Improving overall health outcomes by engaging #patients, #caregivers & #families at both individual & system level. #PxEngagement #Relationships #Representation
United States
Joined March 2015
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Navigations SOC retweeted
A reminder of what we’re witnessing:
• Measles is surging
• Cyclospora has reached record levels
• New World screwworm has returned after nearly 60 years
Investing in science, surveillance, and public health is far less costly than responding to a crisis.
Navigations SOC retweeted
I can summarize my inbox daily: hundreds of messages from desperate patients or family members at the end of their rope, and advertisements for webinars about low barrier Suboxone for OUD.
Navigations SOC retweeted
Breakout session and poster submissions for ELEVATE PX are open through August 14. Share your ideas with a global community committed to advancing the human experience in healthcare.
Learn more here: cvent.me/xD50mr
#ElevatePX #PatientExperience #HumanExperience
Navigations SOC retweeted
🚨Pancreatic cancer rarely announces itself. When it is caught at the earliest stage, 5-year survival tops 80 percent. Once it spreads distantly, that drops to 3 percent.
Three specialists walk through the 7 signs that most often get dismissed as something else.
Navigations SOC retweeted
In this broad lens look at the global rare skin disease landscape, GlobalSkin, board president and mucous membrane pemphigoid patient advocate, Marc Yale, unpacks “cosmetic” labels, diagnostic blind spots and psycho‑social and financial burdens. From the WHO’s forthcoming Global Action Plan on Skin Diseases to grassroots lobbying with local legislators, Marc advocates for a future where rare skin disorders are considered a “solvable” global health priority. Read here: bit.ly/RARESkin-UCB-GlobalSk…
#RARESkin #RAREDermatology #GlobalSkin #GlobalActionPlanOnSkinDiseases
@ucb_news
@IADPO
Navigations SOC retweeted
Mighties, we know all too well what it’s like to spend time waiting—whether that’s in a physical waiting room, on hold over the phone, or virtually through telehealth. Depending on the type of appointment, where we go and how we communicate with a medical professional can look very different.
What’s the longest amount of time you’ve spent waiting to see or speak with your doctor or another medical professional for an appointment?
Navigations SOC retweeted
Iran’s hardliners think time is on their side: renewed military action spikes oil prices, hammers Gulf economies, and forces Trump to blink over domestic politics & 2026 midterms.
The Islamic Republic has run some variation of this playbook against the last 6 presidents—and won.
Trump 2.0 is different.
Iran may be underestimating how much the landscape has shifted—and how costly that misread could be, possibly a fatal miscalculation.
I think the hardliners are misreading the moment and their assumed leverage
Navigations SOC retweeted
Thank you to the Women in Government Leadership & Innovation Summit for a co-sponsored discussion by Neurocrine Biosciences and @ultragenyx on the challenges and opportunities across the rare disease journey, from diagnosis to transitions of care.
The conversation was moderated by California State Assemblymember Diane Dixon with panelists and experts in the rare disease community – Kimberly Haugstad from @RareRising_Org and Jamie Sullivan from @EveryLifeOrg for Rare Disease. The conversation explored how state leaders can create meaningful impact by elevating the voices of rare disease patients and families in policymaking. Thank you to all involved who helped make this discussion possible. #LIS2025
Navigations SOC retweeted
Jimmy Kimmel tears up while talking about Donald Trump’s victory:
“It was a terrible night for women, for children, for the hundreds of thousands of hard working immigrants who make this country great, for health care, for our climate, for science, for journalism, for justice, for free speech”
Navigations SOC retweeted
stay. No, it’s not fair bc we deserve supports and healthy cultures and our boundaries to be acknowledged.
In #TakingCareofMaya I can recognize there were concerns that did not to be addressed YET I believe that it could have been addressed far better, that many needed to tap 9
Navigations SOC retweeted
excellent #professionals work in this system forging ahead providing #care, safety, #compassion, #education while at same time rising #voice & pushing for change.
Once we are unable to do that. Once we see we are apathetic, that we do not speak out we do need to assess why we 8
Navigations SOC retweeted
The #healthcare system has abandoned patients w/ #ChronicIllness & #SeverePain.
A country that refuses to care for the sick & disabled is morally bankrupt & evil.
This is a recipe for modern day #eugenics.
Minimize symptoms.
Gaslight patient.
Deny care & dismiss patient. ⬇️
Navigations SOC retweeted
Just published - our editorial on ending racial disparities in buprenorphine access for opioid use disorder. With recent changes to federal policies on bupe prescribing & worsening overdose deaths, now is the time to use bupe as a strategy to end racial disparities.
Editorial: "Time to End Racial Disparities in Buprenorphine Access" by Rosen and @DrChinazoOASAS
buff.ly/3qzwl7e
Navigations SOC retweeted
In this month's @DalOpenThink blog, I share some of my reflections on a valuable experience I had listening to different experts talk about how we define #pain. TLDR: diverse perspectives could make for more comprehensive definitions!
Is a simple conversation enough to change how health conditions are defined? @NMacKenzie_ writes about an experience of listening to diverse voices to see #pain differently: blogs.dal.ca/openthink/excha…
#DalOpenThink #KillamLaureate
Navigations SOC retweeted
I think it is great to keep asking questions- both poll questions and also for details about what precisely happened. What did the doctor say or do?
Navigations SOC retweeted
Medicaid programs across the country are working to address the non-medical drivers of health and improve outcomes for their members. Learn how using community resource and referral platforms can facilitate the coordination process. #HRSN bit.ly/3KN6GiL @Health4Texas
Navigations SOC retweeted
Yet, the narrative is still there are too many CPP’s on opioids. If this country continues to ignore it for a few more years, there won’t be any left on opioids- how many will be dead?
Navigations SOC retweeted
Uncontrolled pain & resulting immobility put an incredible strain on the body. Treating pain and enabling patients to be more active isn’t just about physical comfort, it promotes health.
Rest in peace Becky Snyder painnewsnetwork.org/stories/…
Navigations SOC retweeted
If you have not been to a Maritime Kitchen Party, you don’t know what you are missing ! This is your perfect opportunity #ISPP2023 – at Cambridge 32, Nova Scotia
#ISPP2023 invites all attendees to attend the 3 October Maritime Kitchen Party at @Pier21. The Maritime Kitchen Party is a separately ticketed event from #ISPP2023. bit.ly/3oH0GPY
