Mission: to drive research to identify treatments and a cure for PSC, while providing education and support for those impacted by this rare disease.
Canada
Joined January 2017
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Support & Community available for those affected by #PSC in two @PSCPartners Facebook Groups! Find out more at
bit.ly/OpenSupportGroup
bit.ly/ClosedSupportGroup
Join the conversation and welcome to the best family we wish you didn't need.
PSC Partners Canada retweeted
20 Years International Research Experience in PSC: What Have We Learn?
👉International Collaborations matters & make the difference
@ipscsg @CcaEns
👉Patient Associations play a central role @PSCPartners @PSCSupportUK
@tomhemmingk at the stage, who better than him! 👏
PSC Partners Canada retweeted
Community-driven research is critical to advance scientific discovery
Science in Society meeting attendees share posters on their work to push for treatments or cures in their rare disease areas, emphasizing the critical role that patients & communities play in driving discovery
ALT Person standing in front of poster smiling
ALT Person standing in front of poster smiling
ALT Person standing in front of poster smiling
Last call to register: Sat Paeds PSC Day webinar for patients & families w amazing expert speakers Gideon Hirschfield, @amandaricciuto, @MacparlandSonya, @garybader1, Sarah Kohut, Amrita Mundh, & Albert Fung fr @UHN @UofTGastroH @SickKidsNews @TVASurg bit.ly/PSCPC24
PSC Partners Canada retweeted
People with #PSC can experience an infection of the bile ducts (called “PSC flare” or “cholangitis attack”). If you're a PSC patient who's had an attack or flare consider filling in this survey, helping us improve care and develop treatments. buff.ly/3Ut2DeQ @PSCPartners
Help us reach paediatric PSC families w news of Canadian Paediatric PSC Day on June 1 @ Toronto. Full day educational programming & peer support. Register @ bit.ly/regPSC
@CASLupdates @amandaricciuto @MacparlandSonya @BinitaKamath @DrSimonLing @AASLDtweets @NASPGHAN
Patients & families: Today & Tomorrow: Event for paeds autoimmune liver @ Center for Autoimmune Liver Disease at Cincinnati Children's Hospital & ALiNK.
Reg open through noon tomorrow for online attendance.
1.Register: web.cvent.com/.../abe1bfce-6…...
2: instructions to join online
PSC Partners Canada retweeted
Tonight, the @TourCNTower will be lit green to kick off National Organ and Tissue Donation Awareness Week (#NOTDAW). Remember to check that you’re a registered organ and tissue donor at BeADonor.ca
Stephanie Azzarello is 39, she lives in Toronto and works at the University of Toronto in the art history department as a researcher and lecturer. She also has PSC and is on the transplant wait list hoping to find a living donor.
Read her full story here:
theglobeandmail.com/amp/life…
2024 Canadian Paediatric PSC Day for patient families! Registration is open for this June 1 event to be held in Toronto, Ontario.
Full information at conta.cc/3TAZFEH @PSCPartners #PSCAware
PSC Partners Canada is happy to announce that registration is NOW OPEN for the first Canadian Paediatric PSC Day happening June 1 at the Arts and Letters Club in Toronto.
Register here 👇 eventbrite.ca/e/canadian-pae…
@PSCPartners #PaediatricPSCday #pscaware
This cost-free research program is open to #PSC'ers in Canada and US! Check it out!
🎉 New Year, New You! 🌟 Kick off 2024 with our 12-week Online Wellness Program tailored for adults managing chronic conditions. 💪💙 Empower your journey with wellness, mind-body connection, & a supportive community. Click empower-program.com
PSC Partners Canada retweeted
Rare liver disease research made possible through teamwork, collaboration, open science with the patient experience and voice at the heart of the whole process.
uhn.ca/corporate/news/pages/…
Teamwork Science! New publication with insights on what is going on at a cellular level in #PSC. So grateful for this team and the CIHR funding making this type of discovery possible! @PSCPartners
Thrilled to share our team's newest paper examining the cellular ecosystem of Primary Sclerosing Cholangitis, a rare liver disease that has no current treatments, a fact that we hope to change with our single cell, single nuc and spatial atlasing efforts! sciencedirect.com/science/ar…
ALT #scRNA-seq #spatial transcriptomics
Patients, families, clinicians, & scientists gathered for #PSC @PSCPartners What the Cell?! Toronto event. Videos at bit.ly/YouTubePSCPC
News release at go.pspcartners.org/WhatTheCe…
@MbD_UofT @UHNTransplant @MacparlandSonya @amandaricciuto @DianaNakib @garybader1 @AutoImmuneLiver
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The Quality of Life in PSC conversation w liver experts from Australia, Belgium, and UK for this global #pscaware day.
Extraordinary ELPA High-Level Roundtable Discussion on this #GlobalPSCDay
Unlock the Secrets of PSC Symptoms, Treatment & Life with Leaders like Sindee Weinbaum, Mary Pressley Vyas, Prof. Dr. Doug Thorburn, Dr. Kate Lynch, and Prof. Dr. Thomas Vanwolleghem
youtu.be/CYLpF-HAkAk
PSC Partners Canada retweeted
Primary Sclerosing Cholangitis (PSC): A #RareLiverDisease That Needs Our Attention!
Do you know what PSC is? It's a rare condition that affects the bile ducts, causing scarring and narrowing. This can lead to liver damage and impact digestion.
#LiverCancerAwarenessMonth #PSCDay
It is not too late to join us for the online Canadian PSC patient event! 9am - 4pm EST tomorrow, 10am - 1pm EST Sunday. pscpartners.ca/events to register. #PSCAware @PSCPartners
Virtual edition just added! Join us! #PSCAware @PSCPartners @PSCSupportUK @EuropeLiver @pscsupportau Registration required bit.ly/WTCDay1 @UHNTransplant @czi @MbD_UofT @mirumpharma @EscientP @MacparlandSonya @AutoImmuneLiver @amandaricciuto @garybader1
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We are grateful for partnership, grants, and corporate sponsorship to make this event accessible for #PSC patients!
