Caregiver to my husband w/ALS dx 2010, Photographer, Writer. Elizabeth Dole Fellow.
Wilmington, NC
Joined May 2012
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He’s the best. He finds opportunities to contribute to our life because it brings him joy. He loves to make the load easier whenever he can. #als #USMC #durhamVA #love #caregiverlife
In the mornings and evenings, we take a garden stroll and roll. #thisisus #thisisalslife #ALSAwarenessMonth #iamals
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MaryHahnWard retweeted
Episode 12 of mine and @MaryHahnWard's podcast ALS Caregivers & Beyond is live. Join us as we talk about navigating the holidays while deep in the ALS journey and the beyond.
rss.com/podcasts/als-caregiv…
As a caregiver to a veteran with ALS this legislation would be a game changer!
As a TX Caregiver now Survivor to an ALS vent/trached USAF veteran, this piece of legislation is IMHO one of the most significant pieces of legislation that will move the ball down the field for high acuity veterans to access ALL the resources the VA offers w/o limitations.
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Wishing this handsome man a happy 69th birthday today. He’s 13+ years living with ALS. Every day he lives his life with a joyful heart. We count ourselves lucky that we can celebrate him for another spin around the sun. #nottodayALS #endALS
I’m looking forward to being part of this amazing panel Props to @tomstroops for being my significant other partner on ALS Caregivers & Beyond. Couldn’t do it without her❤️
The ALS Podcasters panel is coming up! Among the amazing panelists will be @MaryHahnWard, co-host of ALS Caregivers and Beyond, and Lorri Carey, host of I'm Dying to Tell You (@LorrisPodcast). Sign up for the panel here: iamals.org/action/podcasting…
MaryHahnWard retweeted
#ALSvets here is a webinar that might be helpful thanks to @CMAorg and @ReeveFoundation. Sometimes, you choose between VA and Medicare, b/c you are needing the path of least resistance. #endALS
We welcome you to join @CMAorg for our upcoming webinar, Medicare for Veterans Living with Paralysis
Part 1 on Wed, 10/4 from 2:30 - 3:30 PM ET
Part 2 on Thur, 10/19 from 2:30 - 3:30 PM ET
With thanks to @ReeveFoundation Quality of Life Grants Program
medicareadvocacy.org/webinar…
Sometimes having gratitude for good weather is all we've got. It's 1 in our essential toolbox when the ALS Caregiver & Beyond life gets too heavy. @tomstroops & I find any level of gratitude is better than none. #ALS #Podcast
rss.com/podcasts/als-caregiv… via @rss
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We are passionate about sharing with our #ALS community.
If you are in the ALS Caregiver/#ALSvet Community, check out this new podcast. Yes, shameless plug . It's mine & @MaryHahnWard's new podcast. We are open and honest about living the ALS life and what it looks like beyond
ALS Caregivers and Beyond rss.com/podcasts/als-caregiv… via @rss
The 2nd ALS Caregivers & Beyond podcast I did with @tomstroops my takeaway after listening to it again is to change, rather than lower, my expectations of what a successful day looks like. open.spotify.com/episode/2nX…. It’s been a positive game changer for me this week
I wish this wasn’t the reason Lara was in my life. Since we can’t change that ALS brought us together I have such deep gratitude that we get to do this together. We are emboldened to share our stories in the hope that it helps others. #caregivers #survivors #als
A new episode from our new podccast following the ALS journey through the eyes of the caregiver and once caregiving ends....the beyond. @MaryHahnWard is my co-host, and we are open and honest about the journey.
open.spotify.com/show/2JK1NG…
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MaryHahnWard retweeted
@MaryHahnWard and I are exploring this ALS life as caregivers and what it looks like beyond the caregiving life. Real conversations about this tough road that is ALS.
open.spotify.com/episode/4v3… – at Cedar Park, TX
It’s always our best day of the year. One comes all the way from ND the other from FL to visit us every summer in NC, all look forward to donuts on the beach with Poppy. ALS for 13 yrs I am incredibly grateful he is still with us to enjoy these moments #ALS #beachlife #donuts
MaryHahnWard retweeted
@SenatorTester thank you for asking the VA about the VDC Program. It would be interesting to better understand what "rolling out to all VAMCs" means. Is it the VAMC offers the program AND they are providing the service to the veterans. Offering and providing is not the same.
Moments of #respite that’s what a 🚴 ride gives me. Hours/overnight respite is more difficult to come by. I learned to love what it’s available. #alscaregiver #als #veteranswithals #thiscaregiverlife
It doesn’t escape me, at all, that this photo was taken in 2017. I take nothing granted. He’s still alive, gratitude every day for that #ALSAwarenessMonth
DYK: veterans like Tom Ward have a 60% higher risk of developing #ALS? During #ALSAwarenessMonth, we want you to meet Tom’s incredible wife Mary. Since navigating Tom’s illness, she’s become an advocate for other ALS caregivers nationwide: bit.ly/3egfI7H
Sometimes #caregivers need extra special love like a lab climbing on their lap. Thanks Rory❤️ #labradorretriever #lablove #caringforthecarer
