Researcher, policy wonk, data champion. Mother, citizen of the world, lover of the great outdoors. Happiest up a hill or on a bike.

South Oxon
Joined September 2014
Are you a family carer of someone with a severe learning disability? You can connect with others who understand through our various peer support options provided at the CBF: challengingbehaviour.org.uk/…
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Challenges of parenting children born before 24 weeks of gestation onlinelibrary.wiley.com/doi/… Good articles, challenges for children & families. Generalisability of this Swedish study for 🇬🇧/🇺🇸 tho? Family and social support was good, support economically & at school widespread
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Please have your voice heard and comment on the NEW Framework for Palliative Care. It’s vital you have your say #PerinatalPalliativeCare #ManagingUncertainty #SupportingFamilies #SupportingPerinatalTeams @NeoPallCare @NNAUK1 @Blisscharity @Tog4ShortLives @TheAPPMuk
Replying to @BAPM_Official
@BAPM_Official have released the draft Framework for Perinatal Palliative Care for consultation, important reading and a chance to give feedback to the authors bapm.org/resources/palliativ…
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Please take a look at our new Enhanced e-learningcourse, complementing the ‘Introduction to Neonatal Palliative Care’ course. Adapted from our textbook ‘Neonatal Palliative Care for Nurses’ @duncan_CNSE @gso_jones @KathEvans2 @MckeonCarter @louisewlowe @petty_julia @EmilyHarrop9
The International Children’s Palliative Care Network releases today its newest e-learning course entitled, Neonatal Palliative Care: An Enhanced Course. Find more information about the new course here ow.ly/uJRt50QihgI
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NEW: Risk factors of secondary school exclusion In our latest post, we identify three variables associated with exclusion in secondary: history of exclusion/suspension at primary, involvement with Social Care, and economic disadvantage. Read more ➡️ bit.ly/490JMhK
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My recent report has highlighted some of the distinct challenges that children with SEND face in their daily lives. Ahead of the Government's Disability Action Plan, I have made a series of recommendations with key changes that I would like to see. childrenscommissioner.gov.uk…
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Anne Pinney retweeted
We've responded to the Government's review of 20mph limits and low traffic neighbourhoods in England. Read our response: rcpch.ac.uk/news-events/news…
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I remember the introduction of Sure start many years ago. Learning from that programme and reintroducing an even better version would be a great example of how to prevent problems and thus improve long term fiscal sustainability.
PBE CEO @MattWhittakerPB describes children's services funding in England as a "false economy", in light of our latest research showing £4 in every £5 of additional spending in 2021-22 went on late intervention services. Read the full report here: probonoeconomics.com/the-wel…
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Please share widely..Essential study estimating palliative care needs of the neonatal population & their families , building on the regional work across @LdnNeonatal #NeonatalPalliativeCare @TrueColoursTrus @lornafraser10 @P2Pinney @ChelwestFT @BAPM_Official @cwpluscharity
Replying to @DrCBattersby
I would like to acknowledge my co-authors and full paper on data-driven approach to estimating palliative care needs @ADC_BMJ ⬇️ fn.bmj.com/content/early/202…
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Free event online: Research with children from Ukraine. Find out what works in supporting them in school with @MrAlCoates @RefugeeEdUK #teachertraining #schools #ukraine
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Anne Pinney retweeted
Good to see the start of a "health in all policies" approach in Kier Starmer's speech yesterday. The biggest levers Government has to influence health and mental health lie outside the NHS. Would be great to see more on families and the early years as this position develops.
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We have a #vacancy for a Projects and Policy intern. This is an exciting paid internship opportunity ideal for someone looking to gain experience in the learning disability field. Read more and apply here: lght.ly/5imflja #hiring
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The CBF are leading an exciting new project creatively engaging young people with severe or profound and multiple learning disabilities to be involved in policy making. Find out more and sign up to the ‘What Matters to Me’ Project Network List here: lght.ly/5of0kgk
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Anne Pinney retweeted
The Child Safeguarding Practice Review Panel has today published recommendations to improve the care, welfare and outcomes for children with disabilities and complex health needs living in residential settings. buff.ly/3MRQDBt 1/7 @educationgovuk
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Free event, booking details below 👇 Creative arts research with children from Ukraine sharing what helps them transition to school in England with @MrAlCoates @UoSResearch funded by UKRI
What works? Supporting Ukrainian children in school. Free event sharing participatory research with children to support all children from warzones 6/6/23, 2-5pm, Teams, Free with @MrAlCoates and me. Part of the #pullupachair series. Book [email protected] #Ukraine #cpd
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What works? Supporting Ukrainian children in school. Free event sharing participatory research with children to support all children from warzones 6/6/23, 2-5pm, Teams, Free with @MrAlCoates and me. Part of the #pullupachair series. Book [email protected] #Ukraine #cpd
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Anne Pinney retweeted
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#pullupachair is a FREE training resource for schools to prevent school exclusion. Co-created with 213 children and young people previously excluded from school. Take a look and please retweet @SchoolsWeek @nasen_org @ChanceUK @mission44 @ExcludedLives sunderland.ac.uk/more/resear…
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