The Myeloproliferative Neoplasms Alliance Australia (MPN AA) was formed in 2015 by a small group of motivated patients who themselves had a diagnosis of MPN.
Australia
Joined May 2017
- Tweets397
- Following128
- Followers226
- Likes317
MPNAA retweeted
A new study published in @AjHematology found that treatment with aspirin reduced the risk of pregnancy loss in patients with essential thrombocythemia 📝
More news: mpn-hub.com
#EssentialThrombocythemia #MedNews #MedEd
Change to Pegasys access in Australia from 1 September
mpnallianceaustralia.org.au/…
MPNAA retweeted
Very proud supervisor moment 👏
Congrats to @JurieTashkandi on her win at the Antibody Technology & Therapeutics conference, talking about the Magnetic Particle Imaging #MPI research with @NTheranostics
monash.edu/medicine/news/lat… @Alfred_Research
MPNAA retweeted
Join us…
Just a few weeks out until our first hybrid event! We are eager to bring together all members of the MPN. Both consumers and researchers all working towards improving MPN outcomes. Join us in person bit.ly/3cI2dzo or online bit.ly/3QYkckd.
MPNAA retweeted
We need to do better to engage consumers in clinical research! Excellent systematic review.
A systematic review of perioperative clinical trials in Australia found there was very little consumer engagement in formulation, management, conduct
& dissemination of the trial findings. @sophwall @monashperiopmed @ctn_anzca @ccs_cares #ANZJSurg onlinelibrary.wiley.com/doi/…
MPNAA retweeted
Don’t forget to register for our #MPN event. We have a great lineup of speakers bringing their expertise and insights and how we are advancing on research and precision medicine. You can join us in person bit.ly/3cI2dzo or online bit.ly/3QYkckd
MPNAA retweeted
#WorldMarrowDonorDay is celebrated every year to thank blood stem cell donors worldwide. It’s also a day to raise awareness about the importance of registering as a stem cell donor and the impact of blood stem cell transplantation on a patients’ life.
rebrand.ly/stem-cell-transpl…
MPNAA retweeted
Today is MPN Awareness Day. Today and every day, we stand against every blood cancer and related blood disorder, like Myeloproliferative neoplasms. #ThisIsBloodCancer
Need support? Contact blood cancer support line on 1800 620 420 or via bloodcancer.org.au/
#YouAreNotAlone
MPNAA retweeted
Today marks MPN Awareness Day! We recognise the immense effort reasearchers are putting to transform disease diagnosis and treatment. We also thank those living with MPNs who have used their voices to support research and ecourage other people to share their MPN journeys.
@MPN_AA
MPNAA retweeted
There are currently limited real-world data for disease management, vascular complications, and disease transformation in young adults with #MPN. Sobas, et al. performed a large retrospective study to broaden this area of unmet need.
Find out more👉 loom.ly/am0zah8 #MPNsm
MPNAA retweeted
Damien Thompson was diagnosed with ALL in 2010 at the age of just 23. He shares pearls of wisdom about how he got through the challenging transplant. He also speaks about remembering to celebrate the small wins, as those small wins turn into big gains.💙rebrand.ly/talking-blood-can…
MPNAA retweeted
#UMCCRSeminar Decision Aids are commonly used in general practice. @ShakiraMilton and the Primary Care team decided to apply this as part of their SITA (Should I Take Aspirin?) trial to communicate their research to reduce #BowelCancer
MPNAA retweeted
🩸Fatigue
🩸Bruising/bleeding
🩸Repeated infections
🩸Shortness of breath
🩸Bone/joint pain
🩸Fever/night sweats
MPNAA retweeted
During Blood Cancer Awareness month this is a great reminder from the #SpotLeukaemia campaign of how we can help support earlier diagnosis👇. Many symptoms overlap with other blood cancers. Please share @adewilliamsnhs @SomersetLPC @AvonLPC
MPNAA retweeted
Our paper on the role of megakaryocyte (MK) dynamin 2 (DNM2)-dependent Mpl-mediated endocytosis is out in @FrontOncology: Endocytosis of the thrombopoietin receptor Mpl regulates megakaryocyte and erythroid maturation in mice frontiersin.org/articles/10.…
MPNAA retweeted
🤔How important is it to consider the mutational profile of each patient when considering a definitive treatment plan❓ @AaronGerds
1⃣ min READ➡️bit.ly/33hwuR2
#bloodcancer
@VoicesofMPN @MPNVoice @MPN_AA @mpnadvocacy @MPN_Hub @MPN_RF @mpndoc @CanadianMpn @hematology999
MPNAA retweeted
Register for hybrid event here bit.ly/3cI2dzo @LeukaemiaAus @MPN_AA @GMPNAN @mpnadvocacy @MPN_RF @MPNAdvocate
onlinelibrary.wiley.com/doi/…
Disabled, invisible and dismissed—The lived experience of fatigue in people with myeloproliferative neoplasms. #livedexperience #ThisisbloodCancer #MPN @PeterMacCC
Congratulations @SciSemple
A HUGE congratulations to the amazing @SciSemple. We are very proud of her achieving this much deserved milestone and are lucky to have as part of our committee. 👏👏👏