@LPseattle

Founder Lobular Breast Cancer Alliance. Writer. Former political hack. Living w/ #lobular #breastcancer & #ovariancancer. Cancer Research Advocate. Tweets mine

 Seattle, WA USA
leighpate.com
Joined December 2009
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  • Followers735
93Media
Dear #cancer researchers ... How are you engaging w/ patients & patient advocates at your institutions? Are they a last minute box to be checked on your grant proposals? Or are they partners in your research? #PatientEngagement #PatientAdvocacyMovesScience 👇👇👇
Tatiana Prowell, MD@tmprowell23 Jun 2022
Everyone who knows even a little #regulatory history knows that patient #advocacy moves science forward. I have endless admiration for @bsw5020 & @sabrevaya.
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Great video @LobularBCA. I have seen #lobular cancers missed on screening mammography be detected on MRI, CEM, MBI and US. Although access may be limited, supplemental screening for #ILC may be key, especially for those with #densebreast tissue. youtu.be/xNoXveXGC2g
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🟡#breastcancer and the #PTEN hamartoma tumor syndrome (PHTS, previously #Cowden): screening with MRI led to the detection of cancer in 7 women/39 enrolled. All early-stage, all ductal (no #lobular). Median FU: 4 years. No benefit of adding mammography. acsjournals.onlinelibrary.wi…

The yield and effectiveness of breast cancer surveillance in women with PTEN Hamartoma Tumor...

In this retrospective cohort study, 65 women with PTEN Hamartoma Tumor Syndrome (PHTS) were included, of which 39 were enrolled in the breast cancer (BC) surveillance program and underwent annual...

acsjournals.onlinelibrary.wiley.com
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👇👇👇👇👇👇👇👇👇👇👇👇👇👇👇👇
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Replying to @sflomos @LPseattle @oesterreichs @LobularBCA
Respect 🙌 and Gratitude 🙏 To #Lobmob Leader @LPseattle from the entire attendance at The International Lobular Breast Cancer Symposium #ILCSymposium
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Since we missed @LPseattle from the #ILCSymposium @oesterreichs read her message and she received a huge huge applause @LobularBCA
KarenVanBaelen@VanBaelenKaren21 Jun 2022
Steffi Oestenreich reading a very touching speach by patient advocate Leigh Pate. It would have been great to meet you here at #ILCSymposium. @oesterreichs @LPseattle
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Val Brunton from @EdinCRC , one of our Scientific Advisor’s talking about the #lobular tumour microenvironment. #ILCSymposium
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Impressive talk about ##ILC immune features, #Ecadherin #Pcadherin switching and #metastatic ILC #heterogeneity #clonal evolution @NatrajanLabICR
Lobular Breast Cancer Alliance@LobularBCA21 Jun 2022
The afternoon session continues at #ILCSymposium with Rachel Natrajan speaking on the heterogeneity of E-cadherin and the immune microenvironment in #lobular #breastcancer. @elbcc @LobularIreland @LobularBCUK
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Following quite a spectacular Patient Advocate led Session this morning we have an even more Spectacular Key Note Speaker #DAY2 Sabine Linn is now speaking 'Toward Precision Medicine for ILC' #ILCSymposium #Utrecht
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New research out on early-stage #lobular #breastcancer. Older women (70+) may not need to have sentinel node biopsy. Thanks @oesterreichs @Adrianvlee et al for making sure #lobularBC is always included in research! #lobmob @LPseattle @LobularBCA
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Closing out today at the #ILCSymposium is LBCA Scientific Advisor Dr. Rachel Jankowitz moderating a session with our three funded #lobular #breastcancer researchers! @elbcc @LobularIreland @LobularBCUK
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Replying to @oesterreichs @elbcc @LobularBCUK @LobularBCA
ELBCC Patient Advocates are eager to be involved with you all and excited to see such changes and breakthroughs with Research around our Disease Area #LivingWithLobular #ILCSymposium Ilcsymposium2022.com
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First class at Summer School: Mammary Gland Development and ILC Histology/Pathology presented by @wntlab and Matthias Christen, MD/PhD #lobular @LobularBCUK @LobularIreland #ILCSymposium #bcsm
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Otto Metzger giving a comprehensive clinical analysis of #Lobular at #ILCSymposium 10% ILC are High Genomic Risk by Mammaprint @Otto_DFCI @LobularIreland @elbcc @sflomos @CANCERPREV1 @IrishCancerSoc @CancerInstIRE @damirvareslija @CancerCentreIre @NiTriona
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Amazing what @elbcc has achieved since it’s inception. So happy to be part of it. So excited about the meeting which is about to start here in #Utrecht #lobular #lobmob @LobularIreland @LobularBCUK @LobularBCA
ELBCC@elbcc19 Jun 2022
The Lobsterpot #CA19138 core group discussing the ongoing AND next steps in #ILC research TOGETHER with our US partners @oesterreichs and @Otto_DFCI . The first feat of arms of the #ILCSYMPOSIUM !ilcsymposium2022.com
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Proud to be in the room @DarranOConnor1 presenting on #Lobular #Breastcancer #ILCSymposium "We need to find new ways to treat women with Lobular Breast Cancer" @PrecisionOncIre @sysbioire @MolOncologyRCSI @CANCERPREV1 @BreastDense @UCD_Conway @ElspethWard2
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Excited to be here in Utrecht at the International #ILCSYMPOSIUM. Looking forward to this 2-day symposium focused on the treatment of #lobular #breastcancer @elbcc @LobularBCA @LobularIreland @LobularBCUK @LobularResearch #bcsm – at Utrecht, The Netherlands
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Steffi Oesterreich @oesterreichs so well known to all of us in the International #Lobmob is now giving the Keynote Address at #ILCSymposium What have we learned about ILC, and does it matter? Subtyping of BC as #ILC.... #Histomorphology #Screening
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Excited to be heading to Utrecht for #ILCSymposium & Summer School "The joint International @elbcc #Lobsterpot & @LobularBCA " and to brainstorm with the amazing #lobular community! @Adrianvlee @oesterreichs @BreastDense @CBrisken @Otto_DFCI ilcsymposium2022.com
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Looking forward to 2 days of sharing, discussion & finally meeting in person at #ILCSymposium delivered by @ELBCC researchers & patient advocates & @LobularBCA in Utrecht: working together to improve outcomes for everyone affected by #lobular #BreastCancer #Lobsterpot
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