PANDAS Canada (@PANDASCanada) profile picture

Support and Information for children's mental health disorder caused by strep. Pediatric Auto-Immune Neuropsychiatric Disorders Associated with Streptococcus

Ottawa, On
Joined September 2013
Photo by PANDAS Canada (@PANDASCanada)Photo by PANDAS Canada (@PANDASCanada)Photo by PANDAS Canada (@PANDASCanada)Photo by PANDAS Canada (@PANDASCanada)Photo by PANDAS Canada (@PANDASCanada)Photo by PANDAS Canada (@PANDASCanada)Photo by PANDAS Canada (@PANDASCanada)Photo by PANDAS Canada (@PANDASCanada)
PANDAS Canada retweeted
My Son Is Not Crazy, film re: neurological disease, PANDAS, plays May 11 bit.ly/2qXGpDx. Local boy's story: bit.ly/1WSNOit
1
5
6
Emmy nominated filmmaker Tim Sorel's My Kid is Not Crazy screening in Oakville May 13! Get your tickets! mykidisnotcrazyoakville.bpt.…
3
4
Today was an important day for our families and for Ontario. Thank you to Bob Bailey and his staff for working... fb.me/1vD8JQvF0
PANDAS Canada retweeted
Feeling like an Outsider, Alone with #PANDAS Disorder | CheckOrphan Blog ow.ly/10dse4 #RareDisease @panspandas @PANDASCanada
2
5
After spending months in a psychiatric ward, The Gallo family credit Dr. Chang and Dr. Frankovich of the Stanford... fb.me/1bajRcpTV
3
1
Proudly wore my #yellowscarf in #Parliament in support of #Canadians w/ rare disorders. @raredisorders #Canada4Rare
1
6
13
PANDAS Canada retweeted
Yellow Rare Alliance Canada scarves worn today during Q Period. Statement got a standing O! #cdnpoli #Canada4rare
3
2
New Rare Alliance Canada partnership announced at CORD. Rarealliancecanada.org
PANDAS Canada retweeted
Proud to wear yellow scarf for Rare Alliance Canada to raise awareness for rare disease @CHierden @ATCure #cndpoli
1
3
7
PANDAS Canada retweeted
TODAY: Parliament Hill photo op with MPs, @JonathanPitre2 and #raredisease community bit.ly/1XcTyBB
6
2
Dr. Susan Swedo/National Institute of Health vimeo.com/142077002 #pandas #pans #mykidisnotcrazy
Dr. Beth Latimer on #PANS / #PANDAS non-believers. #mykidisnotcrazy
PANDAS Canada retweeted
Here's background on the @CHEOhospital gene patent case. Settlement reached today: cbc.ca/1.2820211 #ottnews
11
5
#CHEO reaches settlement with Transgenomic after filing lawsuit against owners of gene patent in 2014 #ottnews @ctvottawa
PANDAS Canada retweeted
#CHEO's agreement on Long QT #gene patents sets pathway for next generation of patient care #ottnews #cdnpoli bit.ly/1RA365x
.@RobinHayeems discussing newborn screening and diagnosis today at the #rarediseaseday conference. #Canada4Rare
3
2
PANDAS Canada retweeted
Now listening Barbara Sabourin from @HealthCanada speak about the implementation of a regulatory framework for #rarediseases. #Canada4Rare
3
1
Common messaging from Minister of Health through CEO of @champlainlhin to be accountable to #patientsfirst #engagech2016 – at Ottawa, Ontario
1
3
PANDAS Canada retweeted
Patients should be seen as experts b/c unlike providers, they’re the only ones that see the entire health-care journey. #EngageCH2016
2
2