We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.
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ALT A man with short dark hair and a light beard, wearing a beige button-down jacket, looks down intently while writing on a notepad with a black pen. To the right, large red text on a plain white background reads: "Have your say on Carer's Allowance. Share your experiences as part of the Government’s call for evidence before 18 August".
ALT A formal letter from the Royal College of Psychiatrists (RC Psych), dated 12 June 2026, titled "Long Covid Advocacy" and addressed to a redacted physician. The letter acknowledges concerns regarding Post-COVID Condition (PCC) and explains the selection process for the "Understanding and treating the Post-COVID Condition (PCC)" session at their International Congress. It states the session went through a rigorous independent review and scoring process. The session features a panel of three experts discussing biomedical and psycho-social evidence based on clinical practice, with an opportunity for audience questions. The text emphasizes that while PCC has biological antecedents, delegates expect to discuss its psychological impact and psychiatric treatments using a biopsychosocial model. It notes that avoiding debate on illnesses with biological causes risks stigmatizing patients, and concludes by emphasizing that patient experiences remain central. The footer includes the tagline "NO HE
ALT A letter from Long Covid Advocacy to the Royal College of Psychiatrists and President Elect Prof Subodh Dave discusses integrating patient experience into ME care and highlights concerns about psychiatric-led approaches. #mecfs #meawareness #RCPsychIC #pwME
ALT A letter from Long Covid Advocacy to the Royal College of Psychiatrists and President Elect Prof Subodh Dave discusses integrating patient experience into ME care and highlights concerns about psychiatric-led approaches.
ALT A letter from Long Covid Advocacy to the Royal College of Psychiatrists and President Elect Prof Subodh Dave discusses integrating patient experience into ME care and highlights concerns about psychiatric-led approaches.
ALT IMAGE DESCRIPTION: Photo if a scientist holding blood vials. Photo of Professor Danny Altman. Heading - The ME Association is finding Imperial College London scientists in £1.1m ground-breaking research study. Imperial, Ramsay Research Fund, and ME Association logos.
ALT IMAGE DESCRIPTION: Small photo of someone getting a blood test. Wording - The ME Association is investing £1.1m into the Rosetta Stone study - the largest ever single investment in biomedical research by any charity in this field, and the largest research project of its kind. Arrow indicating to slide to the next picture
ALT IMAGE DESCRIPTION: Small photo of someone having a saliva swab. Wording - Top scientists at Imperial College London will lead the three-year Rosetta Stone study, conducting side-by-side cellular and molecular analyses of ME/CFS and Long Covid. Arrow indication you should slide to the right to the next picture.
ALT IMAGE DESCRIPTION: Small photo of people wording in a lab. Wording - This will offer an unprecedented look into what these conditions share, which may take us closer to diagnostic biomarkers and treatment pathways. Arrow indicating you should slide right.
