Neuropathy Action Foundation (NAF) 501(c)(3) dedicated to ensuring patients have the resources, information + tools necessary to improve their quality of life.
California
Joined July 2014
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Too often, insurance denials stand between patients and care. But new data shows that when patients appeal denials, they often succeed, with some plans reversing their decision up to 90% of the time.
Read more here.
tinyurl.com/32xc3vcb
#NAF20Years
#20YearsOfAdvocacy
For this #MilestoneMonday, we’re looking back at NAF’s 5th Annual Neuropathy Action Awareness Day, where more than 300 patients and health care professionals gathered to advocate for better neuropathy care and access.
Read the press release here.
tinyurl.com/3pzxh97a
NAF is at @IgNSorg’s Annual Conference in Las Vegas, learning and sharing ideas to move Ig therapy and biologics forward.
Our founder and president, Dominick Spatafora, is moderating a session on patient advocacy at 5:30PM. If you're attending, don't miss this conversation!
Neuropathy Action retweeted
Medicare open enrollment is here! From now to Dec. 7, you can:
1. Switch from a Medicare Advantage plan to original Medicare (Parts A & B), or vice versa.
2. Switch between Medicare Advantage plans.
3. Switch between Medicare drug plans (Part D).
bit.ly/4iifBJE
Neuropathy Action retweeted
For millions of patients worldwide, plasma-derived medicines are more than treatments. They're a lifeline.
A recent global survey of patients, caregivers, providers, and advocates found that 69% noticed improvements within months of starting plasma-derived medicines, and 77% expressed gratitude for the donors who make these treatments possible.
Read more of the survey results here.
tinyurl.com/3ecsa35v
When our president, Dominick Spatafora, was denied access to IVIG by his insurer, he experienced firsthand the barriers patients face in obtaining medically necessary treatment.
That challenge led to the creation of NAF and a mission to educate the public about neuropathy while advocating for access to individualized care.
Watch his story here.
tinyurl.com/5c33sxyx
#NAF20Years
#20YearsOfAdvocacy
#NeuropathyAwareness
This #MilestoneMonday meet Debbie Zirpolo.
Her story of living with MMN is a powerful reminder that access to treatment can change lives. That is why NAF continues to fight for the access to care and medications patients need to thrive.
Watch here.
tinyurl.com/2jd962em
Thank you, @CAgovernor for signing #AB2009, authored by @PhillipChenCA & @AsmSolache!
This is an important step towards modernizing CA’s plasma donation center regulations and will ensure that patients have timely access to plasma-derived medicines when they need them.
When a key vote is approaching, your voice matters. Learn how to call your legislator’s office as a direct way to share your perspective, explain why an issue matters to you, and ask for action using our Advocacy Empowerment Tools.
Learn more here.
tinyurl.com/2mph9hk5
History is shaped by those who challenge the status quo.
This #LGBTQHistoryMonth, we honor the patients, advocates, and allies whose efforts have advanced health equity for #LGBTQIA+ communities and improved lives, including for those living with neuropathy.
#NAF20Years
We’re thrilled to see the @FDA advisory committee recognize the potential of Galleri and the importance of continued innovation in cancer detection #MCED. tinyurl.com/4semn3b8
Navigating insurance barriers can add another challenge to managing a chronic condition.
Knowing your options and advocating through an appeals process can make a difference when seeking care.
Read more from the @WSJ.
tinyurl.com/37hhfnvx
#NAF20Years
#20YearsOfAdvocacy
The first-ever Neuropathy Action Awareness Day brought the neuropathy community together for a day focused on awareness, education, and patient empowerment.
Laying the foundation for an annual movement, NAF remains committed to supporting individuals living with neuropathy and their loved ones.
Read more here.
tinyurl.com/uafb8s59
#MilestoneMonday
#NAF20Years
#20YearsOfAdvocacy
#NeuropathyAwareness
Neuropathy patients need lower out-of-pocket costs, not more uncertainty. We urge @CMSGov to ensure any savings reach patients, strengthen access to covered therapies, and preserve patient-provider decision-making.
Read our statement in response to CMS's final GLOBE Model.
“After 20 years, NAFs mission remains deeply important because a neuropathy diagnosis is often the precursor to a search for answers and hope,” said Sarah Fullerton, Secretary of our Board of Directors.
Hear more from Sarah about what NAF’s mission means to her!
A recent @Medscape article highlights persistent disparities in access to GLP-1 medications and the need for affordable, accessible medications, and comprehensive care for conditions like diabetic neuropathy to help reduce health risks.
Read more here.
tinyurl.com/2y4p2byk
Great news for California patients! #AB2009 by @PhillipChenCA and @AsmSolache was signed by @CAgovernor. The bill will modernize source plasma donation regulations and support a more reliable supply of plasma-derived medicines for those who depend on them.
Neuropathy Action retweeted
#AB2009 was signed!
Thanks to @CAgovernor, and @PhillipChenCA & @AsmSolache's leadership, California now has a path to strengthen its plasma collection infrastructure and help ensure reliable access to plasma-derived medicines.
Read our statement here.
tinyurl.com/7h5ktfex
#CalPlasma
#DonatePlasma
#PlasmaSavesLives
#PlasmaPowerStory
