ICUsteps is run by ex-patients, relatives and intensive care staff to support patients and families through the long road to recovery from critical illness.

United Kingdom
Joined February 2011
#MyRehabGoals for #ICURehabDay25 Recovery from critical illness can take up to 18 months. People need support and rehabilitation to enable them to thrive after critical illness, not just survive. Goal setting is crucial in rehabilitation. icusteps.org/rehabilitation
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In intensive care, haloperidol, a calming drug, did not clearly help patients with delirium (sudden confusion over hours or days). The AID-ICU trial (New England Journal of Medicine, 2022) gave 1,000 intensive care patients with delirium haloperidol or placebo (a dummy drug), chosen by chance. The main measure was the number of days, out of the next 90, that patients were alive and out of hospital. The two groups did not differ clearly. A second measure was deaths within 90 days: 36 in every 100 patients on haloperidol, against 43 in every 100 on placebo. The trial was not mainly designed to test this, so it is weaker evidence. Intensive care colleagues: has this trial changed how often haloperidol is used in your unit? pubmed.ncbi.nlm.nih.gov/3628…
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Can you help with this research on patient's experiences of physiotherapy after ICU discharge? Please contact the researcher directly-their details are on the attached poster. Thank you!
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Planning a summer holiday this year? More and more holiday providers are recognising the needs and preferences of disabled travellers - but a little forward planning can still make all the difference. Have you travelled after a brain injury? We’d love to hear what worked for you (or what you wish you’d known). Share your experiences in the comments.
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How to cut your risk of dementia, from head to toe inews.co.uk/inews-lifestyle/… #Alzheimers #dementia #health #wellness
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Our Family & Friends Drop-in is today @ 8pm We're here to help you whenever you feel you need it most We're a friendly group who'll listen without judgement & share the benefit of our experiences with you - we sometimes even laugh too Email [email protected] for more details
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Useful facts on Alzheimer's Disease. Note especially the huge contribution that carers make.
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🧸 What does child-centred care look like after PICU discharge? When children leave PICU, care does not end at discharge. Parents’ experiences reveal what partnership truly means. 🔗 doi.org/10.1111/nicc.70300 #ChildCentredCare #PaediatricICU
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We are looking into provision of #braininjury services in #Coventry and #Warwick and would be grateful if you would share this post to help us gather information/opinions. @leamobs @covobservernews @live_coventry
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Melatonin and delirium in the intensive care units: a systematic review and meta-analysis of randomized controlled trials tinyurl.com/mrj485k6 #icurehab #A2Fbundle
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