International software company providing healthcare IT solutions to Health Executives, Patient Organisations & Pharmaceuticals. #evidenceforhealthcare
Dublin, Ireland
Joined April 2014
- Tweets820
- Following287
- Followers390
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Openapp - an IQVIA business retweeted
We had a great day in Cork on Tuesday, meeting with our friends at @SkinRegs to share learning, research & talking all things registries!
Openapp - an IQVIA business retweeted
It’s the perfect weather for a park stroll, and our GeoFindIt knows just where to go 🍃🚶♂️
Join us on a sunny exploration as we uncover the best nearby parks for today’s outdoor adventure.
Download our GeoFindIt app now 👉 geodirectory.ie/products-ser…
Openapp - an IQVIA business retweeted
Unveiling Q2 2023 Irish Property Trends🏡
Discover the latest numbers, trends, and insights shaping the future of #IrishRealEstate! From rising #ConstructionRates to changing #Vacancy figures, it's all here 📊🏢
Read our latest blog ow.ly/KTxo50PCgkT
Openapp - an IQVIA business retweeted
Save the date--
Sunday, September 17, 2023
join.ctf.org/2023chlasymposi…
NF1 Medical Symposium, hosted by Children's Hospital of Los Angeles, NF California and CTF
8:30am-3:00pm PT
Openapp - an IQVIA business retweeted
GeoDirectory's latest Residential Buildings Report found that there are 21,134 #derelict units nationwide, with Connaught accounting for the highest units at 37.1% 🏚️
Access the full report 👉 ow.ly/GeBb50PzqL3
OR read via @RTE_PrimeTime rte.ie/news/primetime/2023/0…
Openapp - an IQVIA business retweeted
Our residential property report found the number of buildings under construction in Ireland increased by 2% in Q2 2023, compared to last year.
⬆️ Co. Dublin had the highest activity
⬇️ Co. Leitrim had the lowest activity
Learn more here: ow.ly/bIuz50PqC3C
Openapp - an IQVIA business retweeted
Don't forget to join us on our next virtual NF2 Meetup on Thursday, August 3 at 7 PM ET!
Link to register:
ctf.zoom.us/meeting/register…
Live captioning will be available. #EndNF #NF2
Mark your calendar for our next virtual NF2 Meetup on Thursday, August 3 at 7 PM ET for a presentation of the NF2-related research from the 2023 NF Medical Conference.
Please join us by registering here: ctf.zoom.us/meeting/register…
Live captioning will be available. #EndNF #NF2
Openapp - an IQVIA business retweeted
A fantastic report on the recent @cf_ireland annual conference. We were delighted to celebrate with you and share some of the data from our 20 year report!
Ms Liz Jacques, Regional Development Officer, Cystic Fibrosis Ireland, reports on the organisation’s recent Annual Conference
@cf_ireland @CFRegistryIE
#cysticfibrosis
ow.ly/J4w450OZMvL
Openapp - an IQVIA business retweeted
Rare is many. Rare is strong. Rare is proud.
300,000 people in Ireland - RARE IS NOT RARE #ShareYourRare #RareDiseasesIRL
Openapp - an IQVIA business retweeted
The NF Summit is starting! This event brings together NF patients and families, researchers, clinicians, patient advocates and supporters!
Thank you to our sponsors: Alexion, NFlection and SpringWorks, Colbeck and Recursion, and B the Difference!
#endNF
Openapp - an IQVIA business retweeted
And that’s a wrap! Thank you all for another amazing event. We’ll see in 2024 in Boston! #WorldOrphanUSA
Openapp - an IQVIA business retweeted
Our morning panel is a conversation about policy and access challenges for #raredisease around the world #WODC2023 #WorldOrphanUSA @OrphanConf
Openapp - an IQVIA business retweeted
Happening now: FDA commissioner Robert M. Califf & National Organization for Rare Disorders‘ CEO Peter Saltonstall. #WorldOrphanUSA
Openapp - an IQVIA business retweeted
I look forward to presenting #RareDisease #PPI focused research programmes at the 5th annual conference “Health for All” today 19-20 of April 2023 @LSMUniversity #Kaunas #Lithuania TO SUPPORT THE KNOWLEDGE AND INNOVATIONS OF RARE DISEASES! @RAiNAllIreland @UCD_Research
Openapp - an IQVIA business retweeted
More @CFRegistryIE 2021 annual report stats - CFTR Modulator therapy📊
Of 1,293 individuals with clinical visit data in 2021:
👉 76.7% were taking CFTRm
👉 18.1% were eligible for but not taking CFTRm
👉 5.2% were ineligible for CFTRm
#CysticFibrosis #Registry
Openapp - an IQVIA business retweeted
Sanjeev Luther, CEO of Cornerstone Pharmaceuticals and Lisa Safarty, VP of Community Engagement at NORD discuss “Understanding the Patient Barriers Within Rare Disease” at the Rare Disease Innovation & Partnership Summit. #RareDiseaseSummit @CornerstonePhar @RareDiseases
Openapp - an IQVIA business retweeted
At today’s Rare Disease Innovation and Partnership Summit, EURORDIS Health and Social Science Senior Project Manager, Edith Gross, spoke on behalf of @Screen4Care about the potential of public-private partnerships when steered by the patient voice.
ALT Quote from Edith Gross speaking at the Rare Disease Innovation and Partnership Summit for Screen4Care.
Openapp - an IQVIA business retweeted
Let's help our friends at @NiemannPickUK win the "People's Choice Award" at this year's @SmileyCFA - it's quick and easy to vote:
smileycharityfilmawards.com/…
@NP_Canada @NiemannPickOz @niemann_pick @NPC_Argentina @myraredisease @eurordis
#shortfilm #awareness #community #inpdr
2 DAYS LEFT to vote @NiemannPickUK as People's Choice Award @SmileyCFA We're proud to even be Finalists, however this would be HUGE for awareness of rare diseases - thanks! @GeneticAll_UK @CheckOrphan @RareDiseases @rarediseaseuk @RareDR @RareRevolutionM
smileycharityfilmawards.com/…
Openapp - an IQVIA business retweeted
Our Q42022 Commercial Property Report shows the national #vacancy rate for commercial buildings is at its highest since our reports began in 2013!🏢🌇
For more information on Ireland's commercial property market, please email your interest to [email protected]
#Data #Vacant
Openapp - an IQVIA business retweeted
We are delighted to feature in this month's @BusinessPlusMag, where Dara takes us through a PESTEL review and some noteworthy legal challenges in 2023!
You can find us in your copy on page 41!
#PESTEL #Data #Ireland
