I just entered @AutoTrader_UK’s monthly️ #ElectricCarGiveaway & you can too! This month’s prize is a Citroën Ami ! It’s free to enter & you have until 30th June. All information (including Ts&Cs) can be found here: bit.ly/3xDYOHy
Julie von Ziegenweid retweeted
Newly launched guide from @GenomicsEngland on how to talk about research participants. Potentially v.significant resource for us given the > 200k volunteers that make up the BioResource.
PDF link available here: bit.ly/3OZy652
Delighted to be launching this today - our advice for researchers, from patients and research participants, about how to talk about people with rare conditions and cancer. Hard copies here at #GERS2022 , PDF version available online @GenomicsEngland
Julie von Ziegenweid retweeted
@Cambridge_Fest is live - check out our new video! We're not clear of the pandemic yet but progress so far is via cutting edge research, incl. here in #Cambridge by the @GuptaR_lab, & made possible by volunteers like Robert.📽️explains the process. Enjoy!
bit.ly/BioResourceCamFest
Julie von Ziegenweid retweeted
Commenting on the results of the EU Member States vote on UK adequacy, @LaylaMcCay director of policy, says that health leaders will be "relieved that member states have voted to approve the adequacy decision on the UK data protection regime."
nhsconfed.org/news/health-le…
Julie von Ziegenweid retweeted
🎉Huge achievement in a little over 16 months
Nov 2019: 12 datasets
March 2021: 600 datasets!!
- Harmonised Metadata and structural metadata
- Metadata Quality and Data Utility Framework
- Harmonised Data Access Request Process
And we are just getting started!! --> Federation
Today our 600th dataset was added to the #HealthDataGateway!
The Gateway provides a common entry point to discover and request access to UK Health datasets.
The possibilities for discovery are endless and this is just the beginning bit.ly/3qXMyht
Julie von Ziegenweid retweeted
Analysis of COVID-19 clinical trials @hp_ontology Nice paper with (among many other things) an analysis of HPO-phenotypes in COVID Clinical Trials data
journals.plos.org/plosone/ar…
Julie von Ziegenweid retweeted
#OHDSI, #openEHR and #FHIR are three well-established health data standards, but which serves what purpose? This article might give you some ideas: ow.ly/zaGk50A4Yvv #opensourcesoftware #RWE #healthdata
Julie von Ziegenweid retweeted
Monarch is co-hosting the Innovation across the Phenotypic Translational Divide Webinar - Part 2 webinar on Wednesday from 12-3pm PT: monarch-initiative.github.io…. DM for details.
Julie von Ziegenweid retweeted
Please LIKE and RETWEET if you support decision by #WorldRugby to keep women’s #rugby for #female athletes!
🌹
I have reason to believe TRA lobbyists are currently attacking head on.
⚔️
So let’s make sure to say #ThankYou to @WorldRugby @worldrugbymedia in every way!
🙏🏼
#safety
Julie von Ziegenweid retweeted
If you need to find a @Cambridge_Uni Data Champion to help with your #ResearchDataManagement needs look at data.cam.ac.uk/data-champion…. It has new search filters to help you easily find someone who can support your specific needs. #datachampcam
Julie von Ziegenweid retweeted
Did you know that we're in #LoveDataWeek? Without good data, we can't do good science! There's lots of support out there to help you like the @CamOpenData Team, the @CambPsych Library, the @CamPlantSciLib and our very own research support specialist @senorcthulhu! 🤖🧑💼🛰️🖥️
Julie von Ziegenweid retweeted
Happy that our Phenopackets data-sharing standards is one of those just approved by @GA4GH!
GA4GH Approves Five Data-Sharing Standards, Scientists reveal novel oncogenic driver gene in human gastrointestinal stromal tumors, and more Genomics and Health News for October 21 - 28, 2019 - mailchi.mp/ga4gh.org/ga4gh-n…
Julie von Ziegenweid retweeted
Great 'toolkit' on how to build a community of Data Champions.
Always nice to hear that @Cambridge_Uni 's Data Champions Programme has been a source of inspiration for building such an amazing community of Data Champions @tudelft #datachampcam bit.ly/2o9CxT1
Julie von Ziegenweid retweeted
Where does #OHDSI fit in the wider #healthinformatics ecosystem? In this blog we compare OHDSI/OMOP to #OpenEHR and #FHIR as each of these platforms operates in its own domain and serves different use cases bit.ly/2nuzjZX @OHDSI #OMOP #CDM #healthdata #rwd #rwe #EHR
Julie von Ziegenweid retweeted
📎 The slides and recording of the @i2b2tranSMART Platform User Training on Glowing Bear (@glowingbear_app) is now accessible at: bit.ly/2Jhy3mB (Record), bit.ly/2Jhy4XH (Slides) 🙂
#datawarehouse #datawarehousing #biobanks #datainfrastructre #cohortselection
Julie von Ziegenweid retweeted
We are delighted to share that @Cambridge_Uni is the FIRST UK university to publish a position statement on Open Research. Our Vice-Chancellor has demonstrated his support for sharing research by joining Stephen Hawking in making his PhD #openaccess bit.ly/2UgAFTC
Julie von Ziegenweid retweeted
Great work! .@ontowonka @drseb_ @pnrobins @n_vasilevsky @chrismungall #Semantic Integration of Clinical Laboratory Tests from Electronic Health Records for Deep Phenotyping and Biomarker Discovery biorxiv.org/content/early/20…
Julie von Ziegenweid retweeted
Very exciting to see this out- it has been a monumental effort of a very large team! Whole-genome sequencing of >13k rare disease patients in a national healthcare system biorxiv.org/content/early/20…
Julie von Ziegenweid retweeted
🎄🎅🎁#UTCN12DaysofChristmas Day 5 - look at our lovely festive dragon! Remember to RT this tweet for a chance to win a UTCN goodie bag #utcn 🎁🎅🎄
