The unfiltered reality of #LongCovid🎙️Real voices, real lives! Patients, families & carers, experts sharing their journey & opinions. #pwLC
England, United Kingdom
Joined March 2026
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I’ve started a campaign calling on the UK Prime Minister @andyburnham and his Government ~ to listen to people living with #Longcovid and take meaningful action
This campaign is UK-focused, but Long COVID is affecting people globally
c.org/qCSSyY5WMv
Cont 👇
📢 UPDATE: Today I’ve written to the APPG on Long COVID.
I’ve asked them to bring my independent #petition and open letter to the UK Prime Minister to the attention of decision-makers, and to ensure our voices are heard.
#LongCOVID needs a properly funded national strategy. 💛
Long COVID needs a properly funded national strategy. 💛
✍️ Please sign and share the petition: change.org/p/develop-and-fun…
7 patients died of #COVID because care home staff did not mask, or test for covid.
The care home manager didn’t care to protect staff or patients and basically encouraged them to work whilst infectious with covid.
devonlive.com/news/devon-new…
Long Covid Perspectives retweeted
7 patients all died in 2021 after contracting coronavirus at the care home
During the inquest, it was alleged some staff did not wear face masks or PPE, that others carried on working after testing positive for the virus, and that Miss Burchell care manager ignored test results
@ByDonkeys can you share our community petition and open letter. The community would really appreciate your support. Thank you
If we want any kind of justice and accountability WE THE PEOPLE MUST TAKE ACTION.
Step 1: strip @MattHancock of his privy council duties
SIGN ✍️ & SHARE THIS PETITION 👇 #CovidInquiry #COVID19 #longcovid
c.org/F5bBzRzMrH
“I lost my dad and sister to COVID - I doubt care inquiry will bring change"
The #CovidInquiry says government failures allowed the virus to spread.
Over 43,000 care home deaths involved #COVID from March 2020 to July 2022.
One woman lost her father and sister 5 days apart💔
Long Covid Perspectives retweeted
BREAKING: Covid inquiry chair, Baroness Heather Hallett, says that action to protect care homes came too late causing it to "spread like wildfire".
Live updates: trib.al/rq3oWgR
📺 Sky 501
Long Covid Perspectives retweeted
A Swiss court has ruled that Long Covid in a nurse IS an occupational disease.
None of the four UK nations have done this yet.
shh-uk.org/swiss-court-recog…
#LongCovid #LongCovidAwareness #HealthcareWorkers #NHS #MECFS
Free editable Letter template to your Doctor re: Long Covid and co morbidities
docs.google.com/document/d/1…?
A new study on virus-specific T cell activation in Long COVID (LC) is up on bioRxiv & polybio.rf
They identified a subset of people with #longcovid with persistently elevated activation of CD8 T cells targeting spike and/or EBV lytic antigens, consistent with viral persistence
Breaking: PolyBio-Supported Preprint Finds Persistently Activated Virus-Specific T cells in a Subset of People with Long COVID
👉🏻Virus-specific immune cells show signs of ongoing stimulation and impaired function in a subset of people with Long COVID, offering a potential way to guide targeted clinical trials
1/
See research here:
biorxiv.org/content/10.64898…
#reactivatedviruses #covid19 #research #researchpaper
New Study 👇
Our study on virus-specific T cell activation in Long COVID (LC) is up on bioRxiv! We identify a subset of people with LC with persistently elevated activation of CD8 T cells targeting spike and/or EBV lytic antigens, consistent with viral persistence.
biorxiv.org/content/10.64898…
Long Covid Perspectives retweeted
Our study on virus-specific T cell activation in Long COVID (LC) is up on bioRxiv! We identify a subset of people with LC with persistently elevated activation of CD8 T cells targeting spike and/or EBV lytic antigens, consistent with viral persistence.
biorxiv.org/content/10.64898…
a disorder in which the brain’s deep structures rapidly swell and die. The analysis confirms that SARS-CoV-2 account for nearly 90 % of reported triggers, and it quantifies a mortality burden that has persisted despite intensive care: roughly 4 in 10 affected kids do NOT survive
ARTICLE: bioengineer.org/flu-and-covi…
Feline Coronavirus literature spoken about in the space 👇
en.wikipedia.org/wiki/Feline…
MMP-9 Blood Brain Barrier Biomarker test (Dara references too in the convo) 👇
pmc.ncbi.nlm.nih.gov/article…
