
#MEAction UK focuses on campaigning and advocacy in the UK a part of the charity MEAction UK.
United Kingdom
Joined June 2016
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Did you know that MEAction UK has its own mailing list? Sign up for a closer look at our work in England, Scotland and Wales, including campaigns, updates and information. meaction.org.uk/sign-up
#MECFS #LongCovid #MillionsMissing
Our thanks go out to @BethDobbin for speaking about her illness to raise awareness, even at the cost of her own health and for describing the impact of ME so vividly. Beth is bed bound for 22 hours a day.
We know how isolating this is so want her to know that she is not alone.
bbc.co.uk/sport/athletics/ar…
#MyalgicEncephalomyelitis #VerySevereME
The producers of a new documentary on ME/CFS and Long COVID, 'What Doesn't Kill You', are looking for people's experiences of living with these illnesses.
whatdoesntkillyou.movie/#pro…
Through an online video interview, people answer questions about their lives and experiences in their own words, from home. Clips from these interviews are woven into the documentary to show what living with these illnesses is really like.
If you are interesting in taking part follow the ink below. Please bear in mind that the film trailer contains upsetting content and be mindful of your energy limits while watching or contributing your story.
#VerySevereME #pwME #SevereME
Clips from these interviews are woven into the documentary to show what living with these illnesses is really like.
If you are interesting in taking part follow the ink below.
Please bear in mind that the film trailer contains upsetting content and be mindful of your energy limits while watching or contributing your story.
#VerySevereME #pwME #SevereME
Watch David Tuller's interview with George Monbiot using the link below.
youtu.be/MaaeQ7crLz4?si=8R-f…
#SevereME #pwME
George Monbiot writes about the 'astonishing, ongoing mistreatment of people with #ME/CFS.' Share it - let's help it go viral!
shorturl.at/YSKvx
#MyalgicEncephalomyelitis
theguardian.com/commentisfre…
George Monbiot has sent out a call asking 'Are any of you still being offered inappropriate (psych/GET etc) "treatments"?
Please email [email protected]
#pwME #VerySevereME
Please read this petition update about Karen Gordon and sign if you haven't already. Be aware that Karen is still very ill and having a hard time in hospital, so read with caution.
change.org/p/save-karen-gord…
#VerySevereME
The #MEAction Network Severe ME Artists Project has many wonderful pieces of art to share with you. Please share some love with the artists.
xitter.cf/MEActNet/status/208607…
#SevereMEWeek2026
In honor of #SevereMEday, #MEAction is honored to share the Severe ME Artists Project 2026! Over 100 of you submitted photos, drawings, writing, and videos of your work! We are thrilled to share so many amazing and powerful pieces of artwork.
meaction.net/post/honoring-s…
#SevereME
The most severely ill people with ME have nowhere to go, no treatment, no ward, no NHS service. They need a specialised service and virtual wards to be commissioned now! Your MP can help by lobbying Yvette Cooper, the new Secretary of State for Health and Social Care.
Use our advocacy guides to contact your MP.
meaction.org.uk/news/2026/08…
#VerySevereME #SevereME #SevereMEWeek2026 #SevereMEAwareness
Our thanks to @JulianSmithUK for responding to our #MillionsMissing campaign and listening to his constituent who used our tools and asked him to take action. He tabled the following questions and received stock responses.
𝗲𝘅𝗽𝗲𝗿𝘁𝗶𝘀𝗲 𝗶𝗻 𝗵𝗼𝘀𝗽𝗶𝘁𝗮𝗹𝘀 𝗳𝗼𝗿 𝘁𝗿𝗲𝗮𝘁𝗶𝗻𝗴 𝘃𝗲𝗿𝘆 𝘀𝗲𝘃𝗲𝗿𝗲 𝗠𝗘, 𝗳𝘂𝗿𝘁𝗵𝗲𝗿 𝘁𝗼 𝘁𝗵𝗲 𝗣𝗿𝗲𝘃𝗲𝗻𝘁𝗶𝗼𝗻 𝗼𝗳 𝗙𝘂𝘁𝘂𝗿𝗲 𝗗𝗲𝗮𝘁𝗵𝘀 𝗥𝗲𝗽𝗼𝗿𝘁 𝗽𝘂𝗯𝗹𝗶𝘀𝗵𝗲𝗱 𝗼𝗻 𝟴 𝗢𝗰𝘁𝗼𝗯𝗲𝗿 𝟮𝟬𝟮𝟰.








