PBC Ireland (@PBCIreland) header
PBC Ireland (@PBCIreland) profile picture

PBC Ireland

@PBCIreland

Primary Biliary Cholangitis (PBC) News and Information

 Ireland
Joined May 2025
  • Tweets62
  • Following44
  • Followers12
25Media
Photo by PBC Ireland (@PBCIreland)Photo by PBC Ireland (@PBCIreland)Photo by PBC Ireland (@PBCIreland)Photo by PBC Ireland (@PBCIreland)Photo by PBC Ireland (@PBCIreland)Photo by PBC Ireland (@PBCIreland)Photo by PBC Ireland (@PBCIreland)Photo by PBC Ireland (@PBCIreland)Photo by PBC Ireland (@PBCIreland)Photo by PBC Ireland (@PBCIreland)
What an inspiration, Gerry Nesbitt, PBC patient & Founder of PBC Ireland. Since May 25; 👉🏻 150 members 👉🏻national point of contact for PBC 👉🏻PBC Registry 👉🏻Evidence-based advocacy 👉🏻Shaping policy in Ireland 👉🏻Open to collaboration Phenomenal 👏🏻💚 @PBCIreland @IrelandLiver
Image from Michèle Bourke (@michele_bourke)
Image from Michèle Bourke (@michele_bourke)
Image from Michèle Bourke (@michele_bourke)
4
5
148
CRID is the most patient-centric UPI system in research today. It bypasses regulatory complexity by staying out of clinical care and staying inside research domains. It enables ethical reuse of existing patient data and biospecimens and works in all rare disease networks.
2
3
37
We’ve released the Automatic CRID Creation API, making it easier for 3rd party applications to generate Clinical Research IDs (CRIDs) directly from within their systems. This is a big step toward improving data linkage across research studies #CRID #NoMoreDataSilos #RareDiseases
Image from CRID - Unique Patient ID/clinical research (@_TheCRID)
2
3
63
Load more