MSU, patient-led, all-volunteer nonprofit empowering the #Myositis community. Patient support, education, financial assistance, research. #RareDisease

United States
Joined January 2014
From the Heart Support TODAY on Clubhouse! Support & connect w/ your #myositis family! Join us on Clubhouse today and every Sunday at 7 PM ET / 6 CT / 5 MT / 4 PT - Come as you are. Learn more and join Clubhouse at: understandingmyositis.org/ev… #myositissupport #MSU
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#MyositisSupport Gets Moving on Clubhouse TODAY at 1 PM ET / 12 CT / 11 AM MT / 10 AM PT. We create individualized movement/protein plans, engage w/ support partners, and join our weekly group to discuss understandingmyositis.org/ev… #MyositisMovement #myositis #inflammatorymyopathy
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3rd Wednesday of the Month 7 PM/ET/ 6 PM CT/5 PM MT/4 PM PT Weight Management Weight loss and weight gain are critical to our physical and emotional wellbeing on our myositis journey and there is power in sharing our stories in a safe, no judgement support group.
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𝗗𝗲𝗿𝗺𝗮𝘁𝗼𝗺𝘆𝗼𝘀𝗶𝘁𝗶𝘀: 𝗖𝗮𝗻 𝗙𝗶𝘀𝗵 𝗢𝗶𝗹 𝗛𝗲𝗹𝗽? TODAY ! Join Lisa Rider, MD, NIH/NIEH and Julia Agafonova, MS, CCRC, to learn about FAST for DM! ⭐REGISTER HERE: understandingmyositis.org/ev… #NIEH #NIH #MyositisClinicalTrials #Dermatomyositis #MyositisSupport
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Join us TODAY for #MyositisReads, a book club for the Myositis Community on Clubhouse! Today at 3 PM ET on Clubhouse. Myositis patients and care partners are welcome. Reading is where we can escape, relax, and learn. 👉 For details, visit: understandingmyositis.org/ev… #MyositisReads
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𝗗𝗲𝗿𝗺𝗮𝘁𝗼𝗺𝘆𝗼𝘀𝗶𝘁𝗶𝘀: 𝗖𝗮𝗻 𝗙𝗶𝘀𝗵 𝗢𝗶𝗹 𝗛𝗲𝗹𝗽? TOMORROW: Join Lisa Rider, MD, NIH/NIEH and Julia Agafonova, MS, CCRC, to learn about FAST for DM! ⭐REGISTER HERE: understandingmyositis.org/ev… #NIEH #NIH #MyositisClinicalTrials #Dermatomyositis #MyositisSupport
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From the Heart Support TODAY on Clubhouse! Support & connect w/ your #myositis family! Join us on Clubhouse today and every Sunday at 7 PM ET / 6 CT / 5 MT / 4 PT - Come as you are. Learn more and join Clubhouse at: understandingmyositis.org/ev… #myositissupport #MSU
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International Myositis Support Group! Connect with others from around the world, share experiences, and offer mutual support in a safe and welcoming environment. Every third Sat of the month on Zoom at 2pm ET. Register at Global Community understandingmyositis.org/ev… #myositis
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𝗗𝗲𝗿𝗺𝗮𝘁𝗼𝗺𝘆𝗼𝘀𝗶𝘁𝗶𝘀: 𝗖𝗮𝗻 𝗙𝗶𝘀𝗵 𝗢𝗶𝗹 𝗛𝗲𝗹𝗽? TUESDAY! Join Lisa Rider, MD, NIH/NIEH and Julia Agafonova, MS, CCRC, to learn about FAST for DM! ⭐REGISTER HERE: understandingmyositis.org/ev… #NIEH #NIH #MyositisClinicalTrials #Dermatomyositis #MyositisSupport
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#MyositisSupport Gets Moving on Clubhouse TODAY at 1 PM ET / 12 CT / 11 AM MT / 10 AM PT. We create individualized movement/protein plans, engage w/ support partners, and join our weekly group to discuss understandingmyositis.org/ev… #MyositisMovement #myositis #inflammatorymyopathy
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🎬 Join Couch Critics, our virtual Myositis Community movie club! We meet bi-weekly on the 2nd Wed at 7 PM EST. Relax, connect, and enjoy movies together! understandingmyositis.org/ev… 🍿 #MSU #Myositis #CouchCritics
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Breathe Easy, dedicated specifically to myositis patients who are experiencing lung issues. Join us for our monthly meeting on Zoom. register here: understandingmyositis.org/ev… #MSU #MyositisSupport # #MyositisAwareness #LungHealth #BreatheEasy
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𝗗𝗲𝗿𝗺𝗮𝘁𝗼𝗺𝘆𝗼𝘀𝗶𝘁𝗶𝘀: 𝗖𝗮𝗻 𝗙𝗶𝘀𝗵 𝗢𝗶𝗹 𝗛𝗲𝗹𝗽? Join Lisa Rider, MD, NIH/NIEH and Julia Agafonova, MS, CCRC, to learn about FAST for DM! ⭐REGISTER HERE: understandingmyositis.org/ev… #NIEH #NIH #MyositisClinicalTrials #Dermatomyositis #MyositisSupport
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🌟TODAY! MSU Young Adult Collective Power Hour! Ages 18–40 w/Myositis? Join our private, supportive Zoom session, no pressure to talk or be on camera. Connect, share, or just listen. Register now: understandingmyositis.org/ev… #MSU #YACollective #MyositisSupport
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From the Heart Support TODAY on Clubhouse! Support & connect w/ your #myositis family! Join us on Clubhouse today and every Sunday at 7 PM ET / 6 CT / 5 MT / 4 PT - Come as you are. Learn more and join Clubhouse at: understandingmyositis.org/ev… #myositissupport #MSU
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#MyositisSupport Gets Moving on Clubhouse TODAY at 1 PM ET / 12 CT / 11 AM MT / 10 AM PT. We create individualized movement/protein plans, engage w/ support partners, and join our weekly group to discuss understandingmyositis.org/ev… #MyositisMovement #myositis #inflammatorymyopathy
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If you are living with #myositis, no matter which type, join us on Zoom for our Monthly Wednesday Evening Zoom support session! Come as you are! New Time! Starts at 7 PM ET/ 6 PM CT/ 5 PM MT/ 4 PM PST. For details and to register: understandingmyositis.org/ev… #myositissupport #MSU
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Women with Myositis! Join us on Zoom for a supportive group session to share challenges, hopes, and experiences. First Monday of Every Month 7 PM ET Register here: understandingmyositis.org/ev… Private, never recorded, and you can choose to listen or share. We can’t wait to connect!
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Men with Myositis Clubhouse Support Room! First Monday of the Month 7 PM ET Connect with other men living with myositis to discuss health, barriers, and shared experiences. More info: understandingmyositis.org/ev… Download Clubhouse, create an account, and join us! #MSU #myositis
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Join us TODAY for #MyositisReview, for the Myositis Community on Clubhouse! Today at 3 PM ET on Clubhouse. Myositis patients and care partners are welcome. Review books where we can escape, relax, and learn. 👉 For details, visit: understandingmyositis.org/ev… #MyositisReview
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