@PPCC_PA

Pediatric Palliative Care Coalition provides resources for medical professionals, caregivers, and families working together for medically fragile children in PA

 Pennsylvania, USA
linktr.ee/pediatricpalliativecc
Joined June 2017
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407Media
Make sure your program is counted! We're encouraging specialty palliative care programs in the U.S. to participate in the @CAPCpalliative Palliative Care Program Inventory. Participation is free and open to all U.S. specialty palliative care programs: capc.org/program-inventory/
Register now! Deeper Dive Webinar Series - October 16, 23, 30 -- Brave Dialogues: Empowering IDTs to Tackle Tough Conversations in Pediatric Palliative Care. Featuring presenters Jessica Pope, Orlalea Marquardt, Lauren Hancock, and Jacinda Hays. ppcwebinars.org/deeper-dive
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You can help improve the quality of life for millions of patients with serious illnesses and chronic conditions, @SenFettermanPA. We need your continued support: please ask leadership to move #PCHETA forward. @PatientQoL #HPM #HAPC
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Thank you @SenMcCormickPA for being a #PCHETA cosponsor! This bill will improve the quality of life for patients living with serious illness and their families. @PatientQoL #HPM #HAPC
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9/15 PPC Webinar - Emotional Toll: Caring for the Caregiver Will explore the complex nature of professional grief versus personal grief & highlighting its impact on well-being & clinical performance Register at ow.ly/UEMC50ZIX6F #pedpc #pedspc #hapc #hpm
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EMS providers care for hospice patients, but many lack formal EOL care training or protocols. Heather Valente, PA-C, will outline the development of patient-centered EMS hospice protocols, the importance of stakeholder engagement, and lessons learned. ow.ly/r18Q50ZFUvN
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Register for 8/12 PPCC Firefly Chat: Goals of Care Discussions: More Than a Medical Decision. We will explore decision-making and ongoing conversations in supporting children with serious illness with a Palliative Medicine Physician and two parents. us02web.zoom.us/webinar/regi…
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August 20 PPC Webinar - Improving Pediatric End of Life Legacy Building at Home. The presenter will discuss Memory Making kits, aimed at independently facilitating legacy activities at home, which allow for the creation of tangible keepsakes. #pedpc #pedspc #hapc #hpm
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Attention PA friends! Our next LEARN Initiative meeting is Wed., 6/24 at Noon. We will be joined by guest speakers Jennifer Harniman-Crangle, LSW, Jordan Hunt and Kendra Pope, and Jacquelyn Horstmann Didio. You can register at us02web.zoom.us/meeting/regi… Hope to see you there!
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Join us tomorrow for a PPC Webinar - Anti-Racism and Health Equity in Pediatric Serious Illness: Next Steps in Maintaining Commitment. Presenters will discuss health inequalities impacting children facing serious illness and how to address them. #pedpc #pedspc #hapc #hpm
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Register today for the April 23rd PPC Webinar - Adolescent Palliative Care: Who Decides? In this webinar, Dr. Macauley discuss tools for supporting and working with adolescent patients facing serious illness. mailchi.mp/ppcc-pa/april-202…
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PPC Webinar on 3/17/26 - The Calm and the Storm: Hypothermic Dysautonomia Through a Palliative Care Lens. Dr. Vallely will review the pathophysiology of "cold" storming in children with SNI & discuss dynamic goals assessment. ppcwebinars.org #pedpc #pedspc #hapc #hpm
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Register for the PPC Webinar on 2/19/26! Ped. palliative providers care for patients and families facing stressful and emotionally overwhelming situations. Explore communicating with compassion while cushioning the well-being of providers. pppwebinars.org
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Join us January 22nd for our first PPC Webinar of 2026! This presentation will utilize an impactful clinical case to demonstrate the importance of ongoing assessment of a family’s understanding and goals of care. Register: ppcwebinars.org/ #pedpc #pedspc #hapc #hpm
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As we say goodbye to 2025, we are deeply grateful for our community. We could not do this work without you! Wishing you a New Year filled with peace, hope and meaningful moments with those you hold dear!
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We hope you'll join us for our Firefly Chat on Dec 10th at noon EST: "Bridging Language Gaps: Effective Support for Non-English Speaking Families" During this Firefly Chat, we will be focused on language boundaries to ideal patient care and more! ppcc-pa.org/firefly-chat
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Today is National Day of Giving! PPCC has provided education, resources and support for over a decade. Please consider donating to help light the way for children with medical complexity, their caregivers and their care providers. ow.ly/QLWh50Qc26y
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Here's how you can help: 🧡Make a donation today ow.ly/Z7xJ50UamOx 💙💙Host your own virtual fundraiser through our donation platform, Give Lively secure.givelively.org/donate… 💜💜💜Subscribe to the PPC Webinar Series ppcwebinars.org We're thankful for all you do!
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You can still register for the Nov 2025 PPC Webinar - The Father Experience in the Pediatric Healthcare System. TOMORROW. Dr. Chrissy Salley, from @CourageousCPN will facilitate a panel discussion among a group of fathers. mailchi.mp/ppcc-pa/register-… #pedpc #pedspc #hapc #hpm
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