Maureen (@MaureenHenryUT) profile picture

JD, PhD. Research Scientist at NCQA.

Joined March 2009
Photo by Maureen (@MaureenHenryUT)Photo by Maureen (@MaureenHenryUT)Photo by Maureen (@MaureenHenryUT)Photo by Maureen (@MaureenHenryUT)
Happy Mother's Day. We found this essay shortly after my mother died on New Year's Eve. She wrote it in 1972. Those were interesting times! https://teapawt.net/t.co/1s6DBmgfVY
We need effective non-opiod pain management, especially for those with kidney disease. And we need to hear why from patients. Congratulations @kidneywarrior! https://teapawt.net/t.co/n0o7KinYV7. @NCQA is proud to have you as a patient voice for serious illness.
1
1
2
Thanks to the community for informing our work. #hpm @ncqa @CTACorg @NatQualityForum
To my mother it was important that it was HER goals. Wd not let family talk to hospice workers w/o her. #hpm
3
6
Maureen retweeted
A3 Being enabled to achieve goals for the last stage of life, feeling cared for, not feeling burdensome to family... differs by person #hpm – at Minnetonka, MN
3
4
Replying to @acderinger
@acderinger Yes! How often pts say, "No one [in X yrs since dx with Z disease] has ever told me THAT[dx, trajectory, prognosis] before."#hpm
3
5
Q3 Honestly, I think cost is a measure that pts/families want to know about too #hpm
1
2
4
Replying to @CTACorg
Q3 @CTACorg being known as a person - this comes up over and over in our patient interviews #hpm
2
1
2
Replying to @GraniteDoc
@GraniteDoc Yep. Which comes back full circle to EMRs not being (usually) built with #hpm in mind. cf The Digital Doctor (Au: Wachter)
1
2
Replying to @GraceBrookeMD
@GraceBrookeMD Exactly, that's one of the huge barriers. Whatever can be routinized or gathered from EMR is essential #hpm
1
1
1
#Advancedillness Follow @NCQA for information about our work on measurement based on pt goals of care.
2
2
Maureen retweeted
We agree entirely! Part of experience of care is "Were your wishes followed?" #advancedillness teapawt.net/JHARTFOUND/status/7003…
3
3
They want care @fischmd -- they just may want care concordant with their goals and values #advancedillness teapawt.net/fischmd/status/7003615…
How can providers honor the wishes of patients who do not wish to receive care? Keep caring, stay available #advancedillness
7
6