phoenix's SSLCL

Supporting #Sportsrelief2014

Phoenix has a week of no hospital appointment whoop whoop

Phoenix is ok just been released from RLH the symtom are because his airways are changing hoping for the better only time will tell.

Phoenix has bad symtoms after having the cleft stitch now bk up RLH tomorrow as been needing a nebulizer to help him breathe this wk.

Phoenix had a cleft stitch now on course of steroids to help him get better bk to hospital monday to see pedatrician then a review in 3month

Not posted in awhile my little dude started crawling xmas day well army shuffling but he getting places fast now lol

My littleman had hos pre admission today at RLH and back in for MLB and possible cleft stitch on 17th jan wishing all goes well love u son

Poxy weather

m.facebook.com/PSSLCL KEEP FOLLOWING AND SHARING

Took kids to see santa today put a big smile on there faces #Christmas

Day 18 - Angling Times Advent Calendar - win Fox Rage Jig Silk Braid woobox.com/vbyozb/56j1vy

Out of recovery at GOSH

Just arrived at GOSH

Were @GreatOrmondSt and seen so many docs already seeing how our little man is, truley an amazing hospital. About to go and have his MLB now

Off to GOSH tomorrow as little man has to stay in over night. I know he in the best possible hands love u little man

So happy my little boy been accepted @GreatOrmondSt now lets aim to get him better and great news its an american consultant who knows.

Can an american doc get in touch with me who deals in field area of cleft stiches and widening airways. Uk have no idea and we need help.

An american doc needs to look @ son medical condition as they no more about airways stenosis docs in UK are useless. m.facebook.com/PSSLCL

Sick twins' mum says thanks for support / Sunday World: sundayworld.com/top-stories/…