Standardizing outcomes for use in rheumatology clinical trials around the world

Canada
Joined August 2013
Honored and humbled to be inducted as a Master at this year’s #ACR24 #ARPRheum annual meeting. So great to connect with so many who helped me ‘sprout’ including @jhrheumatology @McGillMed @Arthritis_ARC @earlyarthritis @OMERACT in DC, and be able to stay with my daughter!
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NEW RESEARCH—Development and validation of an @OMERACT ultrasound scoring system for the extent of calcium pyrophosphate crystal deposition at the joint level and patient level; the scoring system is reliable on both static images and patients thelancet.com/journals/lanrh… #CPPD
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Accepted for publication: An @OMERACT review of domain reporting in Systemic Sclerosis related raynaud's phenomenon. sciencedirect.com/science/ar…
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OMERACT retweeted
🧑‍🤝‍🧑 To support patients, caregivers, and healthcare professionals in managing #rheumatic and #musculoskeltal diseases (RMDs), #EULAR produces Lay versions of its Recommendations. 🌍EULAR's Lay summaries and translations can be found here 👉pulse.ly/76cxbme0vt
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✋With only 1 week left until the #CORA2023 abstract submission deadline, you’ve still got time to be part of the scientific program! 🗓 Submit your entry by October 12 and join a focused and dedicated #autoimmunity community. Link to submit 👉 bit.ly/3Re5N3o
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🔽 New ASAS-OMERACT core set domains for clinical trials @ARD_BMJ @Official_ASAS @OMERACT 🔵 We should have a transcultural adaptation of the instruments for differents countries/continent in order to have representation of all patients in RCT 🌎🌍🌏
New recommendations for ASAS core instruments to be used in #axSpA clinical trials published ard.bmj.com/content/early/20…
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The manuscript of one of the most challenging yet rewarding projects is out: Patient perspectives on long-term outcomes in rheumatoid arthritis. A #qualitative study from the .@OMERACT patient outcomes in longitudinal studies working group #Rheumatology sciencedirect.com/science/ar…
Do you have Raynaud’s phenomenon or digital ulcers due to scleroderma? Tell us what you think should be measured in clinical trials of new treatments for these conditions at delphimanager.liv.ac.uk/RPDU… (works best on desktop or iPad)
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Seminars in Arthritis and Rheumatism at the #ACR21 meeting: @lynmarch1 recognizing her involvement in @OMERACT as a highlight of her career. See our October 2021 issue for new OMERACT content. sciencedirect.com/journal/se…
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Inspiration from Lyn March @ACRheum. What an amazing woman. I am in awe. @rheum_cat @OMERACT @Drbeckyg
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Article in press: Michigan hand OA questionnaire was endorsed by @OMERACT for measurement of hand function in OA. sciencedirect.com/science/ar…
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As CEO of @IFAiArthritis - the org the former International Still's Disease Foundation dissolved into - I'm proud to be the current Patient Research Partner (PRP) on the AOSD @OMERACT Working Group. Awareness to all this #Stillsday !
The new @OMERACT Adult-Onset #Stillsdisease Working Group would like to send our well wishes to all those affected by Stills. #Stillsday Those dx'd w/ Still's learn more about getting involved w/OMERACT: omeractprpnetwork.org/
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Article in press: "The ASAS-OMERACT core domain set for AS has been updated into the ASAS-OMERACT core domain set for axSpA" @OMERACT sciencedirect.com/science/ar…
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Accepted for publication: An @OMERACT working group was created and met at #OMERACT2020 to start to establish core domain sets in chronic nonbacterial osteomyelitis and SAPHO. @rheumed sciencedirect.com/science/ar…
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Accepted for publication: Work from @OMERACT looking at two whole-body MRI scores for the hip/pelvis region in spondyloarthritis. See below image: sciencedirect.com/science/ar…
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Accepted for publication: Including patient preferences in trial disease was considered a priority in this @OMERACT Special Interest Group survey. sciencedirect.com/science/ar…
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Accepted for publication: Gadolinium-enhanced T1-weighted hand MRI was more reliable for detecting hand synovitis than proton density-weighted MRI (non gadolinium). Work from the @OMERACT MRI special interest group. sciencedirect.com/science/ar…
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BJ: @sgbridgewater, @ndosie @prppam and @Robsonjo4 are CHCR representatives presenting at #EULAR21 along with colleagues from the @OMERACT Glucocorticoid Working Group. Do check out their work - international research to explore the impact of glucocorticoids on quality of life.
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Article in press: "The new OMERACT ultrasound definition for chronic vasculitis of the AA in GCA revealed a good to excellent inter- and intra-reader reliability in a web-based exercise of experts." @OMERACT sciencedirect.com/science/ar…
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Replying to @FDA
@US_FDA and @ArthritisFdn co-sponsoring an important event to the #osteoarthritis community. Register Here: web.cvent.com/event/cf02bd36… @FDACBER @FDACDERDirector @Tuhina_Neogi @FPLongobardi @david_felson @OARSInews @ali_mobasheri @AlisaVidulichAF @OMERACT
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