Martin Center Sickle Cell Initiative is a human services agency dedicated to aiding and enhancing the lives of those affected by Sickle Cell in Central Indiana.
Indianapolis, IN
Joined July 2011
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Martin Center SCI retweeted
Today, the Centers for Medicare and Medicaid Innovation (CMMI) announced the launch of their new Cell and Gene Therapy Access Model, a demonstration aimed at improving access to cell and gene therapy products in the Medicaid program. Read more: buff.ly/42mZJMc
Martin Center SCI retweeted
Sickle cell warriors over the age of 18 in select states are invited to participate in MedicAlert's new pilot program designed to improve the emergency room experience. Learn more: buff.ly/3Nc5JBs
Martin Center SCI retweeted
We are sending greetings and blessings to our entire #sicklecell community. May the days ahead provide joy, peace, love and NO PAIN!
Martin Center SCI retweeted
We are very excited to share that today, Dec. 8, the Food and Drug Administration approved two gene therapies to treat sickle cell disease! These potentially curative therapies are the first treatments of their kind available to individuals with SCD.
fda.gov/news-events/press-an…
Martin Center SCI retweeted
.@MartinCenter cares for people affected by Sickle Cell Disease.
This #GivingTuesday, aid and enhance the lives of those affected by Sickle Cell.
DONATE ⤵️
bit.ly/3XsmFqD
Martin Center SCI retweeted
Sickle Cell 101 is conducting a study for sickle cell trait to address the limited research surrounding it – FINALLY!! Take the survey and let us know your thoughts. ⬇️⬇️⬇️
scostudies.com/featured/KNOW…
#sicklecelltrait #sicklecell101 #sicklecellresearch #knowyourgenotype #KnowUrSCT
Martin Center SCI retweeted
HOT OFF THE PRESS: United Way of Central Indiana's 2022-2023 Annual Report
Please take some time to immerse yourself in our impactful highlight reel and know how truly grateful we are for your support of United Way.
VIEW THE REPORT ⤵️
bit.ly/3PV4Vmm
Martin Center SCI retweeted
A child with sickle cell disease is born across the world EVERY TWO MINUTES. Most die without a diagnosis in the first years of life. Sickle cell belongs among HIV, TB, Malaria as critical global health problems. #SickleCellAwarenessMonth
Martin Center SCI retweeted
If you or a family member has #sicklecelldisease (whether or not you’ve been officially diagnosed with #asthma), these #AirQuality conditions are not safe for you either.
Please limit your time outdoors when the #AQI is this bad.
@RobynCohenMD @SCDAAorg
Specialist says he's seeing more young patients suffering from asthma and allergies tinyurl.com/5ceprten
~via @wrtv
Martin Center SCI retweeted
Attn #SickleCell families: Enjoy lunch on us @ the Allen County Public Library in Fort Wayne on Mon, June 19 to celebrate #WorldSickleCellDay and #Juneteenth! Learn about Indiana sickle cell programs & enjoy fun activities from 11a - 2:30p Qs? Email [email protected].
Martin Center SCI retweeted
Get ready to lace up your running shoes for an incredible cause! The @MartinCenter is having their Annual Sickle Cell 5k Walk/Run on Saturday, June 24, from 8 a.m. to 12:30 p.m. at the beautiful Riverside Park in Indianapolis, Indiana. Sign up here: buff.ly/45RgOzc
Martin Center SCI retweeted
Hey everybody, our sponsors are still signing up to support us and we are so grateful! WHAT ARE YOU WAITING FOR? Come and walk or run with us. Registration fees are going up soon. Register now at runsignup.com/Race/IN/Indian…. See you there!
Martin Center SCI retweeted
Camp Silver Moon in the spotlight! 😎
WATCH: IHTC is in camp mode! #sicklecell warrior Jordan & his aunt Kelly helped Dr. Angeli Rampersad spotlight Camp Silver Moon – IHTC’s summer camp for kids ages 7-16 with SCD & their siblings. campsilvermoon.com
Thanks to @FOX59 for having us! bit.ly/43cxvDc
Martin Center SCI retweeted
It's back!!! Live and in-person. We've missed you and we want to see you again at this year's Sickle Cell 5K Walk/Run. Sign up now and save. runsignup.com/Race/IN/Indian…
Martin Center SCI retweeted
Did you know that people with sickle cell trait have a higher risk of developing a rare kidney cancer called Renal Medullary Carcinoma (RMC)? Check out this informative article from the Kidney Cancer Association's Know & Tell program to learn more: buff.ly/3kUrEC1
Martin Center SCI retweeted
We are working with @Indiana_HTC and others on the CDC's Sickle Cell Data Collection project and learning more about Sickle Cell Disease in Indiana. Here is an example...
Martin Center SCI retweeted
We've been helping folks for 53 years and we need the community's help as we aim for at least 53 more!
Martin Center SCI retweeted
We honor the countless lives lost because of #SickleCellDisease over so many thousands of years. This #WorldSickleCellDay, we honor the valiant warriors who conquer it every day.
Martin Center SCI retweeted
Today, June 19, is #WorldSickleCellDay. Sickle cell disease impacts more than 100,000 Americans, yet it remains underfunded, under-represented and misunderstood. Help us “Shine the Light on Sickle Cell” today and support sickle cell warriors near and far: buff.ly/3g5qzlJ
Martin Center SCI retweeted
On #WorldSickleCellDay, a reminder that
👶🏾300K babies born w/ #sicklecelldisease ea year
💰 11x less federal funding than other inherited diseases like CF
💊Only 4 FDA approved meds for tx in 100+ yrs since its discovery
Help bring attention to this #neglected disease today