Parent to 2 🐼🐼 PANDAS/PANS/AE Physician resources & latest research: https://teapawt.net/t.co/bzcWdg3Xoc
Joined April 2019
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PANS/PANDAS Parent retweeted
The #PANS/#PANDAS Research Consortium consensus statement & treatment recommendations were developed by experts in the fields of child #psychiatry, #pediatrics, #infectiousdisease, #microbiology, #neurology, #neuroimmunology, #immunology, & #rheumatology. pandasppn.org/jcap
PANS/PANDAS Parent retweeted
This schematic diagram based on our mouse studies captures beautifully what may be happening in the brains of children with post-infectious BGE (PANDAS/PANS). Our human sera cytokine profiling and genetic studies support this model.
PANS/PANDAS Parent retweeted
#PANS/#PANDAS needs to be part of the conversation when discussing #mentalhealth . Learn about sudden onset psychiatric symptoms associated with infections at pandasppn.org. pandasppn.org/donate #MentalHealthAwarenessMonth
PANS/PANDAS Parent retweeted
Please join doctors from the Mass General PANDAS clinic as they present updates on various aspects of clinical care in #PANS/#PANDAS. This webinar will be presented live via Zoom on Thursday, May 20, 2021 at 4:00 PM EST. Register at bit.ly/3v9oCcC.
PANS/PANDAS Parent retweeted
Are you a school educator/nurse/therapist/administrator? If so, please consider joining a free webinar on 8th April on
“Understanding the impact of PANS, PANDAS and Long Covid in a school setting”
Essential we all understand more.
Full details at panspandasuk.org
PANS/PANDAS Parent retweeted
If you see a child with a sudden and dramatic onset of unwanted thoughts, fears, rituals, #OCD, and a decline in #mentalhealth, consider #PANS/#PANDAS. #Strep or another #infection may be triggering the symptoms and distress.
PANS/PANDAS Parent retweeted
It is important to know the differences between #PANDAS/#PANS & traditional childhood #OCD. It affects treatments & outcomes. Learn more about PANDAS/PANS at pandasppn.org.
PANS/PANDAS Parent retweeted
For those physicians who still think that mouse genetic models of disease are not worthy, we have identified genetic risk factors in children that predispose to PANDAS after S. pyogenes infections.
PANS/PANDAS Parent retweeted
OHSU Grand Rounds Presenter, Dr. Kiki Chang, driving home his point to the medical community, 'If you believe in science' PANDAS/PANS is real, it can be diagnosed and treated and the medical community cannot dismiss these disorders any longer. @NIMHDirector @AAPPres @AAPPres
PANS/PANDAS Parent retweeted
TOMORROW! 📷
Tune in to @ohsudoernbecher Grand Rounds at 8 a.m. to hear 📷 Stanford’s Director of their PANS clinic/Pediatric Rheumatologist, Dr. Jennifer Frankovich. 📷 FREE & OPEN TO THE PUBLIC 📷
ohsu.edu/doernbecher/pediatr…
PANS/PANDAS Parent retweeted
Did you know that your child's (or young adult's) medical provider can present your child's case to leading experts in PANS/PANDAS and receive feedback on diagnosis/treatment? Dr. Frankovich from Stanford's PANS Clinic is our next guest. neuroimmune.org/qa-pandas-ex…
PANS/PANDAS Parent retweeted
All PANS PANDAS patients, no matter the severity, need prompt appropriate treatment. It is not appropriate to prescribe inadequate treatments and “wait and see”. Patient’s futures and lives are at stake.
#PANSfacts
PANS/PANDAS Parent retweeted
Very happy to announce our outstanding Clinical and Scientific Advisory board who will assist us in many things including choosing the most promising research to focus on early next year! neuroimmune.org/advisory-boa…
PANS/PANDAS Parent retweeted
LEARNING OPPORTUNITY EXTENDED!
PPN’s free webinar is still available! If you have not completed the CME activity by Susan Swedo, MD, visit pandasppn.org/cme. #PANS #PANDAS
PANS/PANDAS Parent retweeted
Most parents I know have a lot to say about plans for back to school this fall. @ChildHealthCan Family Network wants to better understand what this transition will mean for your family, and your opinions, attitudes and beliefs about the planned return. 👇🏻
We want to hear from you! The #ChildHealthCan Family Network is surveying families with school aged children across Canada on the reopening of schools. Share your voice - learn more by visiting: ow.ly/DvWm50AykBx
cc: @RaeofSunshine79 @SolidFooting @Ctzen_Improver
PANS/PANDAS Parent retweeted
Great new research and collaboration with Yale showing the validity of the Cunningham Panel in PANDAS!
frontiersin.org/articles/10.…
PANS/PANDAS Parent retweeted
Based on the data presented, CaM Kinase II activation is a likely bio-marker for #PANDAS. Read a summary of the #research, access the article, & learn more about its significance at pandasppn.org/autoantibody-s…. #brain #OCD #Encephalitis #ChangeTheCourseOfMentalllness