Idiopathic Hypersomnia Awareness Week is an annual global awareness campaign ~ 1-7 JUNE. #LivingwithIH
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IH Awareness Week retweeted
We’re taking the Idiopathic Hypersomnia Awareness Week @IHAWeek to the US – again! 💜
From 4–14 June, we will be in Seattle, Washington for two major events:
🟣The Hypersomnia Foundation’s Beyond Sleepy Conference
🔵The APSS's annual SLEEP conference
#BeyondSleepy #SLEEP2025
IH Awareness Week retweeted
Hélène is #MoreThanIH
She is curious about everything 🐞
Fill out the form here - forms.gle/4Hp2pdABa7KameyJ9
This initiative is a collaboration with @IHAWeek, led by Hypersomnolence Australia(@Hyper_Sleep).
IH Awareness Week retweeted
Hannah is #MoreThanIH
She is proud that she has persevered even when times have been tough. 🌻
Fill out the form here - forms.gle/4Hp2pdABa7KameyJ9
This initiative is a collaboration with @IHAWeek, led by Hypersomnolence Australia(@Hyper_Sleep).
IH Awareness Week retweeted
Ways to help raise awareness - ADD A FRAME TO YOUR PROFILE PIC.
Send us a photo and we will create a frame and send it back to you. form.jotform.com/24056081691…
Learn more about the IH Awareness Week: hypersomnolenceaustralia.org…
#IdiopathicHypersomnia #LivingwithIH #MoreThanIH
IH Awareness Week retweeted
Annie is #MoreThanIH
Annie is proud that she self-advocated until she had a diagnosis. When we asked her what she loved about herself, she said, “My passion for spreading awareness of IH.”
forms.gle/JewSZBsRkLGpoiEu9
@IHAWeek
IH Awareness Week retweeted
We’re so grateful for Emma-Lee’s commitment to raising awareness and funds for people living with #IdiopathicHypersomnia.
You can support her fundraising efforts (and read about her reasons for supporting HA) here:
gorrf25.grassrootz.com/hyper…
IH Awareness Week retweeted
We are grateful for our partnerships with organizations and individuals from around the world. Michelle Chadwick from Hypersomnolence Australia has dedicated her time to help spread awareness of idiopathic hypersomnia and create a community of support.
IH Awareness Week retweeted
Robin is #MoreThanIH 🌻
Robin is proud of getting her college degree in accounting. When we asked her what she loved about herself, she said, “I am strong, self-sufficient, and independent.” 💙 💙
Fill out form here - forms.gle/JewSZBsRkLGpoiEu9
IH Awareness Week retweeted
Relentless is a word I use to describe IH too Jon. If only people realised there is no reprieve. There is no new set of ‘spoons’ available to me after a nights sleep or nap.
IH Awareness Week retweeted
Great to see the positive results of phase 1 Orexin 2 Agonist ALKS2680 in Type 1 #Narcolepsy. Dr Ron Grunstein of @Woolcockmedical poster presentation #SLEEP2024 @Alkermes
IH Awareness Week retweeted
Thank u Emma-Lee & Ben for supporting the worldwide Idiopathic Hypersomnia Awareness Week. Your efforts help bring much needed awareness to #IdiopathicHypersomnia 💙
bit.ly/LearnAboutIH
Learn more about the IH Awareness Week: bit.ly/3TQYF0K
#LivingwithIH #ThisisIH
IH Awareness Week retweeted
I know we still have a long way to go but Ive been around a long time so I know that it wasnt that long ago that IH was basically not mentioned at a scientific conference much less like this. Thank u @JazzPharma for helping to shine a light on #IdiopathicHypersomnia #SLEEP2024
IH Awareness Week retweeted
This week, we join @HypersomniaNews, @IHAWeek, and @Hyper_Sleep to recognize Idiopathic Hypersomnia (IH) Week and spread awareness of this sleep disorder while uplifting the voices of those living with an idiopathic hypersomnia diagnosis. #ThisIsIH
IH Awareness Week retweeted
Understanding the Patient Lexicon Regarding Brain Fog in the Central Disorders of Hypersomnolence Population @JenMundtPhD; Dr Frederik Ascencion; @matthorsnell & Diana Kimmel #SLEEP2024
IH Awareness Week retweeted
This #IdiopathicHypersomnia (IH) Awareness Week (June 1-7) brings a glimmer of hope to people with excessive sleepiness, with a new treatment involving Woolcock researchers showing promising early results: bit.ly/3VanBjh.
#LivingwithIH #ThisIsIH #Sleep #SleepMedicine
IH Awareness Week retweeted
Join us this #IdiopathicHypersomnia (IH) Awareness Week (June 1-7) to spread awareness and understanding of a condition that causes more than just sleepiness.
Learn about IH here: bit.ly/4bzWAMS
#LivingwithIH #ThisIsIH
IH Awareness Week retweeted
Idiopathic Hypersomnia causes more than sleepiness. #ThisIsIH
We are joining @HyperSleep and @HypersomniaNews to spread awareness and support IH Awareness Week @IHAweek and #IH Day.
Participate in the IH Awareness Week: bit.ly/4diZUgE
IH Awareness Week retweeted
Idiopathic Hypersomnia causes more than sleepiness. #ThisIsIH #IHday
Join the @ihaweek June 1-7 to spread awareness and celebrate Idiopathic Hypersomnia Awareness Week.
To learn more about #IdiopathicHypersomnia & participate in the IH Awareness Week: bit.ly/4diZUgE
IH Awareness Week retweeted
Today is the day! It is the inaugural Idiopathic Hypersomnia Day. IH Day is devoted to informing and acknowledging idiopathic hypersomnia on a global scale. We hope you will join us in celebrating this important day.
The cause may be unknown, but our sleepiness is real.
IH Awareness Week retweeted
Having a rare neurological sleep disorder like #IdiopathicHypersomnia usually means going through life never meeting another person you can relate to or who understands what life is like for you. This can be very isolating and lonely. hypersomnolenceaustralia.org…
#ThisIsIH
