MD, PhD | Professor of #Rheumatology | #Lupus #SLE | #Digitalhealth | @SLEuroSociety | @ERN_ReCONNET 🇪🇺
Strasbourg, France.
Joined January 2019
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Laurent ARNAUD retweeted
✅ Please help us disseminate #STRIDE. This is an important study in which we are trying to map systematically #access and #availability of care in #lupus, across the world 🌎 Our target is AT LEAST ONE ANSWER PER COUNTRY, which we will not be able to achieve without your help 🙏
✅ Are you a MEDICAL DOCTOR taking care of #LUPUS? We are trying to map availability and accessibility of #SLE treatments in EVERY COUNTRY OF THE WORLD 🌍🌎🌏
Please help us by filling-in our #STRIDE study 🙏🔄
LINK:lupusresearch.limequery.org/…
Laurent ARNAUD retweeted
🚨 Publication of PART 2 of the taskforce consensus on RARE #LUPUS MANIFESTATIONS in @TheLancetRheum.
👉 77 lupus experts have worked together to identify the best #treatment strategies for 22 additional rare SLE manifestations.
📥 OPEN-ACCESS LINK: authors.elsevier.com/a/1ngWy…
Laurent ARNAUD retweeted
NEW—ERN ReCONNET–SLICC–SLEuro consensus on the therapeutic management of rare systemic lupus erythematosus manifestations (part 2)
Free to read with registration on lancet.com (also free): thelancet.com/journals/lanrh…
Laurent ARNAUD retweeted
✅ MANY COLLEAGUES Worldwide 🌍🌏🌏 have already registered their interest for the cross-cultural adaptation (and often validation) of the #LBFSS in their language, from Arabic to Korean through Portuguese and Romanian 🙏
JOIN US with another language!!! (see below)
🌍 Join us to ADAPT the Lupus BrainFog Severity Scale (#LBFSS) into multiple LANGUAGES
📢 EACH LANGUAGE team will need:
👨⚕️ 3 medical doctors, fluent or very good English level
👤 One lupus patient, fluent or very good English
🚨 Doctors REGISTER HERE: lupusresearch.limequery.org/…
Laurent ARNAUD retweeted
✅ If you are a #lupus doctor and wish to make the #Lupus #BrainFog Severity Scale available to #patients in your own language, please join this international initiative ⏬ for the cross-cultural adaptation of the #LBFSS in multiple languages simultaneously. STARTING SEPT 2026 👍
🌍 Join us to ADAPT the Lupus BrainFog Severity Scale (#LBFSS) into multiple LANGUAGES
📢 EACH LANGUAGE team will need:
👨⚕️ 3 medical doctors, fluent or very good English level
👤 One lupus patient, fluent or very good English
🚨 Doctors REGISTER HERE: lupusresearch.limequery.org/…
Laurent ARNAUD retweeted
💊 Adherence works best when patients & healthcare professionals work as a team.
Patients need a safe space to explain what makes it difficult. HCP need to ask the right questions.
Prof Nathalie Costedoat-Chalumeau explains why this conversation matters
youtu.be/hNlDFIGck7E
Laurent ARNAUD retweeted
✅ With #CORRELATE, we deploy a full research program for #cognition in #lupus and other #autoimmune diseases
-Step 1: assess cognitive (subjective) SYMPTOMS - milestone accomplished with the #LBFSS (doi.org/10.1136/lupus-2026-0…)
-Step 2: assess cognitive FUNCTION with #COGNILUP
Laurent ARNAUD retweeted
✅ If you have #lupus, PLEASE HELP US with the #CORRELATE study 👀🙏🔁 it will take just 5 minutes of your time and help us understand #brainfog
Take the study: lupusresearch.limequery.org/…
✅ What is the relationship between #SLE #brainfog, and pain, stress, anxiety, etc... If you have #LUPUS PLEASE HELP US with the #CORRELATE study. By participating you will get your online brainfog #LBFSS score and help this research 🙏🔁 ️
🦋LINK: lupusresearch.limequery.org/…
Laurent ARNAUD retweeted
✅ 10 YEARS of randomized #TRIALS in #LUPUS summarized on a single slide. The least I can say is that we have collectively put A LOT of EFFORTS in the development of new #treatment.
As I only used my natural intelligence feel free to let me know if something is incorrect. #NoAI
Laurent ARNAUD retweeted
🧠 “Your experience of brain fog is real. It is common. It deserves attention.”
Prof @lupusreference & our Chair, @Jeanette_Lupus, explain how people living with #lupus helped shape the #LBFSS from the very beginning.
📖 Read the study: lupus.bmj.com/content/13/2/e…
Laurent ARNAUD retweeted
✅ Now that the #LBFSS is available for #brainfog, we are moving forward to TEST OBJECTIVE COGNITIVE FUNCTION 🧠 in #lupus 🦋 with #COGNILUP, for FREE, for ALL.
The platform is entering its calibration phase with healthy volunteers so that we can know the norms for each test 👍
✅ After ~200h of work, how far have I been able to take #COGNILUP?
➡️ Online platform to assess #cognition in systemic #Lupus
➡️ 12 different #neuropsychological tests with gaming
➡️ Assessment of stress, depression, anxiety, pain, fatigue sleep issues
➡️ Patient & doctor modes
Laurent ARNAUD retweeted
✅ Very happy to be part of this work on disease modification in #lupus #nephritis as part of the @ERAkidney network 👍 Check this beautiful paper showing what we think is the way in immunotherapy for #renal involvement in #SLE 👍
📥 LINK: doi.org/10.1038/s41581-026-0…
Our #IWG @ERAkidney work on disease modification in lupus nephritis has just been published in #NRN
nature.com/articles/s41581-0…
@IoannisParodis @Lupusreference @smirioglu @LuvacsL @AnnetteBruchfe1 @StefanieSteige6 @sarah_m_moran @OhioStateNeph @KateIsabelle24 et al.
Laurent ARNAUD retweeted
🚨 The #ALLEGORY trial of #obinutuzumab in systemic #Lupus is published in the @NEJM. Check my summary slide below 👇in particular the Efficacy% in obi vs SOC.
📥 LINK to the paper: doi.org/10.1056/nejmoa251615…
Laurent ARNAUD retweeted
🤩 Exciting to see #COGNILUP reach this next step!
🧠 Healthy volunteers will help establish reference values, bringing us closer to a free, accessible tool for people with #lupus to understand their cognitive function.
💜 Congratulations to Prof @lupusreference & all involved!
Laurent ARNAUD retweeted
✅ If you have #lupus, PLEASE HELP US with the #CORRELATE study 👀🙏🔁 it will take just 5 minutes of your time and help us understand #brainfog
Take the study: lupusresearch.limequery.org/…
✅ What is the relationship between #SLE #brainfog, and pain, stress, anxiety, etc... If you have #LUPUS PLEASE HELP US with the #CORRELATE study. By participating you will get your online brainfog #LBFSS score and help this research 🙏🔁 ️
🦋LINK: lupusresearch.limequery.org/…
Laurent ARNAUD retweeted
🧠 This #WorldBrainDay, we're raising awareness that lupus can affect the brain. Cognition, brain fog, memory challenges, mood changes, and difficulty concentrating are just some of the ways lupus can affect the brain.
The Lupus Research Alliance is committed to advancing research to better understand how lupus affects the brain through initiatives like the Brain Bank.
Help increase awareness and support lupus research by learning more here: bit.ly/3LtiVle
#WorldBrainDay #Lupus #LupusResearch #LupusAwareness
Laurent ARNAUD retweeted
Participa en este estudio del Dr Arnaud que permite ver la relación entre el LES y la neblina lúpica.
Está en ESPAÑOL!
lupusresearch.limequery.org/…
✅ ¿Cuál es la relación entre el #LES, el #brainfog y el dolor, el estrés, etc.? Si tienes #LUPUS, POR FAVOR, AYÚDANOS con el estudio #CORRELATE. Al participar, obtendrás tu puntuación en línea del #LBFSS y contribuirás a esta investigación
PARTICIPAR:lupusresearch.limequery.org/…
Laurent ARNAUD retweeted
✅ What is the relationship between #SLE #brainfog, and pain, stress, anxiety, etc... If you have #LUPUS PLEASE HELP US with the #CORRELATE study. By participating you will get your online brainfog #LBFSS score and help this research 🙏🔁 ️
🦋LINK: lupusresearch.limequery.org/…
Laurent ARNAUD retweeted
Thank you 🙏 We are currently assembling a large international team for the cross-cultural adaptation of the #LBFSS -at the same time & in many languages- using the #CROSSADAPT methodology. It would be amazing if you can join us 🙏
doi.org/10.1186/s13023-025-0…