Dedicated to involving patients as partners in healthcare. Views are my own.
Australia
Joined March 2011
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Prof. Karen Woolley retweeted
Patient authors are increasingly becoming part of medical communication.
Medical writers help guide the process by supporting clarity, preserving voice, and aligning with publication standards.
👉 Read more here: hubs.ly/Q04hkHcQ0
#MedicalWriter
Prof. Karen Woolley retweeted
“When we look back at this time, I hope we look back and think about how bizarre it was that patient partners weren’t part of all research.” - Knoll Larkin #PxP25
ALT “When we look back at this time, I hope we look back and think about how bizarre it was that patient partners weren’t part of all research.” - Knoll Larkin #PxP25
Prof. Karen Woolley retweeted
“We presume that patients need training, and I think we should not assume that researchers know how to engage patients.” - Kwanele Asante #PxP25
ALT “We presume that patients need training, and I think we should not assume that researchers know how to engage patients.” - Kwanele Asante #PxP25
Prof. Karen Woolley retweeted
So excited about this conference in a few months- here's hoping all of you out there who are interested in learning more about #PatientEngagement in #Research will join us. The program is entirely designed by #PatientPartners! #ConsumerInvolvement #PPI
📢 Save the date! PxP (For Patients, By Patients) is coming back September 9-12, 2025! 🎉
A free, virtual event focused on #PatientEngagement — created by patients, for patients.
💌Stay in the loop: sign up for the PxP newsletter (link in bio).
#PxP25 #ForPatientsByPatients
ALT PxP For Patients, By Patience. Virtual Conference. September 9-12 2025.
Prof. Karen Woolley retweeted
NEW PAPER: Updated CONSORT-2025 for reporting randomised trials is now available in the @bmj_latest @JAMA_current @TheLancet @NatureMedicine @PLOSMedicine
—> bmj.com/content/389/bmj-2024…
#OpenScience #OpenAccess
#transparency #medX #statsX #epiX
Prof. Karen Woolley retweeted
I'm pleased to share that I'm now a Co-Chair of the Cochrane Patient and Public Involvement Network Executive.
Cochrane will no longer use the term ‘consumer’ to represent patients and the public.
Learn more here:
cochrane.org/news/cochrane-e…
#public #involvement #research #evidence
Prof. Karen Woolley retweeted
Patients as Authors: The Medical Writer’s Role
hubs.ly/Q03c-LQL0
Prof. Karen Woolley retweeted
ISMPP U Webinar on Wednesday, March 26: Integrating Patient Perspectives in Publications Planning: The What, How and Why
Approved for 1.0 CMPP credit. Register today: buff.ly/bbqQAmQ
#MedPubs #MedComms #BioTech #ISMPPU
ALT ISMPP U Webinar on Wednesday, March 26: Integrating Patient Perspectives in Publications Planning: The What, How and Why
Prof. Karen Woolley retweeted
I get that some people want to only/prefer to share the positive stories about #PatientEngagement - I think that’s a mistake. This work is messy and sharing the good only doesn’t help anyone. It also discounts people who haven’t had great experiences but who're still holding hope
Prof. Karen Woolley retweeted
Unless we share the not-so-good experiences things won't move forward, evolve and improve... Totally agree with you!
Prof. Karen Woolley retweeted
A couple of resources to help you out:
➡️ on the budget side (scroll down to #PatientEngagement, Budgeting Tool) - umanitoba.ca/centre-for-heal…
➡️ on the course side - this was fully conceived by and created by patient partners - cihr-irsc.gc.ca/e/27297.html…
Pls share others you use! /end
Prof. Karen Woolley retweeted
Also, please think about and practice #PatientEngagement like any other research method that's part of your work: learn about it and hone your skills. Learning a new method takes time - there are resources to help you out... /2
Prof. Karen Woolley retweeted
To all the research teams engaging #PatientPartners: pls budget for #PatientEngagement. There's already a power imbalance when patients are invited to a team - not supporting them with a budget makes that worse (whether or not they want compensation for their work) /1
Prof. Karen Woolley retweeted
How can we increase awareness on the importance of meaningfully engaging patient partners in research?
Trudy Flynn & Tianna Magel share learnings on co-creating a patient engagement workshop with patient partners.
🔗 Read now: pxphub.org/patient-engagemen…
#PxP #PatientEngagement
ALT PxP Logo. “Everyone seems to assume that patient partner engagement is common knowledge, but the reality is that many are still unaware of its importance and impact in healthcare. We need to break this assumption and foster a more inclusive understanding with workshops like this one.” Trudy Flynn.
Prof. Karen Woolley retweeted
CALL TO PATIENT GROUPS
PatientView’s Corporate Reputation of Pharma 2024/5 survey is open.
This unique survey offers vital insights into how well the pharma industry meets patient needs.
It’s available in 22 languages—from English to Ukrainian.
Prof. Karen Woolley retweeted
4 Weeks Until Abstract Submission Deadline!
Abstracts are due January 31
To submit your work and learn more, visit peerreviewcongress.org
#peerreview #science #scientificpublication
#researchethics #AIinMedicine
@JAMANetwork @bmj_latest @METRICStanford
@NEJM @TheLancet
Prof. Karen Woolley retweeted
Newspapers were designed like walls of text (like scientific articles and posters), but then evolved a central hero area and clearer visual hierarchy.
(from Coursera on Typography design)
Prof. Karen Woolley retweeted
From January 2025 patients and members of the public who complete a review for The BMJ will be offered £50 or a 12 month online subscription to one of the BMJ journals as a thank you for their service, @emmajdoble @KamranAbbasi @SaraSchroter @AmyPricePhD
bmj.com/content/387/bmj.q258…
Prof. Karen Woolley retweeted
PCORI developed 6 foundational expectations—building blocks for meaningful, effective, and sustainable engagement w/ patients, communities & other partners in research.
Researchers & partners should address each of these expectations when:
✔️ Applying for PCORI funding
✔️ Developing a project plan and engagement plan for awarded projects
✔️ Reflecting on engagement during a project to improve and strengthen engagement over time
Learn more: pcori.me/3XoNiO3
Prof. Karen Woolley retweeted
Patient experts have welcomed the new guide:
"It is clear, detailed and will hopefully encourage more patients to get involved." - @TrishnaBharadia
"The guidance provides a wealth of useful information for both new and experienced patient authors" - @SimonRStones