Jessica Y. Allen, PhD (@JessicaYAllen) profile picture

Jessica Y. Allen, PhD

@JessicaYAllen

Associate Professor of Psychology, Birmingham-Southern College #Gerontologist #Shortbowelsyndrome caregiver-researcher-advocate

 Alabama, USA
thegutsyperspective.org/
Joined January 2012
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Photo by Jessica Y. Allen, PhD (@JessicaYAllen)Photo by Jessica Y. Allen, PhD (@JessicaYAllen)Photo by Jessica Y. Allen, PhD (@JessicaYAllen)Photo by Jessica Y. Allen, PhD (@JessicaYAllen)
Many of the Birmingham-Southern College students say professors are fundamental in shaping their success, concern and care for others, and staying in AL for contributing to the state. We decided it was time to share our story. al.com/opinion/2023/11/guest… #bsc #youngboozer

Guest Opinion: Birmingham-Southern faculty call on Alabama Legislature to act

We, the faculty of Birmingham-Southern College, are of one voice in our demand that the State Legislature act immediately to right this egregious wrong and to make law with its stated intent to loan...

al.com
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Friends! As part of #ForwardEverDay, following exciting news from BSC Board of Trustees, I am excited to share that the College has chosen to highlight the Embodied Labs VR software subscription as part of its fundraising initiatives. More here: givecampus.com/schools/Birmi…
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Jessica Y. Allen, PhD retweeted
Jennifer Canvasser (@jenncanvasser) profile picture
Jennifer Canvasser@jenncanvasser4 Jan 2023
So excited to see our long-term #NEC outcomes paper up! This project stemmed from the @NECsociety's 2019 Symposium & was a patient-led effort! Thank you to everyone who made this work possible! @epNICURDN @Linseigh @JHarrisonPhD @ravimpatelmd @SusanHintzMD doi.org/10.1016/j.semperi.20…
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Jessica Y. Allen, PhD retweeted
Ira Byock (@IraByock) profile picture
Ira Byock@IraByock14 Dec 2022
We must save hospice. statnews.com/2022/12/14/hosp… Recent article by @AvaKofman has sparked heated discussion w/in hospice & palliative care. Much of it defensive. My MD colleagues seem the exception. General sense among HPC docs is: Enough! Time for clinicians to take back our field.
Hospice care needs saving

Hospice care needs saving

The founder of hospice observed, "How people die remains in the memory of those who live on." That statement now reads as a warning about the hazards of commodified hospice care.

statnews.com
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Looking forward to a fabulous day of presentations on patient-centered research and healthcare! #pcori22 @PCORI
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Such a pleasure meeting @anjalifp and King Cohen at the Horizons School yesterday! What a testament she gave to advocacy and research in disability populations across the lifespan!
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Inspirational Friday! Join our panel on 9/22 in partnership with South Fulton Ministerial Alliance. We will be talking about dementia caregiving and mental health. The link: tinyurl.com/SFMAFacebookLive #atlerdementia #mentalhealth #caregiving #Alz #supportdementia
Image from Alter: Inspiring & Equipping Faith Communities (@AlterDementia)
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#finishelizasrun
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A1: #ShortBowelSyndrome is often seen as a “pediatric” disease. This may mean limited availability for knowledgeable healthcare for adults which can feel scary & overwhelming. Using resources like @NORD and @OleyFoundation and joining online support groups on socials can help
We are so excited to share this community-driven video in recognition of #ShortBowelSyndrome Awareness Month! We are committed to continuing to shed light on the SBS experience and bringing the SBS community together! Full video: bit.ly/3R4dhpD @SwapnaSpeaks
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#shortgutsowhat #sbswarrior #RareDisease #tpnstrong #enteralnutrition #ParenteralNutrition #centralvenousaccess #sbs #QOL #qualityoflifematters #qualityoflife #ResearchMatters #ptexperience #careaboutrare #smallintestine #smallintestinetransplant #intestinaltransplant
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#wellbeing #communityengagement #data #patientexperience #tubielife #tubie #tubefeeding #ostomy #ostomylife #AskPatients #askfamilies #chronicillness #invisibleillness #chronicpain #rarediseases #rarediseaseawareness #rarediseasewarrior #rarediseaseadvocate
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Jessica Y. Allen, PhD retweeted
Swapna Kakani, MPH (@SwapnaSpeaks) profile picture
Swapna Kakani, MPH@SwapnaSpeaks31 Aug 2022
A6: Can we have child life & music therapy for adults please! There is power in doing crafts with your hands when in a hospital bed that is if your hands are not full of PIVs #ShortBowelSyndrome
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A7: It can be mentally taxing to have frequent medical visits/hospitalizations.If you are a patient or caregiver with access to medical leave (FMLA) or leave of absence, take advantage of those if you are able to do so. #ShortBowelSyndrome
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A7: If you are seen in multiple clinics, ask if a social worker or clinic scheduler can work with you to make appointments on the same day, especially if you are traveling from out-of-town. Consider having a “go bag” with you #ShortBowelSyndrome
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A7: For your own quality-of-life, it’s continue plans and goals, but hold them loosely. Consider explaining to partners, co-workers and friends that your schedule may change suddenly ahead of an event so that you aren’t worried about who will step in. #ShortBowelSyndrome
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A6: Regularly assess wellbeing & offer solutions. Sometimes we want a visit from Childlife or to step outside for a few minutes, but don’t know how to ask. If you (clinicians) would want it for yourself, we patients and caregivers probably do, too. #shortbowelsyndrome
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A6: Patients and staff should also keep in mind that the psychological wellbeing and psychosocial challenges during hospital stays may vary not only during the course of admission, but from one admission to the next.#ShortBowelSyndrome
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A6: Hospital staff should keep in mind that patients often know own needs extremely well. Engaging in active listening and response goes a long way. #ShortBowelSyndrome
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A5: @OleyFoundation has a number of practical and coping articles oley.org/page/coping. For example, Tiffany Taft, PsyD provides 6 practical coping ideas for individuals living on HPEN: oley.org/page/Coping_with_HP…. #ShortBowelSyndrome
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