Pacientes LMC (@LMC_PACIENTES) header
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Grupo para enfermos de Leucemia Mieloide Crónica (LMC) donde compartir experiencias y necesidades siempre con respeto. CML Advocates Network member.

Barcelona, España
Joined September 2016
Photo by Pacientes LMC (@LMC_PACIENTES)Photo by Pacientes LMC (@LMC_PACIENTES)Photo by Pacientes LMC (@LMC_PACIENTES)Photo by Pacientes LMC (@LMC_PACIENTES)Photo by Pacientes LMC (@LMC_PACIENTES)Photo by Pacientes LMC (@LMC_PACIENTES)Photo by Pacientes LMC (@LMC_PACIENTES)Photo by Pacientes LMC (@LMC_PACIENTES)Photo by Pacientes LMC (@LMC_PACIENTES)Photo by Pacientes LMC (@LMC_PACIENTES)
Pacientes LMC retweeted
🌍 CML Horizons 2026 is almost here! We are looking forward to welcoming CML patient advocates, healthcare professionals, experts and partners from around the world to Tbilisi, Georgia, on 13–15 November 2026! Over three days, we will come together to exchange knowledge, share experiences and explore important topics shaping the future of CML care and advocacy — from access to diagnostics and treatment to emerging therapies, quality of life, shared decision-making and the sustainability of patient organisations. Most importantly, CML Horizons is about connecting our global community, learning from one another and strengthening the patient voice. We look forward to inspiring discussions, meaningful collaborations and another memorable CML Horizons! See you soon in Tbilisi! 🇬🇪 #CMLHorizons2026 #CMLAdvocatesNetwork #PatientAdvocacy #CML #ChronicMyeloidLeukemia
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Pacientes LMC retweeted
💙 Behind every person living with cancer, there is often someone providing care, strength and support. But caregivers need support too! The National Comprehensive Cancer Network (NCCN) has launched a new FREE resource: NCCN Guidelines for Patients: Caregiving for People with Cancer. 📖 This practical guide offers valuable information and advice to help caregivers navigate the many challenges of supporting a loved one with cancer, including: 💙 Emotional support and well-being 💰 Financial and legal concerns 🏠 Everyday responsibilities and household tasks 🩺 Medical care and treatment management 🔗 Explore and share this free resource: nccn.org/patientresources/pa… Because those who care for others deserve care and support too. 💙 #CMLAdvocatesNetwork #Caregivers #CancerCare #PatientAdvocacy #NCCN #CaregiverSupport
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Pacientes LMC retweeted
🔬💙 Honouring a scientific discovery that transformed the lives of people living with CML! We are delighted to recognise Dr. Tony Hunter, who has been awarded the 2026 Albany Prize in Medicine and Biomedical Research for his groundbreaking contributions to cancer research. In 1979, Dr. Hunter made a remarkable discovery about how proteins called tyrosine kinases help control cell growth. His work laid the scientific foundation for the development of tyrosine kinase inhibitors (TKIs) — a breakthrough that would change cancer treatment forever. 💊 For people living with chronic myeloid leukaemia (CML), this discovery has a particularly special meaning. It helped pave the way for the development of imatinib, the first TKI approved for CML in 2001, transforming treatment and enabling many patients to live longer, healthier lives. What began as a discovery in a laboratory became a turning point for an entire patient community. 👏 At CML Advocates Network, we celebrate Dr. Hunter's extraordinary contribution to science and recognise the researchers whose dedication continues to bring hope and progress to people living with CML worldwide. Congratulations, Dr. Hunter, and thank you for helping change the future of CML treatment! 💙 🔗 Read more: eurekalert.org/news-releases… #CMLAdvocatesNetwork #CML #TonyHunter #CancerResearch #TKI #MedicalInnovation #PatientAdvocacy
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3 weeks since the John Goldman Fun Run in Gothenburg, and we still can’t get over it! Around 50 runners and walkers came together for a fantastic morning, raising US$3,333 💜 A heartfelt thank you to François-Xavier Mahon for capturing the spirit of the Fun Run in this video! 📹
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Tens dubtes laborals després d’un diagnòstic de #càncer? A l’#ICO Badalona t’oferim un espai per resoldre consultes sobre baixes laborals, reincorporació a la feina, drets laborals i altres situacions durant el procés oncològic. 📍 Presencial i online ico.gencat.cat/ca/detall/act…
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Pacientes LMC retweeted
Congratulations to Prof. Suttorp, this year’s winner of the John Goldman Prize for lifetime contributions to CML. His work on pediatric CML has helped many children with CML all over the world. @icmlf #ESH2026 @ONealCancerUAB @uabmedicine @ASH_hematology @BloodPortfolio
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Heading to New Orleans for ASH? Join us the day before! 🔬 iCMLf Forum 2026: Promise to Practice 📅 Friday 11th December 2026, 12-2:30pm CT 📍 SpringHill Suites New Orleans Warehouse District, New Orleans Register now: buff.ly/kreBsuq
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Pacientes LMC retweeted
CLL Horizons 2026 | Barcelona 🧡 Powerful panel today on Global CLL Science Today: What Innovation Looks Like in High-, Middle-, and Low-Resource Settings. Experts and advocates from around the world — including voices from Africa, Asia, Europe, and the Middle East — came together to discuss one critical reality: the science is advancing rapidly, but access is still not equal. Innovation only matters if it reaches every patient, regardless of where they live. Strength in Science. Power in Community. This is what real progress looks like. #CLLHZ26 #CLLHorizons2026 #CLLAN #CLL #AccessToCare #PatientAdvocacy #HealthEquity @HENZOKENYA @MwakichakoBecky – at Nairobi, Kenya
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Pacientes LMC retweeted
Es #DiaMundialContraelDolor #WorldDayAgainstPain❤️ Estamos junto a las personas, cuya meta diaria, muchas veces, consiste en sentir un #dolor llevadero🙄 #Investigación, para evitar tanto sufrimiento. Gr. @leo_veritas por tu actitud🤗 Nuestro logo hoy +🟥
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Great session at #MPNHZ26 on Best Practices and @Friends_Of_Max represented by Trustee Anil Nagpal talking about being the crucial bridge between patients and physicians
🤝 Stronger connections, better understanding! Anil Nagpal 🇮🇳 from Friends of Max discusses bridging the gap between physicians and patients. How can advocates help strengthen communication and build more collaborative relationships? #MPNHZ26 #PatientVoice
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🔬 Per saber com podem protegir-nos del càncer i per què, primer necessitem investigar. Marcos Malumbres i José A. Seoane, investigadors del VHIO que lideren projectes estretament relacionats amb la prevenció, van compartir amb la ciutadania la seva visió en las #VHIOTalks26. ➡️ linke.to/VHIOTalksPrevencion… #VHIODivulga
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👏Enhorabona a la Dra.@QueraltSalas, guanyadora d’una beca #CaixaImpulse amb un projecte que estudia com l’exercici digital abans i després del trasplantament pot millorar la recuperació dels pacients. 🏃‍♀️ @hospitalclinic @CaixaResearch
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Day 2 at CLL Horizons 2026: turning knowledge into action! 🤝 Exploring Immune chalenges in CLL,biology of hope, advocacy workshops, and well-being. 🧡 #CLLHorizons2026 #CLL #CLLCommunity#PatientAdvocacy #StrengthInSciencePowerInCommunity
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🔍 Highlights from the ESH-iCMLf 28th Annual John Goldman Conference on Chronic myeloid leukemia: Biology and Therapy - Scientific Session: Clinical trials. 📄 Read the full session summary and key takeaways: buff.ly/425f2Gg
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Pacientes LMC retweeted
🌐 Mañana, 17 de octubre, es el Día Mundial contra el Dolor. Desde la #SEHH recordamos que el dolor también importa en Hematología. 🩸 Puede estar relacionado con la propia enfermedad o con sus tratamientos, y persistir incluso después de finalizarlos. 👉 Visibilizarlo es el primer paso para reconocerlo y atenderlo. #DíaMundialContraElDolor #Hematología @IASPpain @Sedolor
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Missed the iCMLf Regional Discussion Group for South Asia on 9 September? Watch the recordings and revisit key takeaways: ▶️ Managing Resistance to Treatment: buff.ly/Uo6JeuU ▶️ Managing serious adverse events in chronic phase CML patients: buff.ly/ZIELrfm
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Join us online on October 19th for an expert webinar, featuring key insights from the ESH-iCMLf 28th Annual John Goldman Conference on Chronic Myeloid Leukemia: Biology and Therapy. 🌍 Online 🔗 Check out the program and register now: buff.ly/DvToOFs
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Pacientes LMC retweeted
Happy #NationalHispanicHeritageMonth from ASH! 🎉 ASH celebrates the remarkable contributions of Hispanic and Latino/a/x hematologists, researchers, and clinicians advancing research and care for people with blood disorders. 🩸 #Hematology
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