
Specialist initiative focusing on sub-set of rare GIST cancers; Paediatric Adolescent Wild-type and Syndromic GIST Email [email protected]
UK
Joined December 2010
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Selective Internal Radiation Therapy (SIRT) for SDH-Deficient GIST Demonstrates Encouraging Durable Response Rates: An International Multicenter Case Series
Dr Ramesh Bulusu, Professor Peter Hornberger and Dr Jason Sicklick have published study results:
bing.com/ck/a?!&&p=687c6c707…
PAWS-GIST News update and… belated Happy New Year!
pawsgistclinic.org.uk/paws-g…
PAWSGIST retweeted
As a teen, Kurt noticed a painful lump on his leg during football practice, and his mom made him get it checked out. Soon after he was diagnosed w/osteosarcoma. That began his journey to becoming a sarcoma surgeon & scientist decades later. Hear his story.
#sarcomaawarenessmonth
Today is "International GIST Cancer Awareness Day."
To mark this special date we are sharing Amy and Laura's stories
pawsgistclinic.org.uk/patien…
pawsgistclinic.org.uk/patien…
Early and accurate diagnosis leads to better paient outcomes.
Please share and raise awareness…
Update from the Spring PAWS-GIST clinic…
facebook.com/share/v/1Gsh6JQ…
PAWSGIST retweeted
Don't forget to register for "Locoregional Therapies for Treatment of GIST in the Liver" on September 9th at 12PM ET. Link: bit.ly/LocoregionalTherapies #GISTeducation #ThrivingTogether
PAWSGIST retweeted
WHOA! We're only 135 responses short of 1,000 on our Global Sarcoma Diagnosis Pathway Survey!
Sarcoma patients and caregivers, we need your input. Make your voice heard. Take the survey and pass it on!
awareness.sarcoma-patients.o…
It was the second PAWS-GIST clinic of 2024 last week.
Read more on the news section of the clinic website…
pawsgistclinic.org.uk/news/
#pawsgist #gistcancer
PAWSGIST retweeted
These fundraisers have gone above and beyond for their chosen causes.
Meet our 2024 Outstanding Commitment Award finalists!
💜 Jayne Bressington
🪩 Freya Morgan
🏁 Sam Perkins
| #GoCardless #JGAwards
PAWSGIST retweeted
Not every #GIST patient gets an early diagnosis! #SPAGN Co-Chair @gvanoortmerssen is himself a GIST patient. Hear his story of how it took him 330 #DaysToDiagnosis...nearly 1 year.
#GISTAwarenessDay #GISTLife #SarcomaAwarenessMonth #EarlyDiagnosisSavesLives
cc: @Liferaftgroup
“GIST Cancer Awareness Day".
Raising awareness of a cancer that most have not heard of.
Awareness + early diagnosis = better outcomes.
PAWS-GIST patient Michelle’s story
pawsgistclinic.org.uk/patien…
#GISTlife #PAWS-GIST #GISTCANCER #SarcomaAwarenessMonth #earlydiagnosissaveslives
Sarcoma Awareness month & Justgiving award nomination - Please vote for Jayne Bressington (PAWS-GIST) & help us continue to improve the outlook for patients diagnosed with these horrible cancers
PLEASE VOTE USING THIS LINK >
page.justgiving.com/justgivi…
#earlydiagnosissaveslives
PAWSGIST retweeted
A message from @RichardDavidson, Chief Executive, Sarcoma UK.
Not enough people know about sarcoma.
#SarcomaAwarenessMonth is an opportunity to reach them. When people are aware of the symptoms of this cancer, there's a better chance of an earlier diagnosis. [1/2]
Andrew who shared his PAWS-GIST story last month has hit the headlines today.
Read all about it here:
pawsgistclinic.org.uk/andrew…
Thank you PAWS-GIST patient Vicky for sharing your amazing story and tips on how you have managed family and work life despite all challenges presented since your diagnosis with SDH deficient GIST in 2007…
Read Vicky's story here>>
pawsgistclinic.org.uk/patien…
#pawsgist
BSG GIST clinical practice guidelines published in the British Journal of Cancer yesterday
Please share these guidelines with doctors managing GIST patient care as well as patients.
Thanks to all who contributed.
pawsgistclinic.org.uk/latest…
#gistguidelines #britishsarcomagroup












