Charlotte's brain tumour journey raising awareness 18.2.97 - 24.2.2016 Diagnosis to death 951 days Charlotte's words in 2014: 'When I was diagnosed I'd just finished Year 11 of school. I was meant to be starting college. Because of my anxiety disorder, I had a fear of using public transport, but I pushed myself to get over it so I could go to college. I felt like it was my chance to get away from everything and move on, but cancer held me back. Having cancer has made me reassess my goals. I was meant to be studying Health and Beauty, but now I want to work with children with cancer. I thought, because I've been through it myself, I could relate and let them know it will be okay. Obviously, my health has suffered. However, in my mind, cancer has done me good. It's given me confidence. Having cancer really changed my perspective: this is one of the worst things you can experience, everything else seems insignificant.  I've had generalised anxiety disorder for most of my life.  I still haven't tried to get on a bus or a train, but I'll go up to people now, more than ever before, and talk about my brain tumour journey.' This photo was her last school photo taken in May 2013 two months prior to a brain tumour diagnosis. Charlotte was 16. Please RT with thanks charlottesbag.com/

Thank you, @LloydsBank, for targeting small charities like charlottesbag.com/  whose turnover is under £250,000 a year. From November, my first 100 monthly payments may be free, but after that, I’ll have to pay. You’re also charging 50p for every cheque I pay in. Your profits are through the roof  so WHY are you doing this? I have the CEO’s email address, so I’ll be sending him a message directly. Please RT TY

10 Years ago today 6.7.2015 Charlotte's brain tumour journey raising awareness 18.2.97 - 24.2.2016 Diagnosis to death 951 days Every year at the school where I work, we host an Activity Week. Years 7 and 8 stay on site for fun activities. Year 9 take part in trips and camping. Year 10 has a more structured week  and this year, the focus was on raising awareness around cancer. Charlotte was invited to help. She was joined by Ryan, a brave young man in remission from testicular cancer. Together, they spoke to Year 10s not just as survivors and fighters, but as young people who truly understood what it meant to live with and beyond diagnosis. Charlotte, once such a highly anxious individual, stood at the front of that classroom and bloomed. Confident, warm, and composed, she asked: “Does anyone watch YouTube?” Hands flew up. She shared that she had a channel  and played her video, "I’m Still Here." At that point, most of the students still didn’t know she had cancer. As the video played, I watched the room. Girls silently cried. Some boys looked stunned, even shaken. When the lights came back on, Charlotte explained what it was like to live with cancer  the medication: the appointments, the uncertainty. She and Ryan left an impression that day I know those students will carry for the rest of their lives. Charlotte didn’t just raise awareness. She gave her peers something far more powerful: honesty, courage, and connection. The big difference with our charity is that we self-fund. 100% of donations go directly to research at Charlotte's Lab, King's College Hospital, London.We have no salaries, overheads, advertising, or merchandise, just the story of a brave and wonderful young woman shared through her YouTube channel.We pay our own expenses, including PayPal & PO Box fees, so your donations really make a difference.If you’re thinking of donating to a charity, please consider us.  charlottesbag.com/

My daughter died of a brain tumour 951 days after she was diagnosed. For 741 of those days she suffered from grade 3 Anaplastic Astrocytoma. For 210 days she endured grade 4 glioblastoma - a terminal cancer. Standard NHS treatment is radiotherapy/chemotherapy - there has been no advancement in treatment since temozolomide, a chemotherapy, was licensed in 1999. Charlotte's first 741 days were, on the whole like many other young peoples' - she was very lonely, scared and had little to look forward to. She had no choice but to make her own entertainment, so she decided to document her brain cancer journey. "When I'm dead, take my YouTube channel down - nobody will ever be interested in a girl with a brain tumour." These were some of the last words she said to her brother, Miles, and I. In the last few weeks, Charlotte's most viewed video was recommended by YouTube; this generated another 500,000 views and another 4700 subscribers. To date, the total views of the videos on her channel stand at close to 25 million. When Charlotte died, she had 4,000 subscribers. She now has close to 80,000. Comments are left daily and I read every single one. On Tuesday, Miles and I travel to Charlotte's Lab, based in King's College Hospital, London, to be interviewed by @BBCBreakfast along with two members of  the Charlotte's BAG team. If you're thinking of donating to a self funding charity, please think of us. Please RT TY 18.2.97 - 24.2.16 charlottesbag.com/ youtube.com/watch?v=bh5sswba…

"When I'm dead, take my YouTube channel down - nobody will ever be interested in a girl with a brain tumour." For a change, it's Miles here. My mother and I decided not to take Charlotte's YouTube channel down. Instead, we wanted to use it as Charlotte had intended, as a means to spread awareness of child and young adult cancer sufferers. Charlotte's channel continues to grow and it is of incredible comfort to read the grateful comments left by people from all over the world. Charlotte sugar-coated nothing: her videos are honest and candid. My mother's greatest wish is to get Charlotte the silver YouTube button that she so deserves and never believed her channel would achieve. Over the last two weeks. Charlotte's video was recommended and this generated another 300 thousand views and another 2800 subscribers. To date, the total views of the videos on the channel stand at nearly 25 million. When Charlotte died she had 4,000 subscribers. She now has close to 78,000. Comments are left daily and my mother reads every single one. To help my mother achieve Charlotte's dream, we need to get to 100,000 subscribers. We would love to do this before what would have been Charlotte's 29th birthday in February. If you could RT, it would be appreciated hugely. If you could hit the YouTube subscribe button we would be so grateful. RT would also be highly appreciated. youtube.com/watch?v=bh5sswba…

For those followers who have been following my saga with @RoyalMail this was my response to their email. I could really have done without this. Thank you for your email regarding the non collection of posts from my P O Box number. I don't think you appreciate the gravity of distress this has caused myself and our donors. You say that delivery scales for 1st and 2nd class are not guaranteed but you aim for 1st class the next working day. I again posted a first class letter to my PO box last over a week ago (31st March) . This still hasn't arrived 10 days later. Is my box being emptied or will it be forgotten until March 2027? Please do not try to put any of the blame onto me. I have had a box since 19.2.2019 and never had a problem until now. There was no confusion as to whether the mail was collected or delivered. My mail was always delivered. I don't even know where the physical box is.  You say that this does not date back to 2023 I can assure you it does as I have the uncashed cheques to prove it. You then go on to say that you can't offer an explanation for these delays. I certainly can, my box was never emptied because of gross negligence on behalf of Royal Mail. You have no idea how frustrating it is not to receive cheques addressed to a charity. Throughout your whole email you do not even mention the cheques that I could not cash, only acknowledging a two year refund for the payments I had made to pay for my PO Box. Moving forward. I would like a substantial donation to our charity to cover all the cheques I could not cash and all the inconvenience you have caused me. I would like a guarantee that the PO box will be emptied regularly and I will be sending 'test' letters to check. The money we have lost may be an insignificant sum to you but to us it pays for consumables needed in brain tumour research. As I said in my original email dated 28th March. I will not let this matter rest until I have a satisfactory outcome. I await your response. charlottesbag.com/ youtube.com/watch?v=bh5sswba… Please RT

Sometimes, the memories we try to bury resurface without warning. While running this morning, I found myself thinking about Charlotte’s final weeks in the hospital. She was admitted on 5.2.2016 and placed in an induced coma. Miles waited outside until he was ready to say his final goodbye to his little sister—his only sibling. I have never asked, nor will I ever ask, what he said to her. It must have been the hardest thing he’s ever had to do at just 21. His best friend, the one who was meant to be there for his whole life, was leaving far too soon. I remember telling him not to come back, and he agreed—he had said all he needed to say. I was grateful he had a 19-day head start on grieving before we had to face it. This morning, as I ran, I cried Charlotte 18.2.97 - 24.2.16 aged 19 years 5 days brain tumour grade 4 glioblastoma a terminal cancer Please RT raising awareness & funding of brain tumours with thanks. charlottesbag.com/

So many people are leaving this platform. I, like many others, have lost followers. I've worked so hard over the last few years trying to raise awareness of brain cancer and our charity. Charlotte, I promise you I will only give up when I have no more followers. M x Charlotte, my daughter died from grade 4 brain cancer glioblastoma - no cure 18.2.97 - 24.2.16 age 19 years 5 days