ME/CFS San Diego are patients and/or caregivers sharing information, support for each other, and education about Myalgic Encephalitis/ Chronic Fatigue Syndrome
San Diego, CA
Joined July 2020
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NIH Vaccinology & Immunology Center Update: Research to investigate serious post-vaccination health problems & persistent symptoms after infections, incl. LC but ME/CFS eligibility not clear. nih.gov/about-nih/nih-direct…
Spoonquill Chronic Illness Writers Residency Applications through 11/30 5 PM PT: Free online speculative fiction residency for writers w/ chronic illness, 10 sessions over 3 months. spoonquill.com/
Cellular Energy & Chronic Disease: @sciam explores how mitochondrial dysfunction may contribute to aging & disease. Much is relevant to ME/CFS, yet not mentioned. Incl. exercise advice problematic for ME/CFS. scientificamerican.com/artic…
ME/CFS & FM DNA Methylation: In 188 women, researchers found blood methylation patterns associated w/ PEM & cognitive symptoms in a preliminary study. pubmed.ncbi.nlm.nih.gov/4281…
ME/CFS @EmergeAus Diagnosis Guide: covers NAM criteria, ruling out other causes, symptom tracking, relevant tests, & resources emerge.org.au/diagnosis/
LC Mouse Preprint: Blocking TLR7 prevented brain inflammation & memory problems in mice. ME/CFS research has also suggested a possible TLR7 link. biorxiv.org/content/10.1101/…
San Francisco Unbound ME/CFS/LC Dance Film Screening: 11/6-7 at YBCA inaugural World Deaf & Disabled Dance Film Festival ybca.org/event/2026-world-de…
Spooky Season Readings @MEActNet List: Join CoRy Oct 30 at 7pm PT on Twitch for a live dramatic reading of H.G. Wells' The Invisible Man. OR hear Steven Molony's spooky readings anytime, like Poe's The Tell-Tale Heart: meaction.net/post/halloween-…
Submit CO Medicaid feedback by Oct 31: Federal rules mandate verifying Medicaid work exemptions, but self-attestation ok. CO chose a form-heavy caregiver verification. Comment: hcpf.colorado.gov/hr1-faqs
COVID-19 and Dormant Viruses: A study of 1,154 hospitalized patients linked reactivation of dormant viruses to greater illness severity and persistent disability after COVID-19, suggesting viral reactivation may help explain some LC symptoms. science.org/content/article/…
CODA's (Complex Disorders Alliance) MAESTRO Health Innovators: Team developing AI to improve assessment of complex chronic illnesses advances to Phase 2 of an HHS/NIH tech competition for AI and invisible illness. youtube.com/watch?v=53zp-OtN… VOTE HERE: invisibleillness.crowdicity.…
7T fMRI of CSF Flow and Brainstem Dysfunction in ME/CFS/LC: @polybioRF funded research at the Martinos Center investigating CSF flow, brainstem and craniocervical abnormalities, cerebral blood flow and autonomic dysfunction. polybio.org/projects/case-st… polybio.org/2026-spring-symp…
ME/CFS Genetics Meta-Analysis: Dr. Hanna Ollila presented findings from 60,542 cases and 2.77M controls, incl. 11 genetic loci, pituitary tissue signals and strong genetic correlations between ME/CFS, LC & FM. Cases included self-reported chronic fatigue. youtube.com/watch?v=47EEXnQH…
Iceland Health Directorate Report on ME/CFS/LC, POTS & Environmental Illness: minister-requested group calls for better care, social support, research & training, & an end to harmful rehabilitation. mefelag.is/report-directorat…
ME/CFS PhD Positions at the Medical University of Vienna: Two fully funded projects on genetic and clinical endotypes, using genomic analysis and electronic health records. Applicants with ME/CFS are welcome. Apply by 22 Nov 2026: oc10.meduniwien.ac.at/open-p…
Webinar @BrainInflCollab 10/29, 12pm PT: Free webinar on inflammation and hypermobility in ME/CFS/LC and MCAS zoom.us/webinar/register/WN_…
PRIME Neurology Webinar Reminder: International researchers explore ME/CFS neurology on 28 October, 2-5 pm GMT. Online via Zoom. Register: actionforme.org.uk/register-…
LC/ME/CFS @thephysicsgirl Article: Dianna Cowern describes severe illness and partial gains with experimental treatments. kpbs.org/news/arts-culture/2…
Wallersee ME/CFS Charity Hike: 1,250 Austrian students raised funds for WE&ME Foundation research into ME/CFS and post-viral illness, while raising awareness salzburg.orf.at/stories/3376…
