@TheAtaxian, Speaker, Director of @rideATAXIA for @CureFA_org. Author of #ShiftingIntoHighGear. Co-host @2DDPodcast. #CureFA #RareDisease
Pennsylvania
Joined September 2009
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- Following2.5K
- Followers2.3K
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Kyle Bryant retweeted
The third graders at Roberts were inspired by @KyleABryant to find a cure for FA, a rare progressive disease. He taught us we can overcome any obstacle and to never give up! #fara #curefa #umasdistheplacetobe
On the latest Two Disabled Dudes episode, @livinlavidalopo talks about her love for Scandinavian murder shows. Sometimes you gotta lean-in to a bad day. #RareDiseaseTruth bit.ly/3I1CYno
Kyle Bryant retweeted
Since the technology for bespoke genetic drugs debuted, about two dozen patients have received the infusions — costing as much as $2 million per patient. But hundreds of millions of others live with rare genetic diseases and have no treatment options. nyti.ms/3W9zFR1
Kyle Bryant retweeted
In 2017, @HorizonNews invited 2DD to do a LIVE show at their Chicago office. This was our first recording in front of a live audience! Horizon took a chance on 2 rookies to talk about Rare Diseases. Listen to that episode & count @KyleABryant’s “um’s” twodisableddudes.com/020-liv…
Kyle Bryant retweeted
Ride Wild! @KyleABryant recently assembled a six-person team to tackle a 750-mile bike packing adventure through the backwoods of Montana and Idaho. Read about their 23-day journey from Eureka, Montana, to Ketchum, Idaho at kyleabryant.com.
Kyle Bryant retweeted
“How do you accelerate progress against #RareDisease?
At @ChanZuckerberg we help bolster the power of patients to build strong, inclusive communities, engage researchers in their disease areas & partner with industry to create treatments + cures.” -@TaniaSimoncelli #AspenIdeas
Kyle Bryant retweeted
“There comes a point where we need to stop just pulling people out of the river. We need to go upstream and find out why they are falling in.” Desmond Tutu
Solve problems at its source.
#RareDiseaseTruth
For all you gear nerds out there. kyleabryant.com/f/ride-wild-…
This was a fun recording! Thanks for inviting me! I love how it turned out. Nice work.
*NEW POD*
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Today's #BloodStreamPod features a #raredisease roundtable on #patientcentricity w/ fellow podcasters @OnceUponAGene, @bobigelow, and @KyleABryant!
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Listen & subscribe to BloodStream: podcasts.apple.com/us/podcas…
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Thank you Effie, Kyle, and Sean for joining!
This group is making it happen!
Thanks to everyone who joined us for the 2022 #RareAsOne annual meeting! It was a great opportunity to gather and hear from our grantees, researchers and clinicians about their incredible work in finding treatments + cures for #RareDisease
Kyle Bryant retweeted
JUST ANNOUNCED
#KavliPrize2022 #Neuroscience honors Jean-Louis Mandel, Harry Orr, Christopher Walsh and Huda Zoghbi for pioneering the discovery of genes underlying a range of serious brain disorders and elucidating the pathways by which these genes work.
kavliprize.org/prizes/neuros…
Kyle Bryant retweeted
1/4: I’m just gonna say it because our nonprofit @KIF1A has received proposals from several early startups (with big payrolled staffs) to repurpose publicly accessible compound libraries. The proposals for each ranged btw $250K-$1.5M. With the word “proprietary” all over them.
Kyle Bryant retweeted
My business cards just went to an entirely new level. Next time you see me, ask me for one. : )
#blockqueens @block_queens
Kyle Bryant retweeted
My @block_queens Zora! Such an amazing NFT project by @jeremycowart with the coolest interactive NFTs out there! You can interact with mine in fullscreen at:
cowart.mypinata.cloud/ipfs/Q…