wheelchair user with MND trying to make a difference
england
Joined September 2012
- Tweets3.7K
- Following186
- Followers346
- Likes773
.@MattHancock Please add motor neurone disease #MND to the list of extremely vulnerable persons urgently. All people with #MND are at high risk from the #coronavirus and must be protected. #COVID19
The people have spoken. Never have so many voted through gritted teeth to get their voice heard! What a choice we had!!
Government: End reassessments for those with irreversible disabilities or progressive conditions - Sign the Petition! chng.it/b5TnXx7P via @UKChange
I've just voted for 'Scrap 6 Months - Jack and Rose's Story' in The #CharityFilmAwards @mndassoc charityfilmawards.com/id/164… via @CharityFilm_
Jean Waters retweeted
(CG) Wow indeed! Looks like you're both having a lot of fun! Good luck with the ongoing attempt and keep collecting those amazing evidence photos! It's a brilliant cause, and I'd be honoured to include you in the next available edition of the GWR book.
Jean Waters retweeted
#MondayMotivation thank you to all the 250 volunteers who came to our 40th anniversary event at @BoughtonHouse last month - you look brilliant!!! 👀 ⬇️
Jean Waters retweeted
Please RT to raise awareness of the disgraceful way @DWP treat people living with #MND @Tanni_GT @JeanWaters6 @theJeremyVine @CharlotteHawkns @dignityindying @cassie_eastham @JennieGenSec @MNDPatients – at Saint Helens, England
@AmberRuddHR please listen to @MNDPatients. Maybe a delegation of @MNDPatients could visit you in #Parliament to discuss #MND and this cruel, inhuman way the @DWP treat people living with #MND @BigRonStevenson @NSoames @StephenTwigg
I've #justdonated to split between MNDA Gloucestershire Branch / Pain in the ALS, Tewkesbury Refugee Support Group & St. Richard's Hospice. Donate on @justgiving and help raise £3000 justgiving.com/crowdfunding/…
On GWR HS train to London. WCS @ extreme ends whether 1st or 2nd class. Ramps are in middle of stations as are staff & some station platforms shorter than train so how do you get on & off? Where was common sense when they fitted out these modern trains?
Jean Waters retweeted
Why the hell is this being presented as good news? PAY HIM. You'd pay anyone else doing that job. @DurhamPolice bbc.co.uk/news/av/uk-england…
So fed up with #Brexit. I may have voted remain but I think if we are going let's just do it and settle down to a new era. As it stands it is killing us all piece by piece and further delay is torture!
Petition: Make 'netting' hedgerows to prevent birds from nesting a criminal offence. petition.parliament.uk/petit…
I added a video to a @YouTube playlist youtu.be/NN36Ou9Ho8w?a Creating a Microsoft Publisher document with bleeds
I added a video to a @YouTube playlist youtu.be/yrQeebO1kn8?a MS Publisher Preparing files for printing
Making a bespoke LED house shadow box using card & die cuts: youtu.be/5rofG_5b3FY?a via @YouTube
Jean Waters retweeted
This is disgusting!
Feel so sorry for Lorraine!
Bad enough that she has succumbed to this terrible disease but having to suffer all this stress as well!
There's still so much ignorance amongst professionals about the rapid progression of mnd!
Lorraine says: “I don’t need stress in my life because it can escalate my #MND and I have other stuff I could be dealing with...."
@impartialrep asked the @CommunitiesNI to respond to issues raised. They had not responded by the time they went to press.
impartialreporter.com/news/1…
Jean Waters retweeted
We are extremely proud of the @mndassoc Director of Research Development, Dr Brian Dickie, to win the @ALSMNDAlliance Humanitarian Award 2018 for his relentless commitment to MND research. #alssymp
Jean Waters retweeted
The most enormous THANK YOU for all the support I’ve been sent. Your words have truly moved me. Forgive me if I don’t reply to them all but I read and absorbed every one.
Jean Waters retweeted
Wish I was on it. Booked assistance. Person taking me, after taking me to 4 wrong platforms and a unlit competitors train decide I didn't need the ramp but I should try to get in without wheelchair and ramp. One step, one crash, some crawling later and he conceeded he was wrong!