former library director retired due to #Lyme #tickborne #Tularemia #Bartonella #encephalitis #ME/CFS #PEM
Joined January 2015
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Blake Henderson retweeted
Millions of chronically ill patients have been living for decades with persistent infections that no one is looking for.
Chronic fatigue. Unexplained pain and stiffness. Brain fog. Shortness of breath. Palpitations. Disability.
The official position remains stuck on a simplistic formula:
đ âacute infection + short course of antibiotics = cure.â
But the biological evidence shows a different reality:
đŹ Active DNA and RNA in tissues
đŹ Biofilms that protect the microbes
đŹ Persistent forms of Bartonella, Babesia and Borrelia (the â3 Bsâ) and other co-infections
âŚthat do not respond to short-course monotherapy.
Studies that repeatedly investigate symptoms and other consequences in the body are preferentially funded, while research aimed at eradicating the root cause is blocked.
The result: patients who remain ill for decades without an etiological diagnosis, labeled as âsomatization,â chronic fatigue syndrome (ME/CFS), fibromyalgia, multiple sclerosis, stiff-person syndrome, or psychiatric disorders⌠while combination protocols already used in clinical practice (such as those of Dr. Horowitz and other leading physicians) wait for a formal evaluation that never arrives.
In Australia the situation has reached extremes. To the denial of persistent infections has been added the defunding of etiological research and a deterrent effect on physicians, so that many have chosen to avoid diagnosing these infections or to treat them in silence. The price: thousands of patients without access to treatments directed at the cause.
This is no longer just a scientific debate.
It is a bioethical failure that prolongs the suffering of millions.
We have published several papers on this topic:
đ researchgate.net/publicationâŚ
researchgate.net/publicationâŚ
researchgate.net/publicationâŚ
researchgate.net/publicationâŚ
researchgate.net/publicationâŚ
đ¤ Made with AI
Blake Henderson retweeted
my deepest darkest kinkiest most fucked up fantasy is that thereâs a hospital with all the doctors I need in one spot and they all communicate and are truly invested in me and work together and figure it out and I get better. and its $35
Blake Henderson retweeted
Don't talk about our personal lives a lot, but today, my wife is having such a bad day that she is being forced to sit in a dark room with sunglasses on.
Folks do NOT understand how many levels of suck can exist until they've seen it or experienced it themselves. :( #oubliette
Blake Henderson retweeted
The Olympic sprinter now bedbound for 22 hours a day bbc.in/3TWaqpx
Blake Henderson retweeted
I continue to see examples of viral insults kicking off second order (and beyond) impact to the immune, neurological and other systems ... "Kompany had been suffering with a viral infection that was affecting his legs over the past week"
espn.com/soccer/story/_/id/5âŚ
Blake Henderson retweeted
đđź Liz Horn, PhD reporting today on @ilads_lyme!
YES, you heard right - Bartonella was found in the brains of @LymeBiobank samples, while Lyme was found in placentas. Liz will be reporting from the ILADS conference all weekend. Tune in for the latest updates. đ @TickBootCamp
Blake Henderson retweeted
Iâm so sad for her, and hope she gets the best testing for all Tick Borne Illnesses, including Bartonella. I was originally told MS, until a mainstream hospital had a curious enough doctor to cast the net wide: Borrelia, Babesia, Bartonella. Symptoms dramatically improved with accurate diagnosis & treatment.
Blake Henderson retweeted
Ok. This is a wild story. Christina Applegate says she just learned she was *misdiagnosed* with MS and is now told by her docs she doesnât and never did have it. Doctors donât know what brought on her symptoms in 2021 and she continues to deteriorate.
Based on the timing of her health spiral (again 2021), avail info that I have seen on her case, and published Covid and Covid vaccine data, I have to think she was set off by one/both of them which activated latent stealth pathogens like bartonella / lyme/ EBV/ poss unearthed toxic mold intolerance. This is not uncommon. Everything has a cause.
I have witnessed a significant number of previously healthy people go down fast from COVID / COVID vax, esp with neurological symptoms. In spite of these harms being published, the public and even the medical community seems largely unaware of the breadth of evidence of potential multi-systemic damages. I did reach out to Christina several years ago & recâd she look for TBDs and she thanked me but I have no idea if she followed through. I hope she will now.
What are your thoughts?
Blake Henderson retweeted
Beth Dobbin has revealed she now spends more than 22 hours a day in bed as she battles myalgic encephalomyelitis (ME).
The 32-year-old, who represented Great Britain at the Tokyo Olympics in 2021, told BBC Sport that she wanted to raise awareness of the condition even though the interview itself could set her back for months.
ME is a chronic, fluctuating disease that causes symptoms including sleep problems, pain, difficulties with thinking and memory.
Even everyday activities, such as having a conversation or being exposed to bright lights or loud noises, can trigger a âcrashâ, with symptoms lasting anywhere from 24 hours to several months.
There is currently no known cure for ME and no specific treatment.
Read more đ athleticsweekly.com/news/betâŚ
Blake Henderson retweeted
I love when I tell someone I donât work and they start trying to find things for me to do. Whether itâs a job or a book to read or somethingâŚI donât lack IDEAS. I lack my HEALTH.
Blake Henderson retweeted
I cried at my desk today.
I was reviewing applications for one of our @RenegadeRes projects, SIGNAL, which will lend therapeutic devices to people with ME/CFS and Long COVID.
I was working in a spreadsheet and it hit me that each row is a real person with the columns giving me hints of how much their lives have been affected. Many are in their 80s. Some are just starting their adult lives and are bedbound. One got sick when they were 6 years old ⌠in 1955! So many are âvery severeâ, dependent on care. Triggered by infections, car accidents, environmental toxins, and more. All over the US.
I imagined my own story there: 42 years old ⢠ME/CFS ⢠multiple triggers ⢠symptoms since 2006
I scrolled down⌠100 rows⌠200 rows⌠so many people⌠and there are tens of millions more out there.
Ugh. This work is heavy.
But then I felt a hint of hope. In a month I might be hearing from people in this spreadsheet telling me that the device is helping them. đ¤ I know that the devices wonât work for everyone and wonât be a cure, but even if it just works for a few in this group, even just one, even just a little, it matters. đ¤
Blake Henderson retweeted
MS is caused by BORRELIA INFECTION.
Proper testing is critical.
1) Borrelia infection may involve different species of Borrelia.
Borrelia Burgdorferi (Lyme) is prevalent in the Northeast and upper Midwest.
Relapsing Fever Borrelia is prevalent in Texas.
Testing for Lyme Disease in Texas results in a negative test and therefore an erroneous conclusion ruling out Neuroborreliosis, but testing for Relapsing Fever Borrelia will be positive and confirms the diagnosis of Neuroborreliosis.
I prefer to use a lab dedicated to Tick Borne Diseases whose testing includes many different species of Borrelia.
2) The tests measure the patient's blood for antibodies against the invading spirochete.
3) The tick bite may go unnoticed in 50% of those infected.
4) Approximately 3 months after the inoculation (tick bite or sexual transmission) the spirochete becomes a cyst which is sequestered deep in tissue and impenetrable to antibiotics. The immune system is not exposed to these sequestered spirochetes and therefore, no antibodies are produced. The testing for antibodies will be negative or muted.
5)Â Pre-test provocative antibiotics will prevent false negative results.
These antibiotics must include a "cyst buster" to allow the antibiotics to penetrate to kill the spirochete.
Typical antibiotics include Flagyl or Tindamax to open the cyst and Azithromycin or Ceftin to kill the spirochete.
These are administered daily for 28 days pre-testing.
6) The provocative antibiotics expose the spirochete to the immune system resulting in robust antibody production which is then measured on the testing.
I have encountered numerous patients whose initial tests for Borrelia are negative but after the provocative antibiotics the same tests performed in the same lab become very positive.
"Provocative Antibiotics" to expose the Lyme spirochete to the immune system in order to get a robust antibody production. The antibodies will be measured on the definitive tests.
The specific antibiotics:
1) Azithromycin 500mg or Ceftin 1000mg
2) Flagyl 500mg or Tindamax 500mg
Take both daily for 28 days before any testing.
Regarding the testing:
Two labs -1) LabCorp - they have collecting stations in every city.
Order "CD 57".
2) Igenex Lab - They have a website - the physician contacts them and they will send a collecting kit and a FedEx mailer.
Order Igenex panel #TBD 4 BL (This is very comprehensive and includes Borrelia and co-infection).
Please send me copies of all of the results from both labs because often subtle abnormalities are ignored.
Alfred Miller,M.D.,F.A.C.R.
Retired
Mayo Clinic trained Physician
Private practice Internal Med./Rheumatology for 40 years
Retired Full Professor, Department of Medicine, Clinical Faculty, Univ. Of Texas Medical School
210 Chester St.
San Antonio, Texas, 78209
[email protected]
210 378 3030
Blake Henderson retweeted
Please consider Borrelia infection.
Proper testing is critical.
1) Borrelia infection may involve different species of Borrelia.
Borrelia Burgdorferi (Lyme) is prevalent in the Northeast and upper Midwest.
Relapsing Fever Borrelia is prevalent in Texas.
Testing for Lyme Disease in Texas results in a negative test and therefore an erroneous conclusion ruling out Neuroborreliosis, but testing for Relapsing Fever Borrelia will be positive and confirms the diagnosis of Neuroborreliosis.
I prefer to use a lab dedicated to Tick Borne Diseases whose testing includes many different species of Borrelia.
2) The tests measure the patient's blood for antibodies against the invading spirochete.
3) The tick bite may go unnoticed in 50% of those infected.
4) Approximately 3 months after the inoculation (tick bite or sexual transmission) the spirochete becomes a cyst which is sequestered deep in tissue and impenetrable to antibiotics. The immune system is not exposed to these sequestered spirochetes and therefore, no antibodies are produced. The testing for antibodies will be negative or muted.
5)Â Pre-test provocative antibiotics will prevent false negative results.
These antibiotics must include a "cyst buster" to allow the antibiotics to penetrate to kill the spirochete.
Typical antibiotics include Flagyl or Tindamax to open the cyst and Azithromycin or Ceftin to kill the spirochete.
These are administered daily for 28 days pre-testing.
6) The provocative antibiotics expose the spirochete to the immune system resulting in robust antibody production which is then measured on the testing.
I have encountered numerous patients whose initial tests for Borrelia are negative but after the provocative antibiotics the same tests performed in the same lab become very positive.
"Provocative Antibiotics" to expose the Lyme spirochete to the immune system in order to get a robust antibody production. The antibodies will be measured on the definitive tests.
The specific antibiotics:
1) Azithromycin 500mg or Ceftin 1000mg
2) Flagyl 500mg or Tindamax 500mg
Take both daily for 28 days before any testing.
Regarding the testing:
Two labs -1) LabCorp - they have collecting stations in every city.
Order "CD 57".
2) Igenex Lab - They have a website - the physician contacts them and they will send a collecting kit and a FedEx mailer.
Order Igenex panel #TBD 4 BL (This is very comprehensive and includes Borrelia and co-infection).
Please send me copies of all of the results from both labs because often subtle abnormalities are ignored.
Alfred Miller,M.D.,F.A.C.R.
Retired
Mayo Clinic trained Physician
Private practice Internal Med./Rheumatology for 40 years
Retired Full Professor, Department of Medicine, Clinical Faculty, Univ. Of Texas Medical School
210 Chester St.
San Antonio, Texas, 78209
[email protected]
210 378 3030
Blake Henderson retweeted
Please view brief videos:
youtube.com/channel/UCD19kTsâŚ
the-rheumatologist.org/articâŚ
Proper testing is critical.
1) Borrelia infection may involve different species of Borrelia.
Borrelia Burgdorferi (Lyme) is prevalent in the Northeast and upper Midwest.
Relapsing Fever Borrelia is prevalent in Texas.
Testing for Lyme Disease in Texas results in a negative test and therefore an erroneous conclusion ruling out Neuroborreliosis, but testing for Relapsing Fever Borrelia will be positive and confirms the diagnosis of Neuroborreliosis.
I prefer to use a lab dedicated to Tick Borne Diseases whose testing includes many different species of Borrelia.
2) The tests measure the patient's blood for antibodies against the invading spirochete.
3) The tick bite may go unnoticed in 50% of those infected.
4) Approximately 3 months after the inoculation (tick bite or sexual transmission) the spirochete becomes a cyst which is sequestered deep in tissue and impenetrable to antibiotics. The immune system is not exposed to these sequestered spirochetes and therefore, no antibodies are produced. The testing for antibodies will be negative or muted.
5)Â Pre-test provocative antibiotics will prevent false negative results.
These antibiotics must include a "cyst buster" to allow the antibiotics to penetrate to kill the spirochete.
Typical antibiotics include Flagyl to open the cyst and Azithromycin or Ceftin to kill the spirochete.
These are administered daily for 28 days pre-testing.
6) The provocative antibiotics expose the spirochete to the immune system resulting in robust antibody production which is then measured on the testing.
I have encountered numerous patients whose initial tests for Borrelia are negative but after the provocative antibiotics the same tests performed in the same lab become very positive.
"Provocative Antibiotics" to expose the Lyme spirochete to the immune system in order to get a robust antibody production. The antibodies will be measured on the definitive tests.
The specific antibiotics:
1) Azithromycin 500mg or Ceftin 1000mg
2) Flagyl 500mg
Take both daily for 28 days before any testing.
Regarding the testing:
Two labs -1) LabCorp - they have collecting stations in every city.
Order "CD 57".
2) Igenex Lab - They have a website - the physician contacts them and they will send a collecting kit and a FedEx mailer.
Order Igenex panel #TBD 41 (This is very comprehensive and includes Borrelia and co-infection).
Please send me copies of all of the results from both labs because often subtle abnormalities are ignored.
Alfred Miller,M.D.,F.A.C.R.
Retired
Mayo Clinic trained Physician
Private practice Internal Med./Rheumatology for 40 years
Retired Full Professor, Department of Medicine, Clinical Faculty, Univ. Of Texas Medical School
210 Chester St.
San Antonio, Texas, 78209
[email protected]
210 378 3030
Blake Henderson retweeted
Imagine being so fucking privileged⌠that you can alert, in writing⌠a huge group of people⌠that youâre drugging and raping a woman⌠invite them to join in⌠and have zero fear of any consequenceâŚ
Absolutely sickening
Blake Henderson retweeted
You can get used to pain.
You can get used to fatigue.
Iâm not sure you ever really get used to the fear that comes with having so many things go wrong with your body at once and not being able to stop it any of it.
Blake Henderson retweeted
Hey, @etihad - Your cabin manager on EY16 put a passengerâs life at risk today. There as a medical emergency near my seat. I, a quadruple board certified physician (who happens to be a female), saw the commotion and immediately responded. 1/
Blake Henderson retweeted
!0 Alzheimerâs brain specimens studied from the Harvard brain bank at Mass General Hospital revealed 7 0f the 10 contained Borrelia.
70% of these patients were missed diagnosed !!!!!
Blake Henderson retweeted
Mild - prisoner of one's expectations
Moderate - prisoner of one's home
Severe - prisoner of one's body
Very Severe - prisoner of one's mind
Blake Henderson retweeted
underwent strict bed rest for 60 days. More direct physiological proof of the biological basis for PEM and a timely reminder that you cannot think your way out of PEM. You cannot fix vascular and mitochondrial dysfunction by treating "negative feelings and illness beliefs"
3/