙 #NHS75
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Calling all people living with Inflammatory Bowel Disease in the UK. Everyone with IBD deserves consistent, safe, high-quality, personalised care, whatever their age and wherever they live. Take the #IBDPatientSurvey ibduk.org/ibd-benchmarking-t…
Graphic showing 5 wooden faces from happy to sad on a blue background. Text explains the IBD Patient Survey 2023 is open. IBD UK and Crohn's & Colitis UK logos in the bottom left and right corners.

ALT Graphic showing 5 wooden faces from happy to sad on a blue background. Text explains the IBD Patient Survey 2023 is open. IBD UK and Crohn's & Colitis UK logos in the bottom left and right corners.

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IBD-BOOST retweeted
IBD-BOOST@IBDBOOST19 May 2023
On this #WorldIBDDay we want to thank all those who have taken part in and supported our #IBD-BOOST #research programme. We are looking at minimising the impact of #pain #fatigue and #urgency for those with #IBD SIGN UP HERE for early access to results: boost.aidaform.com/signupRes…
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🌍 Today, we unite to celebrate #WorldIBDDay, raising awareness for Crohn's and Colitis. Let's recognise the strength, resilience, and courage of those living with these conditions. Join us in breaking the silence & increasing understanding. #IBDAwareness crohnsandcolitis.org.uk/get-…
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Today is International Nurses Day! Thank you to all our nurses for the dedication and first-class care you provide every day. #IND2023
Thank you graphic for nurses. Text: 'Thank you to all of our brilliant nurses!' Image: Three nurses, past and present are shown displayed on the blue celebratory graphic underneath the text.

ALT Thank you graphic for nurses. Text: 'Thank you to all of our brilliant nurses!' Image: Three nurses, past and present are shown displayed on the blue celebratory graphic underneath the text.

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These results are hotly anticipated! 🔥I've signed up to the emails... hope you will too! IBD-BOOST focuses on living well with fatigue, pain and urgency. A fantastic endeavour to help us thrive in spite of these difficult challenges. ➡️ibd-boost.org @IBDBOOST
IBD-BOOST@IBDBOOST10 May 2023
Hi All - Exciting news! To receive information regarding the #IBD-BOOST trial results please SIGN UP HERE: boost.aidaform.com/signup Results will be coming soon!
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Do you have #IBD #crohnsdisease or #UlcerativeColitis? Researchers from Cambridge would like to hear about your experiences with visceral pain. Please consider filling out their survey: redcap.link/mbw53y9a More info here: pain.medschl.cam.ac.uk/advan…
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Great to see some of @IBDBOOST 👭👫for facilitator feedback yesterday some interesting results 🧐 looking forward to #ECCO2023 to👂more then a hotfoot 🏃‍♀️ to @StMarksHospital for a meeting and home by 10pm productive Journey with Wi-Fi that worked both ways feels like treat 😂
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Replying to @CrohnsColitisUK
@CrohnsColitisuk are asking us to #cutthecrap💩and support earlier diagnosis so the #IBDNursing #team @StMarksHospital are running a poll what needs to change to support earlier diagnosis of #IBD @BowelsOfStMarks all of the above then like❤️ #CrohnsAndColitisAwarenessWeek
44%Education in primary care
15%Public awareness
24%Early use of calprotectin
17%Better access to tests
41 votes • Final results
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This Crohn's and Colitis Awareness Week, your story matters. It’s taking too long for people to be diagnosed - 1 in 4 waited more than a year. By sharing your diagnosis story, you can help us raise awareness so people get the help they need. Share yours: crohnsandcolitis.org.uk/shar…
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We are deeply saddened to hear of the death of Queen Elizabeth II. Her Majesty will be remembered by us all for her truly remarkable life of duty and service. Her lifelong work for charity helped countless thousands and was an inspiration to millions more.
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🧬🩺💊💉There are so many opportunities on our website to take part in or help to shape research into Crohn's and Colitis! Ranging from online surveys to clinical trials, there's something for everyone. Take a look here: crohnsandcolitis.org.uk/get-…
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This is for the people who have carried us through, who are behind every treatment, every drug and breakthrough. This for the #TrialBlazers, commissioned in recognition of each and everyone of you. #ClinicalTrialsDay #BePartOfResearch Be a TrialBlazer: bepartofresearch.nihr.ac.uk/…
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On #worldibdday2022 we want to say a big THANK YOU to all the researchers who work so hard to improve lives for people with Crohn's or Colitis and learn more every day about the causes and potential treatments of the conditions - and ultimately, to find a cure🧬💊🩺🏥🔬
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