OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
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ALT Solve M.E. action alert on a deep teal background. Headline: Take action by Friday. Text: NIAID has proposed eliminating its Division of Clinical Research, the infrastructure behind clinical trials, on a five-day comment window. Comment by Sept 18.
![Tom Kindlon's ME CFS & related page: News, Research and more is feeling sad
.
I've just changed my social media profiles: I have now spent 32 years severely affected with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. In my case, I have been largely housebound with dozens of debilitating symptoms since the age of 22 (i.e. nearly 60% of my life). [I first became ill at age 16, 37.5 years ago, but was initially less severely affected but was undiagnosed].
I'm one of millions around the world.
We need more public and private money to make research progress soon, the quicker the better: my life and the lives of others are passing by.
For anyone interested, here's a list of ME/CFS research funds: https://europeanmecoalition.com/resources-for-researchers/ . A longer list of research initiatives is here, though some of those are not looking for funds from the public.
https://me-pedia.org/wiki/Category:Research_initiatives
Here's my story as told in the Irish Independent in 2015: 'No](https://pbs.twimg.com/media/HQUlDqiXcAA7051.png?name=orig)
ALT Tom Kindlon's ME CFS & related page: News, Research and more is feeling sad . I've just changed my social media profiles: I have now spent 32 years severely affected with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. In my case, I have been largely housebound with dozens of debilitating symptoms since the age of 22 (i.e. nearly 60% of my life). [I first became ill at age 16, 37.5 years ago, but was initially less severely affected but was undiagnosed]. I'm one of millions around the world. We need more public and private money to make research progress soon, the quicker the better: my life and the lives of others are passing by. For anyone interested, here's a list of ME/CFS research funds: https://europeanmecoalition.com/resources-for-researchers/ . A longer list of research initiatives is here, though some of those are not looking for funds from the public. https://me-pedia.org/wiki/Category:Research_initiatives Here's my story as told in the Irish Independent in 2015: 'No
ALT Portraits of six healthcare and research professionals, including Solve M.E. VP of Scientific Programs Dr. Jessica Maya, are featured in an ad for a Severe ME/CFS Awareness Month event titled 'Coffee with a Clinician'.
ALT StudyME logo above a photograph of three researchers in lab coats examining a specimen, with test tubes and a microscope. URL: http://www.omf.ngo/studyme
ALT Portraits of six speakers featured in a 'Coffee with a Clinician' event for Severe ME/CFS Awareness Month. Pictured from left to right 1st row: Amy Mooney (Bateman Horne) , Laurie Jones (MEAction), Danielle Meadows (Open Medicine Foundation) 2nd row: Emily Taylor (Solve M.E.) , Stoo Brown (WIMEL), and Clayton Powers (moderator) Text at top: "Coffee" with a clinician in recognition of Severe ME/CFS Awareness Month
ALT Logos of Bateman Home Center, Solve M.E., OMF, and #ME Action promoting ME/CFS Awareness Month with hashtag #UnitedForME. Text: Together, we're amplifying community voices for ME/CFS Awareness using #UnitedForME
ALT Image with lots of logos of ME/CFS charities
ALT Four organization logos above text: Together, we're amplifying Severe ME voices with one united hashtag, boxed: #UnitedForME
ALT ME/CFS Advocacy Week 2026 encourages signing letters to State Medical Boards and Chief Medical Officers to increase advocacy voices.
ALT Graphic with photos sharing pacing and management guides from MEAction. Text: Adult: #MEAction created the original Pacing and Management Guide early in 2020 in anticipation of those who would develop infection-associated chronic disease... Pediatric: Developed in conjunction with Long COVID Families, this guide is oriented toward caregivers of kids and teens... Clinician: Developed in conjunction with Patient-Led Research Collaborative, this guide is a fully-referenced resource...
ALT Graphic urging Congress to transform ME/CFS research, outlining Solve M.E.'s 3 appropriations asks for FY27.
ALT Announcement for ME/CFS Advocacy Week 2026 from March 23 to 27 with upward arrows and a megaphone graphic. Megaphone in top corner. Solve M.E. logo and MEAction logo under each arrow.