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Marc Yale (@MarcYale) profile picture

Marc Yale

@MarcYale

Advocacy & Research Coordinator, International Pemphigus and Pemphigoid Foundation, #RareDisease Patient, Passionate Advocate and Father. #pemphigus, #pemhigoid

 Ventura, CA
pemphigus.org
Joined December 2012
  • Tweets3K
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  • Followers811
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Photo by Marc Yale (@MarcYale)Photo by Marc Yale (@MarcYale)Photo by Marc Yale (@MarcYale)Photo by Marc Yale (@MarcYale)Photo by Marc Yale (@MarcYale)Photo by Marc Yale (@MarcYale)
Marc Yale retweeted
GlobalSkin (@IADPO) profile picture
GlobalSkin@IADPO19 Mar 2024
Address the urgent needs for access to care, timely diagnosis, affordable treatment, and mental health support for dermatology patients. Join our global movement to tell policymakers it’s about your skin & so much more. Sign our open letter! notjustmyskin.org #NotJustMySkin
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Marc Yale retweeted
NIAMS (@NIH_NIAMS) profile picture
NIAMS@NIH_NIAMS20 Feb 2024
NIAMS has announced a new approach to its funding policies. Read Dr. Lindsey Criswell’s new Director’s letter discussing these changes and how they will allow the institute to better address gaps and opportunities in its broad portfolio mission areas: go.nih.gov/9OA8ghU
NIAMS Aims to Broaden Support for Our Mission By Expanding Our Funding Approach

NIAMS Aims to Broaden Support for Our Mission By Expanding Our Funding Approach

NIAMS strives to advance the best science on arthritis, musculoskeletal, and skin diseases, which

niams.nih.gov
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Marc Yale retweeted
Marc Yale (@MarcYale) profile picture
Marc Yale@MarcYale1 Jun 2022
The Access to Rare Indications Act could be a game changer for millions of Americans statnews.com/2022/06/01/the-… via @statnews @RareDiseases @RareAdvocates @RarediseasesJ @CMSGov @FDAPatientinfo @AADskin @AutoimmuneAssoc @GeneticAlliance @HaystackProject @MedDermSoc
The Access to Rare Indications Act could be a game changer for millions of Americans

The Access to Rare Indications Act could be a game changer for millions of Americans

For the millions of Americans living with rare diseases, most of which do not have FDA-approved treatments, identifying a treatment as medically necessary can be a lifeline — or the end of the line.

statnews.com
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Marc Yale retweeted
SpaceX (@SpaceX) profile picture
SpaceX
@SpaceX13 Jan 2024
Watch Falcon 9 launch 22 @Starlink satellites to orbit teapawt.net/i/broadcasts/1zqKVqDpp…
Video
0:00

SpaceX

Starlink Mission

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Perspective from @SenatorBurr on @US_FDA & the current landscape of delivering treatment innovations to address unmet medical need.
STAT (@statnews) profile pictureSTAT
@statnews20 Nov 2023
Opinion: The FDA is at a crossroads on cell and gene therapies. trib.al/j7YHEI5
The FDA is at a crossroads on cell and gene therapies

The FDA is at a crossroads on cell and gene therapies

The FDA’s risk-averse approach to cell and gene therapies may harm patients, writes former Sen. Richard Burr.

statnews.com
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The next webinar in our Scientific Seminar Series is on June 5th. Register today: loom.ly/7uKWP5c #healourskin
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Interested in sharing your experience with bullous pemphigoid? @IQVIA_global is looking for individuals to take part in a paid qualitative research interview. Email [email protected] #healourskin
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Check out these helpful tips for preparing for medical appointments: themighty.com/topic/rare-dis… #healourskin
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Check out the latest video in our Pass the Mic with Dr. Mike, the Pharmacist, series. Dr. Mike breaks down patient assistance programs. Watch the video and read the article on PemPress: loom.ly/-6j7xN8 #healourskin #pemphigus #pemphigoid
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Take action today to urge the Senate to include the Safe Step Act and HELP Copays Act in the upcoming Health, Education, Labor, and Pensions Committee markup! Contact the Senate here: congressweb.com/NORD/188/ #healourskin
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Don't forget to register for the May 3rd patient education webinar with Dr. David Fivenson! Register today: loom.ly/GDGCgSI #healourskin
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Marc Yale retweeted
GlobalSkin (@IADPO) profile picture
GlobalSkin@IADPO7 Oct 2022
Today's #FollowFriday spotlights The Salif Keita Global Foundation (@WELOVEALBINOS) is dedicated to ending worldwide discrimination, persecution, and genocide against persons with #albinism. Learn more here: salifkeita.us/
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It’s not too late to submit your abstract or scholarship application for the #WCD2023Singapore For more info on the abstract topics of the congress and scholarship guidelines, please write to [email protected] and [email protected]
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Marc Yale retweeted
CISCRP (@CISCRP) profile picture
CISCRP@CISCRP25 Aug 2022
For @MarcYale, being accepted into a Pemphigoid clinical trial meant the difference between battling a chronic condition and achieving remission. Learn more about the importance of clinical research participation from Marc here: ciscrp.org/medical-hero-spot…
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Marc Yale retweeted
GlobalSkin (@IADPO) profile picture
GlobalSkin@IADPO12 Aug 2022
Today's #FollowFriday spotlights a Member from the #Netherlands - @HidradenitisNL (HPV) is committed to early diagnosis and proper treatment of #hidradenitis. To learn more about this organization, please visit: hidradenitis.nl/ #dermtwitter
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Marc Yale retweeted
GlobalSkin (@IADPO) profile picture
GlobalSkin@IADPO2 Aug 2022
Watch this replay yet? It's summer's peak and knowledge about #sunsafety is of utmost importance. Thank you to the @ILDSDerm for partnering with us on this vitally-relevant info! Watch here: youtube.com/watch?v=flKBm2_T… #sunprotection #skincancer #skincancerawareness
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Marc Yale retweeted
GlobalSkin (@IADPO) profile picture
GlobalSkin@IADPO30 Jun 2022
Thank you for everyone's participation in #GlobalSkin's Annual General Meeting last week. We appreciate your dedication, vision and collaboration! Thank you to our Board of Directors, Members, Partners and Staff for making it all possible. #globalskin #dermatology #skindisease
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As you make your summer 2022 plans, be sure to register for #RareAcrossAmerica2022 at rareacrossamerica.org (Registration closes July 8th) Help spread the word and share with your community!
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Live in-person conferences are coming back. The next World Congress of Dermatology will be in July 2023 in Singapore. The @ILDSDerm Scientific Committee met this week to set the program. See you @wcd2023sg!
Image from Harvey Lui (@HarveyLui)
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Marc Yale retweeted
GlobalSkin (@IADPO) profile picture
GlobalSkin@IADPO21 Jun 2022
Welcome to our newest GlobalSkin Members! Pemphigus Africa Trust - #Pemphigus & #Pemphigoid in #Kenya. Youth & Women for Opportunities (YWOU) – #Uganda - Support for most at-risk populations. Helping Hands serves patients in #Pakistan.
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