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IBDMen

@IBDMen

Dedicated to the issues facing Men with IBD, Crohn's & UC. Watch this space

 UK
Joined March 2018
  • Tweets20
  • Following114
  • Followers183
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Photo by IBDMen (@IBDMen)
Inspired by the launch of @IBDWomen it seemed a shame not to set up a similar account dedicated, but not exclusive to, the issues men with IBD face. It's early days yet but to set the ball rolling can I have your suggestions for topics we should cover #IBDMen
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1/2 It’s important to keep to schedule on #biologics. My 1st #stelara #ustekinumab is due for #crohns today (8wks post infusion). @LloydsPharmacy said a nurse was coming to administer – I chase it as not heard and they have n/o avail for a WEEK.
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I need some help for an article I'm writing! I cannot remember how I felt when told I had #crohns. I know many of the Twitter #IBD family have been diagnosed more recently and it will be clearer in your memory. Can you sum up your feelings in 2 or 3 words? Thanks
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#IBD and #medicalcannabis. Not an area I know too much about – what do others think?
Curaleaf Clinic (@CuraleafClinic) profile pictureCuraleaf Clinic@CuraleafClinic5 Sep 2019
Replying to @CuraleafClinic @camaccallum @AmirEnglund
Dr Peter Irving MA MD MRCP is internationally known as an expert in inflammatory bowel disease. He is the first author of a randomised-controlled trial investigating cannabinoids in IBD. bit.ly/2kjIxHf #medicalcannabis
Image from Curaleaf Clinic (@CuraleafClinic)
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Erectile dysfunction was present in >90% of men with newly diagnosed #IBD. Authors recommend screening for sexual dysfunction in #IBD and appropriate referral for treatment as needed. bit.ly/2Ma0lQx
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Interested to hear your views on it as a piece of research
A small but telling poll. 91% of our #IBDwomen say they struggle to engage in or enjoy sex as a result of their #IBD. Another nod to the absolute importance of whole-person care. How can things improve? What help is available and how can it be accessed?
IBD Women (@IBDwomen) profile pictureIBD Women@IBDwomen10 Aug 2019
#IBDWomenPoll! Ahead of tonight's question on #IBDwomen and sex that I'll post at 7pm (🇬🇧 time), here's a shotgun poll for women with #IBD. Please RT! Thanks. Q: Have you ever struggled to engage in or enjoy sex as a result of your IBD?
12%Yes – physical challenges
9%Yes – mental challenges
70%Yes – both of above
9%No, it's always been fine
66 votes • Final results
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#IBDMen has got off to a bit of a slow start! It's a question of finding some time. Will get a web page up over the next week or so. To kick it off would anyone like to write a guest post(s) on the issues they face as an #IBDman? Beginners welcome! I'm happy to help. Please DM me
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It is no exaggeration now to say that IBD has unfortunately become a global pandemic. We need to work out what aspects of genetics, the microbiome and the environment are responsible. We want to work towards CURE and PREVENTION. – at Edinburgh, Scotland
Image from Charlie Lees (@charlie_lees)
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While UK gastro's great and good are huddled at #BSG2018, may I politely 'abuse' that hashtag to let you know I'm launching my #IBD patient blog, The Perianal Diaries, in a few weeks or so. Follow @perianaldiaries for info. Thanks!
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