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PCD Scotland (@PCD_Scotland) profile picture

PCD Scotland

@PCD_Scotland

The Twitter page for PCD Scotland! Follow us for all things PCD. https://teapawt.net/t.co/G9xS5KkXOa

facebook.com/PCDfamilysupportscotland/
Joined November 2017
  • Tweets326
  • Following116
  • Followers185
57Media
Photo by PCD Scotland (@PCD_Scotland)Photo by PCD Scotland (@PCD_Scotland)Photo by PCD Scotland (@PCD_Scotland)Photo by PCD Scotland (@PCD_Scotland)Photo by PCD Scotland (@PCD_Scotland)Photo by PCD Scotland (@PCD_Scotland)Photo by PCD Scotland (@PCD_Scotland)Photo by PCD Scotland (@PCD_Scotland)Photo by PCD Scotland (@PCD_Scotland)Photo by PCD Scotland (@PCD_Scotland)
The most used face masks among people with PCD are certified single use masks or reusable fabric masks. More results from the #covid_pcd study on our website covid19pcd.ispm.ch/en/result… #pcd #covid19 #raredisease
Image from PCD research group at ISPM Bern (@PCD_ispm)
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PCD Scotland retweeted
PCD Support UK (@PCD_UK) profile picture
PCD Support UK@PCD_UK31 Dec 2020
Congratulations go to our very own @pcdmum in being awarded a British Empire Medal for her tireless work for the PCD Family Support Group in the Queen’s New Year’s Honours list!🥳 More info: pcdsupport.org.uk/new-years-… #PCD @lunguk @EuropeanLung #PrimaryCiliaryDyskinesia #champion
Image from PCD Support UK (@PCD_UK)
Image from PCD Support UK (@PCD_UK)
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A novel real-world validation of two tools (PICADAR and NA-CDCF) that use routinely collected clinical data and help triage the need for primary ciliary dyskinesia diagnostic testing is performed, showing both tools perform well with equivalent performance bit.ly/2YgzxlY
Image from ERS publications (@ERSpublications)
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PCD Scotland retweeted
PCD Support UK (@PCD_UK) profile picture
PCD Support UK@PCD_UK15 Oct 2020
(4/4) #PCDAwarenessMonth #PCD #cilia #genetics #raredisease #lungdisease #inheritance #inherited #genes #PrimaryCiliaryDyskinesia #rare
Image from PCD Support UK (@PCD_UK)
Image from PCD Support UK (@PCD_UK)
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PCD Scotland retweeted
PCD Support UK (@PCD_UK) profile picture
PCD Support UK@PCD_UK15 Oct 2020
(3/4) #PCDAwarenessMonth #PCD #cilia #genetics #raredisease #lungdisease #inheritance #inherited #genes #PrimaryCiliaryDyskinesia #rare
Image from PCD Support UK (@PCD_UK)
Image from PCD Support UK (@PCD_UK)
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PCD Scotland retweeted
PCD Support UK (@PCD_UK) profile picture
PCD Support UK@PCD_UK15 Oct 2020
(2/4) #PCDAwarenessMonth #PCD #cilia #genetics #raredisease #lungdisease #inheritance #inherited #genes #PrimaryCiliaryDyskinesia #rare
Image from PCD Support UK (@PCD_UK)
Image from PCD Support UK (@PCD_UK)
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PCD Scotland retweeted
PCD Support UK (@PCD_UK) profile picture
PCD Support UK@PCD_UK15 Oct 2020
Today's #PCDAwarenessMonth features genetics. How come non-PCD parents can have children with PCD? (1/4) #PCD #cilia #genetics #raredisease #lungdisease #inheritance #inherited #genes #PrimaryCiliaryDyskinesia #rare
Image from PCD Support UK (@PCD_UK)
Image from PCD Support UK (@PCD_UK)
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🤩Virtual Open day, Sat 26th & 27th September🤩 @MRC_IGMM Powerful presentation on PCD will be included! ed.ac.uk/c/igmm-dod-2020 PCD Family Support Group UK MRC Institute of Genetics & Molecular Medicine @MRC_HGU #DODIGMM #DigiDoorsOpen #DODScot
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PCD Scotland retweeted
PCD Support UK (@PCD_UK) profile picture
PCD Support UK@PCD_UK4 Sep 2020
Study update! 483 participants 🤩Getting closer to that 500 mark! Thank you to all who are taking part and continue to help us understand the effects of #covid19 on #PCD. Please join us if you haven't! #raredisease #research #lungdisease #primaryciiliarydyskinesia #community
Image from PCD Support UK (@PCD_UK)
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Well done #PCD community, 👏😷👏 Your regular participation in the survey is providing important information, so please keep completing the short surveys. If you have #PCD and are not yet involved in this international project, it's easy to join in covid19pcd.ispm.ch/study-inf…
PCD Support UK (@PCD_UK) profile picturePCD Support UK@PCD_UK19 Aug 2020
#Covid19 and #PCD Study Update! We now have 469 participants 👏 Full results and how to get involved: covid19pcd.ispm.ch/results/ #research #raredisease #community #primaryciliarydyskinesia #coronavirus #shieldus
Image from PCD Support UK (@PCD_UK)
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PCD Scotland retweeted
PCD Support UK (@PCD_UK) profile picture
PCD Support UK@PCD_UK2 Jun 2020
PCDers we need you! Please complete this questionnaire to help us understand the impact of Covid-19 on people with PCD. The study is open to anyone with PCD around the world: covid19pcd.ispm.ch/?fbclid=I… #pcd #covid19 #primaryciliarydyskinesia #survey #help
Living with PCD

Living with PCD

You can find latest news from the Living with PCD study here. Living with PCD (formerly COVID-PCD) is a research study that aims to answer emerging questions about primary ciliary dyskinesia (PCD).

pcd.ispm.ch
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👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏 #clapforNHS #ClapForCarers 💙#NHS💙
Image from Jeans for Genes UK (@jeansforgenes)
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PCD Scotland retweeted
PCD Support UK (@PCD_UK) profile picture
PCD Support UK@PCD_UK19 Mar 2020
Great idea! Make sure you keep up your exercise regimes! 🏃‍♀️🏋️‍♂️🚴‍♂️🤸‍♂️🧘‍♀️⚽️🥊
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PCD Scotland retweeted
PCD Support UK (@PCD_UK) profile picture
PCD Support UK@PCD_UK19 Mar 2020
Practising #selfcare is hugely important in these changing times - give yourself permission to rest and to just 'be' #raredisease @lunguk #relaxation #StaySafeStayHome
Image from PCD Support UK (@PCD_UK)
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PCD Scotland retweeted
PCD Support UK (@PCD_UK) profile picture
PCD Support UK@PCD_UK17 Mar 2020
Update on the #coronavirus outbreak now available on our wesbite: pcdsupport.org.uk/update-on-…
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The news about #Coronavirus can be worrying, especially if you live with a lung condition. Our up-to-date information covers what you can do about coronavirus now, what to do when the virus spreads, and more about what coronavirus is. blf.org.uk/support-for-you/c…
Image from British Lung Foundation (@lunguk)
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The second session covered the topic of reducing the diagnostic odyssey. Thank you to our guest speakers from @CHAMP1Gene @ScottishGenomes @PCD_UK. #RareResearchScot #RareDisease
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Today FM @NicolaSturgeon gave an update on #coronavirus, where she stated that while Scotland and the UK currently remain in the "containment phase" there is an increasing inevitability of a significant outbreak. Find the latest health advice at nhsinform.scot/coronavirus
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PCD Scotland retweeted
WAHT_PARC (@ParcWaht) profile picture
WAHT_PARC@ParcWaht9 Mar 2020
Monday morning fitness 😀🏃🏼‍♀️ #cysticfibrosis #PhysicalActivity #airwayclearance ⁦@WorcsAcuteNHS⁩ ⁦@WAHT_Paeds⁩
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Have your say on the next stage of the @GlasgowCC #LowEmissionZone . Air pollution is a public health crisis and it is great to see Glasgow taking action. Is the council going far enough? Are there things that haven’t been considered? Let the council know ow.ly/53zO50ypi1t
Image from Asthma + Lung UK Scotland (@asthmalungscot)
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