Search and explore digital tools and resources for #multiplesclerosis. A @bournemouthuni project in prototyping. Lead: Keith Pretty @Keefinger #MS. Views own.
Bournemouth, England
Joined February 2019
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We are building a free search tool for digital tools and resources for #multiplesclerosis. We would like input from pwMS, MS carers and health care professionals. Please get involved msdigitaltools.com/get-invol…
MS Digital Tools retweeted
Twitter help!! I've been let down at the last minute and need an awesome Personal Assistant to help me live my life. 18 hours per week. The role isn't just about personal care, you will have a great time too. Please retweet or DM #weymouth #dorset #JobVacancy #help
MS Digital Tools retweeted
Heard of wheelmap.org? Shift.ms volunteer Casey & her colleagues took part in a project to visit attractions, bars, shops & restaurants in Edinburgh to verify accessibility & rate them on the Wheelmap app.
Over 350 places were verified - ace work 👌
MS Digital Tools retweeted
The symptoms of #MS can all be part of other conditions, so it can be hard to reach a diagnosis quickly. In this video, Professor Coles explains more about why it can be tricky to diagnose, and what you can do if you suspect you have MS 👇
📽️ ow.ly/33SZ50v9eM2 📽️
MS Digital Tools retweeted
Disappointed you missed the deadline to apply for for #MSsessions19?⏰🥺 We don't want you to miss out so...
🚨We've added more spaces to this years festival🚨 so we can bring together even more young people with MS from across Europe 🌍🤝
Apply now ➡️ mssessions.com/
MS Digital Tools retweeted
Hearing other experiences of #MultipleSclerosis can help you identify symptoms and manage your condition 👂 👀
Our series 'By MSers' features six people with MS sharing their experience of diagnosis, watch here 👉 buff.ly/2lwRTzv
What's your MS diagnosis experience?
MS Digital Tools retweeted
Looking forward to attending the Disability Benefits Consortium's report launch today in Parliament which shows the real impact welfare changes have had on disabled people like me a person living with #MultipleSclerosis @mssocietyuk #WelfareUnfair
Today we’ll be in Parliament launching the Disabilty Benefits Consortium’s latest research showing the real impact welfare changes have had on disabled people #WelfareUnfair
MS Digital Tools retweeted
Who knew our @bournemouthuni VC @VCJohnVinney and COO @JimAndrews_BU could make such great coffee baristas, supporting @BmthFoodbank with the help of @BUeatanddrink #BUProud #leadingbyexample #Bournemouthfoodbank #ChangingTheNarrative #kindness
It's so easy to miss important things to bring up with your #multiplesclerosis clinician and this can help you prepare for your next #MS appointment.
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MS Digital Tools retweeted
I explained MS to a friend once using the analogy of wiring and the insulation of a wire being removed. His response was okay you’ve got mice 😂
MS Digital Tools retweeted
Awake, aching and buzzing. So tired. Will shut up about it shortly but so much #teamwork and ingenuity to get me round each obstacle. Started with ‘just’ my friends and upUgo colleagues. Then strangers, volunteers, everyone...
#toughmudder #msawareness #NoTwoTheSame
MS Digital Tools retweeted
It's been a busy first day at MS Frontiers - here's Ben, part of our research communications team, showing you our #MSResearch timeline!
From the year 1433 (!) to the present day and what the future holds - there's lots to learn about!
MS Digital Tools retweeted
Today is set to be a scorcher! The hot temperatures can affect #MS symptoms. We asked people living with MS for their top tips on staying cool. What's your top tip? #Heatwave
Here's our factsheet with information on coping with hot temperatures: mssoc.uk/2J51PrZ
MS Digital Tools retweeted
Are you Relapsing? Time to Slow Down, Eat Right and Enjoy Life! buff.ly/2CSWUW2
#livebetter
#MultipleSclerosis
MS Digital Tools retweeted
This is to our brave #MSWarriors who are great father despite the difficulties that come with MS
MS Digital Tools retweeted
It's #FathersDay and we want to celebrate all the amazing dads out there!
Tim is one of them! In this video, he talks about juggling MS with being a dad to his daughter Hannah 💙
ow.ly/1FSh50uDiDJ
MS Digital Tools retweeted
"My Dad is a Superhero. He was dx with #MS 12 yrs ago, and while there have been times MS has knocked him down, he always gets back up. He takes everyday head on, with a genuine smile and corny Dad Jokes that cannot be matched. He is my hero. He is my dad.:-Megan. #ThisIsMS # ...
Izzy and Emma have made me flower shaped pancakes with strawberries, raspberries and maple syrup for #FathersDay. I'm a very lucky man 😍. #FathersDay2019 #MultipleSclerosis #MS #MSWarrior #CureMS
These simple methods can be so helpful, particularly early on. A notebook+pen in clinical meetings, keeping a written log and spreadsheets to track symptoms. They help you understand your own personal #MS better #MSWarrior #MsAwareness #MyInvisibleMS #StopMS #CureMS #MSResearch
Do you track your symptoms? Read more about how this simple practice can help: multiplesclerosis.net/?p=384…
#multiplesclerosis #MS #msawareness #chronicillness #autoimmune