Joined April 2018
🔴Live from the #EUsmartCARE kick-off meeting - @PanCareNetwork discussing WP4: Evaluation 👇 #EUCancerPlan #EU4Health
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We are getting closer to the end of the PanCareFollowUp project. Just completed our M42 meeting and the project is nicely proceeding. @PanCareFollowUp @PanCare #ChildhoodCancer #Survivor #followupcare
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Finally we can meet again! We are very happy to announce that the 27th PanCare meeting will be organised as a face to face meeting in Torino, Italy! For more information and registration go to our website pancare.eu. We hope to meet you in Torino! #PanCareTorino
📣Kicking off the Lafe Effects Course Day 2! On the agenda: 🔹 Multidisciplinary approach in #LTFU 🔹 Workshop discussions 🔹 Survivor's and parent's perspective #SIOPEeducation siope.eu/Lafe-Effects-Course
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Katrin Scheinemann and Maria Otth introducing the Late Effects in Childhood and Adolescent #Cancer Survivors – A Course by PanCare and SIOP Europe 👇 We are very happy that 50 participants will join us during this 2-Day course. #SIOPEeducation #YoungSIOPE @PanCareNetwork
We continue with presentations on Late effects in paediatric neuro-oncology. Survivors who have been treated with CNS irradiation therapy need to receive regular follow-up care to monitor neurocognitive and endocrine late effects and guidance in coping with these issues.
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Brilliant presentation by @AEcaterina sharing the heartfelt reality of cancer survivors’ battle with anxiety and reliving past trauma during the pandemic, reflecting the thoughts of many young people in @CancerEurope Slides will be published on @PanCareNetwork website.
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75% of childhood cancer survivors have one or more late effects - they deserve a long term follow up clinic - #morethancure - let's make it happen @hseNCCP @CHIatCrumlin @IrishCancerSoc @cayasireland @PanCareFollowUp @PanCareNetwork #ForwardTogether @AYA_Cancer_IE
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The afternoon starts with presentations on survivorship and transitions. Among others, 2 survivors and a nurse tell their experiences with transition. It is very nice to hear all these stories from different perspectives in 1 session and to learn from each other. #PanCareOnline
The second session of the day is about a very topical issue: We hear how survivors have been affected by the COVID-19 pandemic and what the consequences are for long term follow up care and the daily lives of survivors. #PanCareOnline
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The PanCare Online meeting has started! A day full of interesting presentations is ahead of us, starting with updates from the PanCare project, @pancarelife , @pancaresurfup , @PanCareFollowUp and @pancaresurpass. #PanCareOnline
Collaboration and knowledge transfer are indispensable to achieve optimal follow-up care for every European childhood cancer survivor. #ChildhoodCancerAwarenessMonth #morethancure
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Huge disparity in survival rates and significant long-term side-effects in many survivors across Europe are due to the different treatment approaches, the organisation of care and availability of resources. 🎗 #supportchildrenwithcancer #goldseptember #wecareweshare
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Conducting research and collaboration between professionals and survivors in Europe is very important to improve follow-up care and improve quality of life of childhood cancer survivors across Europe! #childhoodcancerawarenessmonth #morethancure @PanCareFollowUp @pancaresurpass
Yes, you´ve read it right! Childhood cancer is the cause of 6000 children and young people in Europe dying every year. Many of those who survive suffer long-term side effects due to their treatments. 🎗 #supportchildrenwithcancer #goldseptember #wecareweshare #morethancure
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PanCareSurPass is our latest project. This project was rewarded 4 million Euros by the EU to improve long-term care for survivors of childhood and adolescent cancer by implementing the European digital Survivorship Passport. Read more about the project at pancaresurpass.eu
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The first #PanCareFollowUp paper has been published! This paper describes how the project was initiated to improve European survivorship care. For more information about this publication, take a look at our website: pancarefollowup.eu/.../06/fi…
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📅 The International Childhood Cancer Survivors Week starts soon! Did you know that 2/3 of survivors have late mental and physical side effects of treatment? Please share your experience with us, we are here to listen!
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