Bringing patients, carers, and health and care professionals together to identify and prioritise the unanswered questions they want health research to address.
UK
Joined August 2011
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📢New Top 10
The Digital Health Technology in Trauma and Orthopaedics PSP brought clinicians, patients and carers together to identify uncertainties about digital health across the specialty.
Explore the top research priorities: jla.nihr.ac.uk/priority-sett…
The Lobular Breast Cancer PSP wants to hear from people diagnosed with lobular breast cancer, their supporters/carers, and healthcare professionals.
Share what matters to you and help shape future research priorities: surveymonkey.com/r/Unlocking…
#BreastCancerAwarenessMonth
🗣️Have your say.
Pick the 10 questions you think future research needs to answer to help improve future care and support for children and young people experiencing gender incongruence: southampton.qualtrics.com/jf…
#GenderDiversity #GenderIncongruence
📢Help shape the future of patient care for bone and joint infections in the UK.
If you have lived or professional experience of bone or joint infection, please share the questions about bone and joint infection care that matter most to you: forms.cloud.microsoft/Pages/…
People with lived experience of critical illness, and the clinicians who care for them, are invited to share questions about nutrition care during critical illness and recovery in Australia.
Your questions can help shape future research! Have your say: redcap.helix.monash.edu/surv…
As a professional working with young people experiencing gender incongruence, your views are important.
Pick the 10 questions that you think should guide future research about gender incongruence in young people?
🔗southampton.qualtrics.com/jf…
📢New Top 10
The Developing Child UK PSP has identified its Top 10 research priorities for community-based support for babies’ and young children’s social and emotional development.
Explore the priorities shaped by parents, caregivers and professionals: jla.nihr.ac.uk/priority-sett…
📢 The Equal Breath PSP Top 10 is here!
Shaped by people of Black and mixed Black heritage, families, carers and healthcare professionals, these priorities highlight the questions that matter most in lung health disparities.
Explore the priorities: jla.nihr.ac.uk/priority-sett…
Do you work with young people experiencing gender incongruence? Make a difference by completing this survey.
📝Let us know which questions you think future research needs to answer: southampton.qualtrics.com/jf…
James Lind Alliance retweeted
What matters most to you about perinatal mental health?
Have your say on the Top 10 research priorities #PMHResearchPriorities in the survey with @LindAlliance here: bit.ly/PMHTopTen
#PMHResearchPriorities @NPEU_Oxford
James Lind Alliance retweeted
A key priority from our 'Involvement Matters' initiative with @LindAlliance is to proactively promote & signpost to existing #PPI resources, for both researchers and people who want to get involved in research.
For more on the initiative, please visit: research.hscni.net/ppi-prior…
💭What should women’s heart health research focus on?
Help to shape the direction of future research in women's heart disease. Take part in the survey to choose the 10 questions that matter most to you: forms.cloud.microsoft/pages/…
📣Please share this survey across your networks.
📢Help shape future research.
As a young person who has experienced gender incongruence, your voice matters. Choose the questions you think future research should answer: southampton.qualtrics.com/jf…
📣Please help us get as many voices heard as possible and share this post.
There are a few JLA PSPs that have shared research priorities identified by people with experiences of cancer in childhood, their families, and the healthcare professionals that support them. Their Top 10s can be found here: jla.nihr.ac.uk/top-10-priori…
#ChildhoodCancerAwarenessMonth
James Lind Alliance retweeted
❤️ What should the priorities be for women’s heart health research?
We need your help to identify the unanswered questions that matter most.
Choose up to 10 priorities in our shortlisting survey. You don’t need to have taken part in our first survey.
👥 Open across the UK & Republic of Ireland
⏱️ ~15 mins
📲 Take part: forms.cloud.microsoft/pages/…
Please take part and share ❤️
#WomensHeartHealth #HeartResearch #WomensHealth
This #SickleCellAwarenessMonth, we encourage researchers and funders to use the Sickle Cell Genomics PSP priorities to shape future research.
🌟Identified by people with lived and professional experience, they highlight the questions that matter most: jla.nihr.ac.uk/priority-sett…
Help to identify the Top 10 priorities for research into gender incongruence in young people.
Take the survey to choose the research questions you think are most important: southampton.qualtrics.com/jf…
Have you experienced delirium, or have you cared for someone who has? If so, help to shape the future of delirium research in the UK.
Take part in the survey to choose the questions you consider to be the most important priorities for future research: surveymonkey.com/r/3J2R6C9
A new study has mapped UK childhood cancer research against the 23 priorities identified through the JLA Children’s Cancer PSP.
Some areas that matter to people with lived and/or professional experience are currently overlooked. Find out more: onlinelibrary.wiley.com/doi/…
📢 Help shape the key research priorities in digital health technology for trauma and orthopaedics.
What unanswered questions remain about using digital tech to improve care for bone, joint, muscle and soft-tissue conditions? Share your views: iahs.qualtrics.com/jfe/form/…
