A network for physiotherapists, physical therapists and respiratory therapists working with people with Primary Ciliary Dyskinesia. #IPCDPN
Joined May 2021
- Tweets124
- Following122
- Followers212
- Likes80
International PCD Physio Network retweeted
We have published our updated position statement - 'Inhaler Switching: Making safe and clinically appropriate changes for patients with respiratory disease'.
Read the statement, which details PCRS's position 🔗ow.ly/953050PRCbe
International PCD Physio Network retweeted
Abstract submission is now open for the World Bronchiectasis Conference being held in Scotland in 2024.
Please join us! We have reserved a large number of slots on the program for spoken sessions abstracts, and awards for early career investigators
#bronchiectasis
@dundeeuni
#WBConf24
📽 @ProfJDChalmers invites you to submit your scientific work, watch here world-bronchiectasis-confere…
📚Topics: #AATD #AirwaysClearance #Bronchiectasis #COPD #CF #NTM #PCD #Physiotherapy and many more!
⏲️Deadline: 29 March 2024
📅4-6 July 2024
🌍Dundee, Scotland
International PCD Physio Network retweeted
Our @EuroRespSoc Clinical Research Collaboration Management meeting is under way in Milan at #ERSCongress
Exciting plans for the next 3 years in every of the work packages. More info on our website: beat-pcd.squarespace.com/wor…
International PCD Physio Network retweeted
👏Really excited to see the fantastic @Shoemelia speaking as part of the #ERS year in review. Thank you Amelia for all of your work in putting #PCD on the radar of so many medical professionals
@EuropeanLung
International PCD Physio Network retweeted
Great to speak to Jobst Röhmel this morning about his work looking at the information and educational needs for patients and caregivers of people with PCD
#PCD #RareDisease #ERSCongress2023 #PatOrgDay2023 @EuropeanLung
International PCD Physio Network retweeted
In our training session, @mathieu_bottier talks about the role of assessing ciliary beat frequency for the diagnosis of #primaryciliarydyskinesia @beatpcd
International PCD Physio Network retweeted
What's needed for multidisciplinary management in #PCD? So many angles need to be included: patient perspective, physio, ENT, psychology... @PCD_UK @PcdPhysio @LaStatale @LucyD28 @Elizabeth871712 Anne-Lise Poirrier, Francesco Pagnini @beatpcd @ernl
International PCD Physio Network retweeted
Delighted to announce our new SRC with the CF Trust. With @AlexRHorsley @Dan_Beever @andrewprayle @DrCAWhitfield Laura Howells and Jim Wild @UosPolaris @ShefUni_IICD as collaborators. Can’t wait to get started. Thanks to the @cftrust for the backing of our work.
Together with the @CF_Foundation we are announcing the £1.4m funding of two new Strategic Research Centres (SRCs) to target key research priorities identified by people with CF:
Click the link for more details: ow.ly/KN7R50PlZ3C
#cysticfibrosis #medicalresearch #funding
International PCD Physio Network retweeted
PCD is a rare group of airway diseases. Global prevalence is underestimated as it is often diagnosed too late or not at all. It requires lifelong treatment to prevent respiratory complications. @PCD_CTN @ErnLung @UK_Muenster @ProfMarkStein @JohannaRaidt bit.ly/ERSM100
International PCD Physio Network retweeted
👋 Don’t miss out on the chance to become part of PCD History with the latest PCD Engage clinical trial
❗ Open to anyone aged 14+
*T&C’s do apply, for more information visit:
pcdsupport.org.uk/get-involv…
International PCD Physio Network retweeted
We want the opinions of people with PCD and their families on research priorities for primary ciliary dyskinesia!
Tell us what YOU think research in #PCD should focus next!
For info & participation link available several languages go to beat-pcd.squarespace.com/pat….
International PCD Physio Network retweeted
Very important paper for pulmonologists who treat patients w/bronchiectasis and for bronchiectasis patients who have PCD and may not know it.
ERJ: Primary ciliary dyskinesia is underdiagnosed as a cause of idiopathic bronchiectasis. Whole-genome sequencing reveals variants in motile ciliopathy genes. bit.ly/3yKoBko
International PCD Physio Network retweeted
Did you know October is #PCDAwarenessMonth? Head over to our Instagram for daily posts about #PCD and what our charity have been up to!
instagram.com/pcdsupportuk?i…
#awareness #charity #rare #raredisease
ALT Snapshot of our recent posts on instagram
International PCD Physio Network retweeted
Think PCD! 12% of patients with Bronchiectasis and no suspicion of PCD have PCD mutations. Really interesting talk from @Shoemelia #ERS @lunguk @PCD_UK @PcdPhysio
International PCD Physio Network retweeted
“We all should believe in respiratory physiotherapy” @AlibertiStefano 🙌 #ers2022
International PCD Physio Network retweeted
Alexandra Quittner now discussing the suboptimal rates of adherence in bronchiectasis, particularly as patients enter adolescence. Now to hear how we can support our patients to improve their adherence in an evidence-based way
International PCD Physio Network retweeted
Part time opportunity for a band 7 Physiotherapist who has an interest in primary ciliary dyskinesia to join the team here @Leeds_Childrens @thecsp jobs.nhs.uk/xi/vacancy/91700… please contact us if you would like any more details #paedphysio #jobs
International PCD Physio Network retweeted
Are you a physio working with adults with CF? Looking for physios willing to take part in an online interview for MSc Physiotherapy research project. If you want to know more or would like to take part please contact [email protected] TIA. @TheACPRC @acpcf
International PCD Physio Network retweeted
We would like to invite all people or parents if children with PCD to participate in a survey that will help is identify gaps where information/ educational material is needed for you and your families. You can find the link on our website beat-pcd.squarespace.com/pat…
International PCD Physio Network retweeted
In this month's PCD Live we will be joined once again by @LucyD28 with part 2 of "That's rare, I doubt you have it."
Wednesday 26th January, 5.30-6.30 PM.
Sign up on Eventbrite now!: eventbrite.co.uk/e/pcd-live-…
#PCD #PCDLive #PrimaryCiliaryDyskinesia