@NIChildHealth

The NICHC is a group of leading charities and organisations working to improve the quality of health services & holistic support for children and young people.

Joined August 2023
  • Tweets140
  • Following187
  • Followers105
45Media
In case you missed it back in June, you can watch our ‘Hidden Costs’ research launch on YouTube! 📽️ Pictured are some of the lovely families who took part. Their panel discussion stole the show and begins around 1 hour into the recording: youtube.com/watch?v=v91CjGvM…
Jane from Children’s Cancer Unit and Neil from Cancer Fund for Children stand with parents David and Sara at the steps in the Great Hall at Stormont. David and Sara hold a speech bubble sign. Printed on it is ‘NI Children’s Health Coalition calls for a Young Patients Fund Northern Ireland’.

ALT Jane from Children’s Cancer Unit and Neil from Cancer Fund for Children stand with parents David and Sara at the steps in the Great Hall at Stormont. David and Sara hold a speech bubble sign. Printed on it is ‘NI Children’s Health Coalition calls for a Young Patients Fund Northern Ireland’.

Emma from Family Fund and Rebecca hold a speech bubble sign. Printed on it is ‘NI Children’s Health Coalition calls for a Young Patients Fund Northern Ireland’. Allan stands beside Rebecca, holding their daughter Carys.

ALT Emma from Family Fund and Rebecca hold a speech bubble sign. Printed on it is ‘NI Children’s Health Coalition calls for a Young Patients Fund Northern Ireland’. Allan stands beside Rebecca, holding their daughter Carys.

Children’s Heartbeat Trust staff stand with parent Sarah at the steps in the Great Hall at Stormont. Sarah holds a speech bubble sign. Printed on it is ‘NI Children’s Health Coalition calls for a Young Patients Fund Northern Ireland’.

ALT Children’s Heartbeat Trust staff stand with parent Sarah at the steps in the Great Hall at Stormont. Sarah holds a speech bubble sign. Printed on it is ‘NI Children’s Health Coalition calls for a Young Patients Fund Northern Ireland’.

Alison from TinyLife stands with parent Hannah and her baby son, Ezra, at the steps in the Great Hall at Stormont. They hold a speech bubble sign. Printed on it is ‘NI Children’s Health Coalition calls for a Young Patients Fund Northern Ireland’.

ALT Alison from TinyLife stands with parent Hannah and her baby son, Ezra, at the steps in the Great Hall at Stormont. They hold a speech bubble sign. Printed on it is ‘NI Children’s Health Coalition calls for a Young Patients Fund Northern Ireland’.

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This afternoon Chairs @MJ_McCallister & @JoanneMorganNI, along with Joan Aiken and Raph O'Connor, were invited to meet Health Committee Chair Liz Kimmons & Deputy Chair @DannyDonnelly1. The group discussed key child health concerns in NI and funding issues for the VCS sector.
Raph O'Connor, Joanne Morgan, Joanne McCallister and Joan Aiken on the steps of Stormont after meeting with the Health Committee Chair, Liz Kimmons and Deputy Chair Danny Donnelly.

ALT Raph O'Connor, Joanne Morgan, Joanne McCallister and Joan Aiken on the steps of Stormont after meeting with the Health Committee Chair, Liz Kimmons and Deputy Chair Danny Donnelly.

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Today members of the coalition met with @allianceparty MLAs and Executive Health Committee members @NualaMcAllister & @DannyDonnelly1 to discuss the hidden costs of having a child in hospital and our call for a Young Patients Fund. Thanks to both for their support.
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Check out this wonderful profile of Coalition co-chair @JoanneMorganNI. Our campaign for a #youngpatientsfundNI and 'Hidden Costs' research are mentioned in the article. You can read the full Hidden Costs report here ⬇️ ulster.ac.uk/research/resear…

The Hidden Cost of Having a Child in Hospital in Northern Ireland

Showcasing Ulster's research in transforming health, this research was carried out with the NI Children's Health Coalition.

ulster.ac.uk
VIEWdigital@VIEWdigital22 Apr 2024
The Big Interview: A woman with a passion for tackling health inequalities and not afraid to speak out about them. @JoanneMorganNI talks to VIEWdigital editor @BrianPelan – viewdigital.org/the-big-inte…
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NI Children's Health Coalition retweeted
Joanne McCallister@MJ_McCallister19 Apr 2024
Great to represent @Chldns_Hrtbeat at @childreninhosp annual lecture in Dublin today along with colleagues from @NIChildHealth and HPS from across NI and RoI. Amazing to see our research on 'The State of Play' on display at the networking session pre-event. – at Dublin City, Ireland
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NI Children's Health Coalition retweeted
Joanne McCallister@MJ_McCallister15 Apr 2024
At the launch of @RCPCHIreland #WorriedandWaiting report this afternoon. Children waiting much longer in NI compared to other areas. In June 2023 there were over 22k children on waiting lists. Recommendations - Whole child approach; workforce strategy and improved data.
RCPCHIreland@RCPCHIreland15 Apr 2024
1/3 Today, we are launching our #WorriedAndWaiting report into the increasing outpatient waiting times for children. It calls for real systemic change to ensure CYP receive timely & effective care. 👉 rcpch.ac.uk/worried-and-wait…
Person Icon RCPCH logo with words: Worried and Waiting A Review of Paediatric Waiting Times in Northern Ireland

ALT Person Icon RCPCH logo with words: Worried and Waiting A Review of Paediatric Waiting Times in Northern Ireland

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NI Children's Health Coalition retweeted
BBC News NI
@BBCNewsNI15 Apr 2024
The number of children waiting for outpatient appointments has reached "an all-time high", a report by @RCPCHtweets has found. bbc.in/3TW9mOd

Children's waiting lists at an all-time high, report says

A new report finds waiting lists increased by 172% for general outpatient care over seven years.

bbc.co.uk
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We were pleased to attend this event earlier, and wholeheartedly support the call for the Anti-Poverty Strategy to be brought forward as a matter of urgent Executive priority (🧵1/3)
EqualityCoalition@EqualityCoal4 Mar 2024
We are launching a new report on 'Progressing an Anti-Poverty strategy for Northern Ireland' at Stormont today and renewing our call for this to be an immediate priority for the NI Executive. ➡️caj.org.uk/publications/repo…
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Families in NI are grappling with: ➡️ The 2 child limit for social security payments ➡️ A low wage economy ➡️ No Early Learning and Childcare Strategy ➡️ Inadequate paternal and carers leave These issues are compounded when a family has a seriously ill or disabled child (🧵2/3)
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An Anti-Poverty Strategy is now 18 years overdue - there can be no more delay. An investment in children & families is an investment in a better society. (🧵3/3)
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NI Children's Health Coalition retweeted
Dr Ciara Fitzpatrick@C_Fitz_1 Mar 2024
Poverty was not outlined as a priority for new Communities Minister @NIA_Communities yesterday. As civil society, we need to mobilise to push poverty up the political agenda. Please come to this event next week & join @CliffEdgeNI. #Poverty #SocialSecurity #WelfareMitigations
Cliff Edge Coalition NI@CliffEdgeNI1 Mar 2024
Poverty affects thousands across Northern Ireland and measures are urgently needed to strengthen the benefit system. We’re asking Cliff Edge members to join this discussion on tackling poverty and have their voices heard on how we can support people facing hardship.
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NI Children's Health Coalition retweeted
Northern Ireland Anti Poverty Network@NIAntiPov27 Feb 2024
We join the @EqualityCoal in urging local councils to pass motions in urgent support of an Anti Poverty Strategy that is based on objective need and aims to eradicate poverty. Councils must highlight poverty in their areas and amplify the voice of those in poverty. No more delays
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*98%* of caregivers surveyed for our own research said having a child in hospital had impacted their ability to work. This only drives families deeper into debt, poverty and stress. Read more here - bit.ly/3uIHg0m (🧵2/3)

The Hidden Cost of Having a Child in Hospital in Northern Ireland

Showcasing Ulster's research in transforming health, this research was carried out with the NI Children's Health Coalition.

ulster.ac.uk
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A #YoungPatientsFundNI would provide vital financial support for families of sick children when they need it the most. This could help keep families in work and out of poverty (🧵3/3)
A graphic of a checklist, outlining proposed eligibility criteria for a Young Patients Fund Northern Ireland. The checklist reads: ‘Family resident in NI. Child aged 0 - 18. Child has spent at least 3 consecutive nights as an inpatient or has undertaken qualifying outpatient treatment’

ALT A graphic of a checklist, outlining proposed eligibility criteria for a Young Patients Fund Northern Ireland. The checklist reads: ‘Family resident in NI. Child aged 0 - 18. Child has spent at least 3 consecutive nights as an inpatient or has undertaken qualifying outpatient treatment’

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For parents & caregivers, having a sick or disabled child can be an insurmountable barrier to high quality and well paid work. We have heard from families who have reduced their hours, taken unpaid leave and sometimes left the workforce altogether to care for their child (🧵1/3)
Action for Children NI@Actn4ChildrenNI22 Feb 2024
Today we release research into how many NI children are impacted by poverty because their families face barriers to work. These barriers include: already working maximum hours available, managing caring responsibilities, or dealing with long-term health-condition/disability
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NI Children's Health Coalition retweeted
Action for Children NI@Actn4ChildrenNI22 Feb 2024
We recommend: 1) Fix the basic adequacy of social security-too many household incomes are too low for families meet their essential needs, 2) Support families to overcome barriers to work through childcare, better support for carers & those managing health conditions/disability
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NI Children's Health Coalition retweeted
Action for Children NI@Actn4ChildrenNI22 Feb 2024
Today we release research into how many NI children are impacted by poverty because their families face barriers to work. These barriers include: already working maximum hours available, managing caring responsibilities, or dealing with long-term health-condition/disability
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"There are two emotions that the rising level of extreme poverty summon up. The first is anger. Our country is entrenching inequalities between rich and poor with little debate. The second is compassion. We must do everything we can to help those falling through the net." 👇
The Guardian
@guardian8 Feb 2024
Homes without heating, tables without food. Grinding child poverty in Britain calls for anger – and a plan | Gordon Brown theguardian.com/commentisfre…

Homes without heating, tables without food. Grinding child poverty in Britain calls for anger – and...

There are things ministers must do but also actions we can take to help fellow citizens. Both are now essential, says former PM Gordon Brown

theguardian.com
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NI Children's Health Coalition retweeted
Department of Health
@healthdpt9 Feb 2024
Health Minister Robin Swann has confirmed he will reinstate £85,000 funding for NI Children’s Hospice.
This payment is in addition to the core annual funding of £1.6m which my Department is providing directly to NICH this year. This core funding includes a £420,000 component which has not been recurrent, meaning it would have to be subject to confirmation each year. I can confirm that, going forward, this will be made recurrent, giving the Hospice greater certainty.

ALT This payment is in addition to the core annual funding of £1.6m which my Department is providing directly to NICH this year. This core funding includes a £420,000 component which has not been recurrent, meaning it would have to be subject to confirmation each year. I can confirm that, going forward, this will be made recurrent, giving the Hospice greater certainty.

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A call for participants for some very important and timely research!
This Post is from an account that no longer exists. Learn more
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We're delighted to see the re-establishment of the NI Executive. We look forward to working with MLAs and policymakers to provide vital support for families of sick children #YoungPatientsFundNI
A group of charity representatives standing on the steps in the Great Hall at Stormont. Joanne from Children's Heartbeat Trust and Alison from TinyLife are holding a sign shaped like a speech bubble. The sign reads 'Young Patients Fund'

ALT A group of charity representatives standing on the steps in the Great Hall at Stormont. Joanne from Children's Heartbeat Trust and Alison from TinyLife are holding a sign shaped like a speech bubble. The sign reads 'Young Patients Fund'

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