@MyCyFAPP

MyCyFAPP is a project aimed at the self-management of pancreatic enzyme replacement therapy in Cystic Fibrosis patients. Funded by @EU_H2020

mycyfapp.eu
Joined January 2015
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  • Following375
  • Followers272
321Media
New paper from @MyCyFAPP team "Optimisation of children z-score calculation based on new statistical techniques" @PLOSONE bit.ly/Gaussian_zscore bit.ly/Gaussian_zscore

Optimisation of children z-score calculation based on new statistical techniques

Background Expressing anthropometric parameters (height, weight, BMI) as z-score is a key principle in the clinical assessment of children and adolescents. The Centre for Disease Control and Preven...

journals.plos.org
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MyCyFAPP retweeted
IIS La Fe@IISLaFe14 Dec 2018
🇪🇺Los pacientes del ensayo clínico europeo @MyCyFAPP Fe han mejorado su estado de salud. 🔬📱Investigadores del @IISLa han desarrollado una app que personaliza la nutrición y la terapia de sustitución enzimática en pacientes con #fibrosisquística. iislafe.es/es/actualidad/not… … …
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📌📋Los pacientes del ensayo clínico @MyCyFAPP del @IISLaFe han mejorado su estado de salud y reducido su preocupación por sufrir dolor #FibrosisQuística #LaFe50AñosLaFe #LaFe50AnysAmbTu lafe.san.gva.es/home/-/asset…
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. Joaquim Calvo presenting major results of @MyCyFAPP project in this last meeting hosted by @IISLaFe great work, great team! #cysticfibrosis
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#ICT2018 is a big success. 3 days, +6000 visitors, +4000 researchers & more. Only together we can face next digital challenges. #Cybersecurity, #AI, #DigitalSkills: #EU 🇪🇺 has to be leader of #digital transformation. Commissioner @GabrielMariya and Norbert Hofer at @ict2018eu – at Vienna, Austria
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MyCyFAPP retweeted
TAT:CF@cf_tat4 Dec 2018
Dra. María Garriga from Hospital Universitario Ramón y Cajal (Madrid) presenting @MyCyFAPP
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❗️EU programmes enabled us to make sure our industries are at the forefront.➡️ #DigitalEurope programme will enable us to be first movers in adapting the technologies and making sure that we have the best capacities worldwide.#EUBudget - @KhalilRouhana at #ICT2018 – at Oudergem, België
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In 1955, people with #cysticfibrosis weren't expected to attend elementary school. Today, people with CF are living long enough to have families of their own. On #GivingTuesday, help us celebrate this progress and reach our goal of 1,955 gifts. on.cff.org/1955gifts
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'No Dia Europeu da Fibrose Quística, uma doença genética, Beatriz conta como foi esperar por um transplante pulmonar. “Causa muita ansiedade.” Sebastião está nessa fase: à espera.' in @Publico , 21.11.18 #FQ #FibroseQuistica #ANFQ #FQPortugal publico.pt/2018/11/21/socied…
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Replying to @MyCyFAPP
@MyCyFAPP #game #app MyHappyPAT for #children with #cysticfibrosis presented on @dighealthbuzz lnkd.in/e6kvr3k
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MyCyFAPP retweeted
IIS La Fe@IISLaFe20 Nov 2018
Replying to @AnaBlancoS2
@AnaBlancoS2, Head International Office @IISLaFe presents European Project @MyCyFAPP in #H2020conf2018. Congratulations to MycyFAPP Team 💪!!
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Symkevi Approved in EU for CF Patients with Two F508del Mutations, or One Plus a Minimal Function Mutation buff.ly/2JxX3mA
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Carved your pumpkin but not sure what to do with the inside? Why not make a pumpkin cake bit.ly/2hRDM2m Each slice = 408kcal, 21g fat, 52g carbohydrates #cfnutrition #heartlandscf @cfaware #Halloween
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Yesterday I was in @HospitalLaFe doing interviews to health professionals and parents of children with #cysticfibrosis about @MyCyFAPP system. It's so comforting to see how the apps impact positively in their lifes #HappyToHelp @SabienUPV @PaulaCreses
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821 million people are hungry. A #ZeroHunger 🌍 where EVERYONE has enough nutritious food is possible if we choose to act now. 💪Let's not waste food 💪Let's support our local food producers 💪Let's adopt a more healthy and sustainable diet Our actions are our future. #WFD2018
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'' Videogames for education and corporate training'' @CompMente @PsicologiOPL #bestpractices #games #training #education #MGV18 @BeaconingEU @Mycyfapp @InLife_Project
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.@EUauditors recognises that simplification measures introduced in #H2020 are an improvement on earlier framework programmes. @EU_Commission is firm in its commitment to press ahead with further simplification measures #EUbudget #HorizonEU #EUaudit2017 ⇢ europa.eu/!bc66gh – at Brussels, Belgium
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imaginary experience #MGV18 general talk “Videogiochi per l’educazione e nella formazione aziendale” (Videogames for education and corporate training) in the @PsicologiOPL corner during Milan Games Week @BeaconingEU @Mycyfapp @InLife_Project @CompMente
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Gender equality in #H2020 is paying off, with an increased participation of women in projects, in evaluation panels and advisory groups. #HorizonEU is a real opportunity to turn our ambitions into reality. Let's start now! #WomeninScience – at Brussels, Belgium
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A hypo is a blood sugar under 4. Signs of a hypo include feeling shaky, light headed, weak + hungry. Ask your dietitian/diabetes nurse for more information #cfnutrition #heartlandscf #HAW2018, #cfrd @cfaware
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